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Clinically Vulnerable Families 💙💜💗

@cv_cev

Jul 20, 2024 • 12 tweets • 5 min read • Read on X

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🧵 The #UKCovidInquiry's first report on 𝗥𝗲𝘀𝗶𝗹𝗶𝗲𝗻𝗰𝗲 𝗮𝗻𝗱 𝗣𝗿𝗲𝗽𝗮𝗿𝗲𝗱𝗻𝗲𝘀𝘀 has been published.

While it addresses many critical areas, it missed significant issues faced by Clinically Vulnerable (CV) families. Here’s what you need to know...

1/ #CVAwareness

The report’s focus on general preparedness overlooked the specific needs and challenges of CV people.

Our community faced unique risks and often felt abandoned in the early stages of the pandemic. Our exclusion from *this module* (M1) of the inquiry was a glaring oversight.
2/

Key areas missed include:

💔 The lack of tailored guidance for CV families
😷 Insufficient availability of appropriate PPE for home use
🫂 Inadequate mental health support

CV households had to navigate the crisis alone, compounding their stress and isolation.

3/ #CVAwareness

The report also failed to address the systemic issues in healthcare access for CV people.

🏥 Delayed treatments / limited availability of in-person consultations put these vulnerable people at greater risk.

We are in the upcoming Healthcare module (M3).

4/ #CVAwareness

👩‍🏫 Education was another key area. CV children and those in CV households faced challenges without remote learning / safe schools. The lack of appropriate protective policies disrupted their education significantly.

We hope to have the opportunity to assist the Inquiry in M8.
5/

💷 Economic support mechanisms often did not account for the additional costs borne by CV families, such as home delivery charges and increased utility bills due to shielding or informal shielding.

Financial assistance was vital but insufficiently targeted.

6/ #CVAwareness

For future preparedness, it’s vital that the voices of CV people are heard. Our experiences offer valuable insights into creating a more inclusive and effective response framework.

7/ #CVAwareness

The inquiry must broaden its scope to consider the impact on CV communities in upcoming modules. Ignoring their plight risks repeating the same mistakes in future health crises.

We are still *not* identified in their Equalities and Human Rights statement:

8/ #CVAwareness

https://x.com/cv_cev/status/1778356063055602081?t=e4MQOn97JF8UFPBtPnfZoA&s=19

We have raised concerns to the that we are missing from this statement for a considerable length of time now. Perhaps almost 18 months?

Equity can only be achieved if we recognise that people have different needs and circumstances. #CVAwareness !

9/

https://x.com/cv_cev/status/1778356063055602081?t=e4MQOn97JF8UFPBtPnfZoA&s=19

For more detailed information on the report, visit the UK COVID-19 Inquiry website.

Share your thoughts with us below.

10/ #CVAwareness
covid19.public-inquiry.uk/reports

If you are interested in contributing to our work and you come from a Clinically Vulnerable household.

STEP 1: Join us on FB

11/ #CVAwarenessfacebook.com/groups/clinica…

STEP 2: Sign up to our online event to meet our Covid-19 Inquiry legal team on 24th July.

* Apply by Monday 22nd July *
⬇️⬇️⬇️

⬆️⬆️⬆️

STEP 3: Keep fighting for #CVAwareness and #CVRights 💪

12/ clinicallyvulnerable.org

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📉 Kent MenB outbreak

⚠️East Kent Trust failed to report their first case for 2 days⚠️

Here's what you need to know.
TLDR: Peaked 13th March. No new cases since - with reporting delays, but that's even better news than it sounds.
1/🧵 👇 @laurabundock @SkyNews

THE OUTBREAK IS DECLINING but understates how well that's going. 📉

The earliest case became unwell on 9th March, with the latest on 16th March, and the peak was 13th March.

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* Important thread for those who prefer balanced and factual information *

In order to understand risk we need to break down a few things....

🦠Risk from the bacteria
💙💜💗 Individual risk
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1/

The Kent outbreak is predominantly MenB (Group B). This is a serious infection - and potentially an adapted strain - investigations are ongoing...

Bacterial meningitis is rare but more severe than viral, and up to 1 in 10 cases of bacterial meningitis in the UK is fatal.

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@AdamWagner1 Closing Submissions

The Covid Inquiry has good ventilation protocols (as advised by CVF at the start of the Inquiry) including HEPA filters.

Under 1000ppm is therefore the safe threshold ( but without it would be under 800ppm).

1/

We need to understand airborne transmission in order to make all indoor environments safer for everyone, and especially for Clinically Vulnerable people.

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The need for Clinically Vulnerable people to have:

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Expert evidence focused on: later life, LGBTQ+, race and gender inequalities (Dr Clare Wenham, below)

1/

EXPERT RACIAL INEQUALITIES

Prof Laia Bécares discussed the risks in multigenerational households where there were keyworkers and children in schools.

2/

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Prof @JamesNazroo

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Clean air matters - especially for #ClinicallyVulnerable children, staff and families. This is an important recognition that airborne transmission is preventable.

1/

But the proposed CO₂ thresholds are too high. 800ppm should be the upper limit - not 1500ppm. By 1500ppm, air is already significantly rebreathed. That’s not a precautionary standard for children, let alone those at higher risk.

2/gov.uk/government/pub…

If we’ve learned anything from the pandemic, it’s that minimum compliance is not the same as safety. #ClinicallyVulnerable pupils cannot “choose” lower exposure if the baseline standard is poor.

3/

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We would encourage you to watch @lara_wong 's inquiry evidence in full.

However, out amazing team have clipped these extracts for you!

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CVF's Survey

In the summer of 2025, CVF gathered in depth survey evidence about the impacts of the pandemic on CV households - which has now been shared multiple times to inquiry experts and others.

2/