Dangerous garbage being presented “science writing”. Two *actual* facts surrounding #COVID infection: 1. Your risk of #LongCOVID, a currently incurable chronic illness, after surviving an acute COVID infection currently sits conservatively at ~6-7% 2. Your risk of LC increases 1/
Now, in the face of this information, there are really five (or so) types of reactions: 1. Disbelief and denial 2. Being unaware or uninformed of the risk 3. Believing appropriate caution is necessary to avoid Long COVID 4. Believing it is worth the risk 2/
to yourself AND OTHERS to live your best pre-COVID life 5. Not having the financial freedom to not risk yourself and others by not taking precautions
Regardless of which of these 5 lanes you live in, won’t change the first two FACTS. So, as a person of questionable influence, 3/
let me remind you: #LongCOVID is life-changing and incurable. LongCOVID is caused by #COVID. We still have no way of predicting who will emerge unscathed from a COVID infection. The only way to avoid getting LongCOVID is to not get COVID. Let me also remind you that while 4/
@ClareWilsonMed ridicules people “putting sticks up their nose” if you should, god forbid, get #LongCOVID and you don’t have evidence of infection, things get harder for you to access good care. They shouldn’t, but they do. So since the “science writer” who penned this opinion 5/
didn’t lay it all out honestly in favor of publishing a bit of clickbait that hurts public health, next time you hear drivel like this, think about the 5 lanes of people and which lane you want to be in. Think about the fact that those minimizing COVID have been minimizing it 6/
since 2020 and have been consistently wrong since 2020. Magical thinking doesn’t make you safe and speaking realistically and quantitatively about risk stratification doesn’t make you a fearmonger. Writing junk like this DOES make you dangerous. Grow up, Clare.
/end
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Wishing everyone a happy new year and we will be forging ahead in 2026 with renewed energy to find answers for people living with #LongCOVID, #MECFS, chronic #lyme and other infection-associated chronic conditions and illnesses. Speaking for myself, here are some questions I
1/
hope we can answer this year. Since it isn’t my first time on the internet let me explicitly state: there are other questions that we will be chasing equally aggressively, but these are the ones that I most want to answer to up-level my own understanding of the scientific and
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clinical problems that we face. 1) Why do some people test positive on certain persistence assays and negative on others? How can we use all of the commercially and scientifically available assays to create a unifying test for persistence that helps us to understand when and
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Respectfully @jonstewart, you were wrong on the @weeklyshowpod to mock people who mask. ICYMI: there are tens of millions of Americans who have been disabled by #LongCOVID and must do everything in their power to prevent further infections that make them vulnerable to further
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worsening of their symptoms. There are countless millions more who are immunocompromised or love someone who is and must therefore mask to protect themselves from a virus that continues to spread without mitigation due to its novel ability amongst viruses to persist in the
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body and drive immune dysregulation, hypercoagulation, oncogenic processes, nervous system dysfunction, cognitive decline and other terrible long-term effects. Furthermore, after hearing all the things that this virus drives, there are those of us who are perfectly healthy who
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This paper was published last week about #COVID, #LongCOVID and its parallels. First, despite the provocative title, I urge people to read the paper the whole way through, rather than making assumptions about what you presume the paper will conclude.
1/ajpmfocus.org/article/S2773-…
The purpose of the paper is to answer a direct question: Is use of the term "Airborne AIDS":
a) justifiable
b) overly provocative and wrong, or
c) is the truth somewhere in between
The paper (IMO) does a good job of exploring the available literature that we have to answer
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this question. I wanted to focus my comments on this thread on some of the discourse that has emerged around this paper. The first is that it is valuable to learn from analogy and metaphor. Whether it is an entirely novel illness or a variant of an existing illness, creating
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Great to see this published and out there. It's a simple paper that shows us that folks with #LongCOVID, #MECFS and other complex chronic illnesses can benefit from using symptom tracking apps like @visible_health, designed FOR patients, BY patients.
Let's break down some of the findings:
- The survey was sent to 2636 active users on the Visible platform, and 1301 responded. This translates to a roughly 50% response rate, which is very high for app-based consumer surveys (average usually sits around 5-10%), which means
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the chance of non-response bias (the risk that there is a silent majority not answering your questions in the way that the responders are) will be much lower than most consumer surveys that are conducted.
- The breakdown of respondents:
- 42% #MECFS
- 31% #LongCOVID
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A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who
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came from all walks of life, all ages, all levels of experience, expert academics and people with boots on the ground experience in helping communities and all came to the same conclusion: access to clean air is not just a priority, it is a fundamental human right. Violet also
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took the stage. Why was she there? As @MaxPemberton was so willing note: "...just 19. She's no doctor or scientist..."
No, she isn't but she is a member of a generation that has been fundamentally failed by the "adults", "doctors" and "scientists" that Pemberton seems to 3/
Hi there, thanks for reaching out. Sorry to hear about your recent COVID infection. If you don't have pre-existing Long COVID, infection-associated chronic illness then there are some basic guidelines that exist to slowly ease your way back to exercise. First, and most 1/
unambiguously: do NOT rush back to exercise if you're sick or symptomatic at all. General guidelines for viral illnesses typically will encourage waiting at least 10 days from your initial infection-onset, PLUS at least 3 symptom-free days before resuming any exercise that
2/
you were previously comfortably routinely completing. You may read that some guidelines encourage following the so-called "neck rule": if you have symptoms BELOW the neck (e.g. chest pain, shortness of breath, resting tachycardia) then rest completely, but if you have symptoms
3/