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Rae Profile picture
@Sunny_Rae1
Aug 26 • 7 tweets • 3 min read • Read on X
So as we’ve been trying to tell everyone for several years now….the kids are NOT ok….@westreeting @GwynneMP @bphillipsonMP We understand the huge amount of work you’ve inherited from the last Government, but if you could spare us some time can we please share our clinical & 1/2
2/research experience in long Covid with you please? And why it is urgent this growing health crisis (and economic implications of such) is addressed to protect our children & future generations please? 🙏 myself, @BinitaKane @drclairetaylor and several others have spent all 2/
@BinitaKane @drclairetaylor 3/ of our pandemic years so far learning and studying Covid, treating long COVID and now researching its effects in children. @SammieFMc and @HelenMMGoss have spent the last 4&1/2 years supporting children and families devastated by long COVID. Please meet with us 🙏thank you
@BinitaKane @drclairetaylor @SammieFMc @HelenMMGoss 4/This was you @wesstreeting talking in 2022 (H/T DFoxon) about ventilation,air filtration and testing in schools - we are now 5 yrs into the pandemic, long COVID in UK kids has DOUBLED in 12 months, the damage to organs is unequivocal, we are in another big Covid wave with
@BinitaKane @drclairetaylor @SammieFMc @HelenMMGoss @wesstreeting 5/schools about to go back next week ….and yet we STILL 5 years on with now an est 400 MILLION disabled by long covid at a cost of ~$1 TRILLION GLOBALLY PER ANNUM, do not have ANY protection for our kids in school and ZERO public health protections. “Let it rip” has failed…5/
@BinitaKane @drclairetaylor @SammieFMc @HelenMMGoss @wesstreeting 6/Can we now please 🙏 start following the science? Before hundreds of thousands more become disabled with a preventable disease, currently no cure, that we are not even trying to prevent? We already have all the tools in the tool box to do so, please 🙏 can we start using them?
@BinitaKane @drclairetaylor @SammieFMc @HelenMMGoss @wesstreeting Here’s a copy of our new Global expert consensus document on long Covid: 179 experts for 28 countries in agreement:

papers.ssrn.com/sol3/papers.cf…
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More from @Sunny_Rae1

Rae Profile picture
Aug 22
It’s finished!! Enclosing the PrePrint ahead of publication of our new manuscript.Delighted to have been part of the team overseeing this modified DELPHI Global consensus document on Long Covid: International consensus from 179 experts across 28 countries
papers.ssrn.com/sol3/papers.cf…
Image
Huge thank you to all the Executive team, but especially Andrew Ewing for all his hard work @AndrewEwing11
Read 4 tweets
Rae Profile picture
Aug 6
1/.@GwynneMP Current biggest Covid wave since 2022.WHO advice: Currently U.K. is not following it. Most citizens cannot access vaccines. Vaccines need to be constantly improved to keep up w/circulating variants which exhibit immune escape. No clean air. No masks in health care
2/no masks (FFP2/3 & KN95 not ineffective cloth or baggy blues) on public transport. No routine testing, no accurate tracking, no support to WFH when infectious. No mitigations in schools. Limited access to antivirals, decentralisation of long covid clinic funding to ICBs with
3/funding limited & paediatric LC treatment hubs being closed down. No ring fenced funding for LC drug therapy trials-this is all against WHO advice & despite UK LC rates having risen by almost ~300,000 between March 2023 & March 2024 & long COVID in kids having DOUBLED in 12mths
Read 7 tweets
Rae Profile picture
Jul 21
@GwynneMP These are the things Dr Taylor and I see repeatedly in our clinics. We have a first hand “in the trenches” view of what’s really happening. For most (but certainly not all) people it’s not the index infection we are primarily worried about, it’s everything that comes 1/
2/after……there is a juggernaut of chronic diseases triggered, caused or exacerbated by Covid barrelling down the Highway towards us, and we are doing ABSOLUTELY NOTHING to prevent any of it. “Normal” highways have prevention guidelines ie “The Highway Code”-rules of the road,
3/these are simple safety measures that are Government guided & enforced, that everyone happily follows because we all accept this is what we need to do to keep everyone safe on our roads…speed limits, driving tests, seatbelts, air bags, child safety seats…have saved MILLIONS
Read 10 tweets
Rae Profile picture
Jul 9
@BBCMorningLive @xandvt @xandvt I’m really sorry to publicly disagree with another medical professional, but although the acute index infection from Covid may now feel milder for some, there is still a significant risk of post-acute diseases being triggered or worsened by repeat Covid infections….1/
@BBCMorningLive @xandvt 2/research you might like to read:
1. ZAlAly paper - repeat Covid infections cumulative increase risk of long covid, cardiovascular disease, neurological disease, endocrine disease - so “not a cold”

nature.com/articles/s4159…
@BBCMorningLive @xandvt 3/Stat Can data: Image
Read 16 tweets
Rae Profile picture
May 24
Read this and get angry and demand change ⬇️
Some of us working in Covid/Long Covid have been calling out the science &potential risks to children & their families for several years, both publicly, internationally & privately - raising concerns repeatedly- thinking naively once
the science was out there our PH, Gov & DoE would take action to protect our children. But we’ve been repeatedly ignored. & now we know why…b/c they ALREADY KNEW THE RISKS. And chose to do nothing. And are still chosing to do nothing. & LC rates in kids have now DOUBLED 2/
3/in the U.K. in the last 12 months. And will continue to get worse with each repeated wave after wave of reinfections if we continue to pressure parents to sent Covid infectious children into unmitigated schools with poor ventilation to spread further disease just to make 3/
Read 11 tweets
Rae Profile picture
May 19
1/Today I had the most bizarre interaction I’ve ever encountered in an airport. I was travelling back from Spain this afternoon. I was travelling with some companions & I stopped by the “Disabilities Assistance” desk to ask one of the staff a question. I was wearing an FFP3 ..1/
2/ respirator mask as I always do when travelling through a high risk area. When I approached the disabilities desk the employee jumped out of her seat, backed away & said “Don’t come near me, I don’t want anyone in a mask near me”. I was completely shocked, but assumed she
3/perhaps thought I was infectious, so I calmly explained I didn’t have Covid & wasn’t infectious & was wearing a mask in an airport to protect myself & others from contracting/spreading airborne disease. I thought this explanation would reassure her & I took a further step
Read 8 tweets

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