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Sam🐟❤🌈😷🌍🇵🇸

@CounsellingSam

Jul 29

@LucyGoBag Hi Lucy, I am finding your book really helpful. Especially the bit about the flooding.
I strongly feel that with the ongoing Covid Pandemic, we have been robbed of the ability to enter the Recovery phase of the Disaster.
We haven't been allowed to grieve. 1/

We have been overwritten.
The Covid Inquiry has declared the pandemic over.
There's no surveillance of the current Covid wave.
We are being continually gaslighted at the highest level, but all the trauma is real and getting worse! 2/

Most of all, there's no plan.
I imagine it would completely do your head in that there's no plan?
The new Labour government plans to force us back to work with no empathy or treatments for our condition. 3/

Read 12 tweets

Sam🐟❤🌈😷🌍🇵🇸

@CounsellingSam

Dec 6, 2023

#LongCovid has an incredibly severe and debilitating symptom: brain inflammation. A thread. Please read.
9 days ago, I went into Exeter on my own for the first time in a few years. By the time I got home, I was more ill than I usually am. A thread. 1/

Long Covid fatigue worsens brain inflammation. For the past 9 days, I've been increasingly unwell, making my brain inflammation worse. I am too ill to walk my dogs, currently. Poor dogs. I am struggling. Cooking dinner is a mammoth effort, as is tidying the house. 2/

In 2019, I was fit and healthy. In December 2023, I am completely broken. For most of today, I have given serious thought to killing myself. I am in so much pain of all kinds. Weirdly, still going about my day, doing the housework. 3/

Read 10 tweets

Sam🐟❤🌈😷🌍🇵🇸

@CounsellingSam

Nov 10, 2023

I want to talk about having a Date Night if you have #LongCovid a thread 1/

it was dinner and a movie, and both were great, however, I had to travel into Exeter on the bus.
I cannot describe the pain in my spine from sitting on a rickety bus for an hour. 2/

and then my wife's acute discomfort and visible wincing at greeting me off the bus with me wearing an FFP3.
for so many people, I think masks remind people of the Bad Old Days 3/

Read 8 tweets

Sam🐟❤🌈😷🌍🇵🇸

@CounsellingSam

Sep 11, 2023

Hi. My name is Sam. I am 50. I have had Long Covid since March 15th 2020. The Ides Of March. I am autistic, and I have POTS. I am a person of colour, who has experienced a lifetime of discrimination. My life is actually pretty bleak. 1/

Sometimes, people ask me why I am critical towards those scientists, doctors and experts who USED to say useful things about Covid and Long Covid but no longer do. A thread.
A little theory. Every time there is any kind of revolution, there is a counter-revolution. 2/

A re-establishment of the status quo.
An example: after George Floyd died, Black Lives Matter was supersexy for a hot minute, and then most people went back to their lives. 3/

Read 19 tweets

Sam🐟❤🌈😷🌍🇵🇸

@CounsellingSam

Sep 9, 2023

Hi, my name is Sam. I am 50. I have been disabled with Long Covid for 3 and a half years. I am also autistic and I have POTS. My life is fucked. I don't talk about Long Covid for me because my life is fucked. I do it for all of You, so you don't end up like me. 1/

But not enough of you are listening.
And I am too cowardly to set myself in fire, so I try to amplify my message by reaching out to others.
Too many of you have swallowed the Post-Covid Lie. That it's all over.
That's total bollocks. I don't want 5 or 10 million people with LC 2/

What I need is the @doctor_oxford and the @xandvt and the @danielgoyal of this world to shout about it 3/

Read 17 tweets

Sam🐟❤🌈😷🌍🇵🇸

@CounsellingSam

Aug 25, 2023

#LongCovid #DisabilityTwitter
Okay, So I want to do a thread about Brain Fog in Long Covid to try to get across to the able-bodied, what it is actually like to experience. Firstly, the phrase, it does not work for me. Brain Fucked feels more appropriate.
1/

I know others embrace the phrase, and find it useful. I do not. What I would love is for this to be a community thread, with others adding their feelings to it, and they don't have to have Long Covid to do so. 2/

My Mission is this: Long Covid is a largely Invisible Disability. We get told we LOOK FINE, and that's enough for people to assume we are fine. My Disability for me is all about the world being LESS ACCESSIBLE, and I want people to understand that on some level 3/

Read 25 tweets

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