Boo-trino Lab Profile picture
Sep 4, 2024 7 tweets 2 min read Read on X
Dangerous garbage being presented “science writing”. Two *actual* facts surrounding #COVID infection:
1. Your risk of #LongCOVID, a currently incurable chronic illness, after surviving an acute COVID infection currently sits conservatively at ~6-7%
2. Your risk of LC increases 1/
with each infection.

Now, in the face of this information, there are really five (or so) types of reactions:
1. Disbelief and denial
2. Being unaware or uninformed of the risk
3. Believing appropriate caution is necessary to avoid Long COVID
4. Believing it is worth the risk 2/
to yourself AND OTHERS to live your best pre-COVID life
5. Not having the financial freedom to not risk yourself and others by not taking precautions

Regardless of which of these 5 lanes you live in, won’t change the first two FACTS. So, as a person of questionable influence, 3/
let me remind you: #LongCOVID is life-changing and incurable. LongCOVID is caused by #COVID. We still have no way of predicting who will emerge unscathed from a COVID infection. The only way to avoid getting LongCOVID is to not get COVID. Let me also remind you that while 4/
@ClareWilsonMed ridicules people “putting sticks up their nose” if you should, god forbid, get #LongCOVID and you don’t have evidence of infection, things get harder for you to access good care. They shouldn’t, but they do. So since the “science writer” who penned this opinion 5/
didn’t lay it all out honestly in favor of publishing a bit of clickbait that hurts public health, next time you hear drivel like this, think about the 5 lanes of people and which lane you want to be in. Think about the fact that those minimizing COVID have been minimizing it 6/
since 2020 and have been consistently wrong since 2020. Magical thinking doesn’t make you safe and speaking realistically and quantitatively about risk stratification doesn’t make you a fearmonger. Writing junk like this DOES make you dangerous. Grow up, Clare.
/end

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More from @PutrinoLab

Oct 20
This paper was published last week about #COVID, #LongCOVID and its parallels. First, despite the provocative title, I urge people to read the paper the whole way through, rather than making assumptions about what you presume the paper will conclude.
1/ajpmfocus.org/article/S2773-…
The purpose of the paper is to answer a direct question: Is use of the term "Airborne AIDS":
a) justifiable
b) overly provocative and wrong, or
c) is the truth somewhere in between

The paper (IMO) does a good job of exploring the available literature that we have to answer
2/
this question. I wanted to focus my comments on this thread on some of the discourse that has emerged around this paper. The first is that it is valuable to learn from analogy and metaphor. Whether it is an entirely novel illness or a variant of an existing illness, creating
3/
Read 21 tweets
Oct 18
Great to see this published and out there. It's a simple paper that shows us that folks with #LongCOVID, #MECFS and other complex chronic illnesses can benefit from using symptom tracking apps like @visible_health, designed FOR patients, BY patients.


1/frontiersin.org/journals/digit…
Let's break down some of the findings:
- The survey was sent to 2636 active users on the Visible platform, and 1301 responded. This translates to a roughly 50% response rate, which is very high for app-based consumer surveys (average usually sits around 5-10%), which means
2/
the chance of non-response bias (the risk that there is a silent majority not answering your questions in the way that the responders are) will be much lower than most consumer surveys that are conducted.
- The breakdown of respondents:
- 42% #MECFS
- 31% #LongCOVID
3/
Read 12 tweets
Sep 27
A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who
1/
came from all walks of life, all ages, all levels of experience, expert academics and people with boots on the ground experience in helping communities and all came to the same conclusion: access to clean air is not just a priority, it is a fundamental human right. Violet also
2/
took the stage. Why was she there? As @MaxPemberton was so willing note: "...just 19. She's no doctor or scientist..."
No, she isn't but she is a member of a generation that has been fundamentally failed by the "adults", "doctors" and "scientists" that Pemberton seems to
3/
Read 21 tweets
Sep 15
Hi there, thanks for reaching out. Sorry to hear about your recent COVID infection. If you don't have pre-existing Long COVID, infection-associated chronic illness then there are some basic guidelines that exist to slowly ease your way back to exercise. First, and most
1/
unambiguously: do NOT rush back to exercise if you're sick or symptomatic at all. General guidelines for viral illnesses typically will encourage waiting at least 10 days from your initial infection-onset, PLUS at least 3 symptom-free days before resuming any exercise that
2/
you were previously comfortably routinely completing. You may read that some guidelines encourage following the so-called "neck rule": if you have symptoms BELOW the neck (e.g. chest pain, shortness of breath, resting tachycardia) then rest completely, but if you have symptoms
3/
Read 10 tweets
Sep 3
Happy to share some new #LongCOVID data that went to pre-print today. Before we begin breaking this down, one caveat: this work MUST be validated by a well-powered placebo-controlled randomized controlled trial before we can get too excited, but this is

1/researchsquare.com/article/rs-750…
an exciting first step and something that we hope will deepen our understanding of use of combination antivirals in the #LongCOVID community. A bit of background about how we got here: in early 2025 our team was part of a consortium that published a roadmap for targeting viral
2/
reservoir in pwLC. In this statement piece, we spoke about the need to be trialing not just monotherapies, but multi-drug combinations and for longer periods of time than just a few weeks. After publishing this work, we started to seek out docs that
3/thelancet.com/journals/lanin…
Read 17 tweets
Aug 25
I was asked to respond to this. Honestly I don't pay too much attention to this account because I prefer to spend energy on people and things that build community in #LongCOVID and IACI rather than curating divisiveness, but this shouldn't go without rebuttal so here we go.
1/
First up, as someone who works in innovation, I *love* unpopular opinions - that's where alternative points of view live that allow us to look at a problem in a different way. But IT IS disingenuous to dress up an *uninformed* or *misleading* opinion as "unpopular" - that's
2/
not honest. So let's dig in: Todd's opinion is that we've put too many resources into studies investigating viral persistence. In other tweets he has also claimed that it is a "disproportionate" amount of resources. Let's start by looking at evidence of viral persistence in LC 3/
Read 25 tweets

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