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Sam Disabled Man #CareNotCuts Profile picture
@CounsellingSam
Oct 16, 2024 • 1 tweets • 1 min read • Read on X
Please check out this amazing #LongCovid video, featuring Northern Ireland's own @baldypidge and his daughter Rosie ❤️

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More from @CounsellingSam

Sam Disabled Man #CareNotCuts Profile picture
Dec 27, 2024
Hey, #LongCovid community, it's time to tell you a story about Death: my death.
In lots of measurable ways, I died on March 15th 2020: The Ides Of March.
My life since then actually makes more sense as a posthumous fantasy. 1/
Has anyone seen The Sixth Sense, with Bruce Willis in it?
At the beginning of the film, Bruce has a brush with death when he gets stabbed by Donnie Wahlburg.
You then get to see a series of strained scenes between Bruce and his wife, played by Olivia Williams. 2/
In the film, Bruce's wife never seems to understand what Bruce is going through.
Does this seem FAMILIAR to anyone?
How else to explain my wife's anger and grief when attending a family party?
It's not really because I'm wearing a mask, is it?
It's because the Party reminds her of her loss, am I right? 3/
Read 17 tweets
Sam Disabled Man #CareNotCuts Profile picture
Dec 7, 2024
I think that Long Covid is a lot more common than people are prepared to admit.
Here are some of my most common symptoms. Do these ring a bell with you?
1. Breathlessness
2. Tinnitus
3. Crushing fatigue after minimum effort.
4. Racing heart rate
5. A feeling of being poisoned.
6. Terrible joint pains.
7. Muscle spasms.
7. Feeling confused and constantly forgetting things.
8. Feeling as if you have dementia, especially after exertion.
9. Feeling hot when it's cold and cold when it's hot.
10. Extreme Clumsiness.
11. Forgetting other #LongCovid symptoms.
There must be many thousands of undiagnosed Long Covid sufferers out there in need of support, care, and empathy.
If you identify with these symptoms, you may have #LongCovid.
Don't suffer in silence.
There are fantastic charities and doctors here to help.
@LCAIreland @LCawarenessInt @LCNMUK @LongCovidAdvoc @LCKScotland @long_covid @LongCovidKids @LongCOVIDPhysio @LongCovidSOS All these groups are populated with #LongCovid survivors.
@Sunny_Rae1 @drclairetaylor @elisaperego78 @BinitaKane @SGriffin_Lab @dgurdasani1 @DavidJoffe64 and others are very generous with their time and expertise.
I think that Long Covid is a lot more common than people are prepared to admit.
Here are some of my most common symptoms. Do these ring a bell with you?
1. Breathlessness
2. Tinnitus
3. Crushing fatigue after minimum effort.
4. Racing heart rate
5. A feeling of being poisoned.
6. Terrible joint pains.
7. Muscle spasms.
7. Feeling confused and constantly forgetting things.
8. Feeling as if you have dementia, especially after exertion.
9. Feeling hot when it's cold and cold when it's hot.
10. Extreme Clumsiness.
11. Constant cough.
12. Permanent headache.
Read 6 tweets
Sam Disabled Man #CareNotCuts Profile picture
Jul 29, 2024
@LucyGoBag Hi Lucy, I am finding your book really helpful. Especially the bit about the flooding.
I strongly feel that with the ongoing Covid Pandemic, we have been robbed of the ability to enter the Recovery phase of the Disaster.
We haven't been allowed to grieve. 1/
We have been overwritten.
The Covid Inquiry has declared the pandemic over.
There's no surveillance of the current Covid wave.
We are being continually gaslighted at the highest level, but all the trauma is real and getting worse! 2/
Most of all, there's no plan.
I imagine it would completely do your head in that there's no plan?
The new Labour government plans to force us back to work with no empathy or treatments for our condition. 3/
Read 12 tweets
Sam Disabled Man #CareNotCuts Profile picture
Dec 6, 2023
#LongCovid has an incredibly severe and debilitating symptom: brain inflammation. A thread. Please read.
9 days ago, I went into Exeter on my own for the first time in a few years. By the time I got home, I was more ill than I usually am. A thread. 1/ Image
Long Covid fatigue worsens brain inflammation. For the past 9 days, I've been increasingly unwell, making my brain inflammation worse. I am too ill to walk my dogs, currently. Poor dogs. I am struggling. Cooking dinner is a mammoth effort, as is tidying the house. 2/
In 2019, I was fit and healthy. In December 2023, I am completely broken. For most of today, I have given serious thought to killing myself. I am in so much pain of all kinds. Weirdly, still going about my day, doing the housework. 3/
Read 10 tweets
Sam Disabled Man #CareNotCuts Profile picture
Nov 10, 2023
I want to talk about having a Date Night if you have #LongCovid a thread 1/
it was dinner and a movie, and both were great, however, I had to travel into Exeter on the bus.
I cannot describe the pain in my spine from sitting on a rickety bus for an hour. 2/
and then my wife's acute discomfort and visible wincing at greeting me off the bus with me wearing an FFP3.
for so many people, I think masks remind people of the Bad Old Days 3/
Read 8 tweets
Sam Disabled Man #CareNotCuts Profile picture
Sep 11, 2023
Hi. My name is Sam. I am 50. I have had Long Covid since March 15th 2020. The Ides Of March. I am autistic, and I have POTS. I am a person of colour, who has experienced a lifetime of discrimination. My life is actually pretty bleak. 1/
Sometimes, people ask me why I am critical towards those scientists, doctors and experts who USED to say useful things about Covid and Long Covid but no longer do. A thread.
A little theory. Every time there is any kind of revolution, there is a counter-revolution. 2/
A re-establishment of the status quo.
An example: after George Floyd died, Black Lives Matter was supersexy for a hot minute, and then most people went back to their lives. 3/
Read 19 tweets

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