Dangerous garbage being presented “science writing”. Two *actual* facts surrounding #COVID infection: 1. Your risk of #LongCOVID, a currently incurable chronic illness, after surviving an acute COVID infection currently sits conservatively at ~6-7% 2. Your risk of LC increases 1/
Now, in the face of this information, there are really five (or so) types of reactions: 1. Disbelief and denial 2. Being unaware or uninformed of the risk 3. Believing appropriate caution is necessary to avoid Long COVID 4. Believing it is worth the risk 2/
to yourself AND OTHERS to live your best pre-COVID life 5. Not having the financial freedom to not risk yourself and others by not taking precautions
Regardless of which of these 5 lanes you live in, won’t change the first two FACTS. So, as a person of questionable influence, 3/
let me remind you: #LongCOVID is life-changing and incurable. LongCOVID is caused by #COVID. We still have no way of predicting who will emerge unscathed from a COVID infection. The only way to avoid getting LongCOVID is to not get COVID. Let me also remind you that while 4/
@ClareWilsonMed ridicules people “putting sticks up their nose” if you should, god forbid, get #LongCOVID and you don’t have evidence of infection, things get harder for you to access good care. They shouldn’t, but they do. So since the “science writer” who penned this opinion 5/
didn’t lay it all out honestly in favor of publishing a bit of clickbait that hurts public health, next time you hear drivel like this, think about the 5 lanes of people and which lane you want to be in. Think about the fact that those minimizing COVID have been minimizing it 6/
since 2020 and have been consistently wrong since 2020. Magical thinking doesn’t make you safe and speaking realistically and quantitatively about risk stratification doesn’t make you a fearmonger. Writing junk like this DOES make you dangerous. Grow up, Clare.
/end
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Hi there, thanks for reaching out. Sorry to hear about your recent COVID infection. If you don't have pre-existing Long COVID, infection-associated chronic illness then there are some basic guidelines that exist to slowly ease your way back to exercise. First, and most 1/
unambiguously: do NOT rush back to exercise if you're sick or symptomatic at all. General guidelines for viral illnesses typically will encourage waiting at least 10 days from your initial infection-onset, PLUS at least 3 symptom-free days before resuming any exercise that
2/
you were previously comfortably routinely completing. You may read that some guidelines encourage following the so-called "neck rule": if you have symptoms BELOW the neck (e.g. chest pain, shortness of breath, resting tachycardia) then rest completely, but if you have symptoms
3/
Happy to share some new #LongCOVID data that went to pre-print today. Before we begin breaking this down, one caveat: this work MUST be validated by a well-powered placebo-controlled randomized controlled trial before we can get too excited, but this is
an exciting first step and something that we hope will deepen our understanding of use of combination antivirals in the #LongCOVID community. A bit of background about how we got here: in early 2025 our team was part of a consortium that published a roadmap for targeting viral
2/
reservoir in pwLC. In this statement piece, we spoke about the need to be trialing not just monotherapies, but multi-drug combinations and for longer periods of time than just a few weeks. After publishing this work, we started to seek out docs that
3/thelancet.com/journals/lanin…
I was asked to respond to this. Honestly I don't pay too much attention to this account because I prefer to spend energy on people and things that build community in #LongCOVID and IACI rather than curating divisiveness, but this shouldn't go without rebuttal so here we go. 1/
First up, as someone who works in innovation, I *love* unpopular opinions - that's where alternative points of view live that allow us to look at a problem in a different way. But IT IS disingenuous to dress up an *uninformed* or *misleading* opinion as "unpopular" - that's
2/
not honest. So let's dig in: Todd's opinion is that we've put too many resources into studies investigating viral persistence. In other tweets he has also claimed that it is a "disproportionate" amount of resources. Let's start by looking at evidence of viral persistence in LC 3/
This is an issue that has been coming up today from various folks and I want to address it. As I said when we launched the manual, this is the beginning of a conversation, not the "final word". I also want to say that reading it with 20/20 hindsight, I understand why this 1/
language has been inflammatory to members of the community, because it the feedback I have received is that it "feels like we're trying to say that exercise is curative even with PEM, without saying the word exercise". I regret that this was the impression that our wording
2/
gave. In previous communication and education we have been quite clear that IF rehabilitation protocols are being attempted (and not all of our patients with PEM are considered suitable for rehabilitation), then PEM is the factor that governs all aspects of care delivery, from 3/
Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS, 1/
chronic tick- and vector-borne illness and other infection associated chronic illnesses. We wanted to make sure that this could be done billing codes that are covered by insurance, and most importantly, we did *not* want to become a destination clinic - we wanted to create a
2/
model that could be followed by others to scale to thousands of potential clinics around the country and the world to help to manage the hundreds of millions of people who are living with IACI diagnoses. This manual, available free of charge to everyone, is a first step in
3/
I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/
underpinnings of these illnesses. Next, I think that the study is credible and well-conducted with a great, big data set that agrees with other studies in the space that have shown that, yes - people with #MECFS, #LongCOVID () and perhaps even other 2/medrxiv.org/content/10.110…
IACIs may express genes associated with a great vulnerabilities toward mitochondrial dysfunction, pro-inflammatory cascades, endothelial dysfunction, immune dysregulation and neurological dysfunction. It is entirely feasible that expression of some of the genes identified in 3/