Dangerous garbage being presented “science writing”. Two *actual* facts surrounding #COVID infection: 1. Your risk of #LongCOVID, a currently incurable chronic illness, after surviving an acute COVID infection currently sits conservatively at ~6-7% 2. Your risk of LC increases 1/
Now, in the face of this information, there are really five (or so) types of reactions: 1. Disbelief and denial 2. Being unaware or uninformed of the risk 3. Believing appropriate caution is necessary to avoid Long COVID 4. Believing it is worth the risk 2/
to yourself AND OTHERS to live your best pre-COVID life 5. Not having the financial freedom to not risk yourself and others by not taking precautions
Regardless of which of these 5 lanes you live in, won’t change the first two FACTS. So, as a person of questionable influence, 3/
let me remind you: #LongCOVID is life-changing and incurable. LongCOVID is caused by #COVID. We still have no way of predicting who will emerge unscathed from a COVID infection. The only way to avoid getting LongCOVID is to not get COVID. Let me also remind you that while 4/
@ClareWilsonMed ridicules people “putting sticks up their nose” if you should, god forbid, get #LongCOVID and you don’t have evidence of infection, things get harder for you to access good care. They shouldn’t, but they do. So since the “science writer” who penned this opinion 5/
didn’t lay it all out honestly in favor of publishing a bit of clickbait that hurts public health, next time you hear drivel like this, think about the 5 lanes of people and which lane you want to be in. Think about the fact that those minimizing COVID have been minimizing it 6/
since 2020 and have been consistently wrong since 2020. Magical thinking doesn’t make you safe and speaking realistically and quantitatively about risk stratification doesn’t make you a fearmonger. Writing junk like this DOES make you dangerous. Grow up, Clare.
/end
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A tumultuous 24-ish hours since our preprint was released yesterday. I mentioned that this was a fraught issue and I genuinely do understand that people have mixed feelings about the work. I wanted to take some time to respond to some of the concerns and comments that have 1/
arisen. First, and most importantly: #LongCOVID (LC) and post-vaccine syndrome (PVS) both exist. Anyone claiming that all LC or even *most* LC is actually PVS is unserious and is making up nonsense that is not supported by the consensus science. I cannot stress this strongly 2/
enough. While we're talking about Long COVID and its clear distinction from PVS, I'd like to remind people that my team was talking about persistent effects of acute COVID in April and May of 2020. By November of 2020, we pre-printed our first LC paper:
3/medrxiv.org/content/10.110…
Grateful to continue to be able to do great work with the amazing team at @YaleMed, led by @VirusesImmunity and @hmkyale. Today one of our preprints dropped on what is a fraught and divisive topic: vaccine injury or post-vaccine syndrome (PVS). Before
1/medrxiv.org/content/10.110…
we dig into the results, I want to state a few things very clearly about the team that conducted this work:
- We firmly believe in the value of vaccinations. However, we also believe that drugs will always have side-effects in a percentage of the population. Holding these two 2/
beliefs are not mutually exclusive and so important for honest and transparent discourse with the community.
- We have been studying PVS for many years and listening to the community since PVS cases started to emerge. This is a hard topic to study. People don't want to fund 3/
This is an amazing example of how certain things simply cannot be broken down to a magic pill or formula and I think this is a wonderful #scicomm learning opportunity.
Note the communication from @hubermanlab. 1) Makes a statement about how a key opinion leader says you can 1/
*dramatically* increase endurance and strength. 2) Makes the caveat (“start slow”). Simple, direct, informative. Right?
Ok, so what’s the secret?
- Once a week, jog a mile with a kettle bell that is equal to 30% of your own weight in a briefcase carry. Switch arms from time 2/
to time. Start slow.
As a performance guy, and in consensus with many of the other performance folks who have already commented: This is an insanely hard physical task to do. The average Joe off the street SHOULD NOT try this.
When challenged, the caveat was raised: “I said 3/
Honored to be a part of the work led by @polybioRF and @microbeminded2 published in @TheLancetInfDis discussing actionable strategies to adequately address SARS-CoV-2 persistence in #LongCovid. This paper covers discourse on how to look for and measure severity of persistence 1/
so that it can be used as an outcome measure in clinical trials, discussion about promising antiviral and monoclonal agents: what has the best chance of working and when combination therapies should be considered, the critical need for more sophisticated clinical trial designs 2/
such as adaptive platform trials and guidance on the recruitment of diverse populations into clinical trials: these drugs affect people with different hormonal profiles and different genetic profiles differently. To offer true precision medicine for pw LC, representation in 3/
Feels like a good time for a little reminder: Countries aren't supposed to be run like businesses. Countries are supposed to spend money to support and serve their people. This means spending to support those living below the poverty line, the disabled and historically 1/
excluded groups. This means investing in research that doesn't immediately have a profitable output so that future innovations can be incubated and accelerated through companies that form within the country that supported the work. This means engaging in international aid so 2/
that when terrorism and anti-freedom sentiments try to take hold in other countries, it is shut down because the country being organized against is viewed as an ally. Government spending is supposed to serve the people. There's nothing wrong with questioning it, but so far, it 3/
Wanted to check-in with these new @NIH changes that are going to affect so many. First let me remind everyone: I run 6 hybrid clinical/research centers, each with a specific clinical focus. Unlike the vast majority of my colleagues, federal funding sources account for less 1/
than 20% of my operational budget across all of these centers, so understand that my thoughts on this topic have nothing to do with self-preservation or any sort of self-serving agenda. First, sweeping change of this magnitude is going to cause great pain for thousands and 2/
thousands of Americans. Researchers, research staff, and administrators. This will cause layoffs, unemployment and for some, abandoning of scientific careers. To be clear, the people being affected by this aren’t going to be “lazy govt workers” or people “gaming the system”, 3/