I've seen literally dozens of doctors for my long COVID symptoms. Most of them in California. In this thread, I'm going to list a few that I recommend. Hopefully, this is helpful for anyone struggling. Unfortunately, most of these folks do not take insurance, but you may be able to get reimbursed.
I'm not going to include links because of the algorithm. if you're reading this, I assume you're intelligent enough to find these folks.
First, Jo Marie Munnich who I think is sort of a good starter doctor. She's reasonably priced, is very nice and extremely supportive. She's not into the more esoteric or riskier treatments, but if you're looking for the sort of first line treatments (e.g. LDN) this is where I'd start.
Second, a naturopath, Stephen Meeneghan at Golden State Integrative Health. Before this, I thought naturopaths were a scam, but he actually helped me with my sense of smell and some other things. He's into gut health and hormones and other things.
Third, Dr Jim Lysander in Beverly Hills. He charges an arm and a leg, and specializes in mold exposure, but I was extremely impressed with his knowledge of different treatments and ideas, especially around treating MCAS.
Fourth, @zarapatel_md who has an extremely long wait-list but helped me with my sense of smell and always wore a mask.
@zarapatel_md Fifth, Sara Herman in Menlo Park. Her business is mostly ketamine, but she does SGB and a lot of IV things you might want.
Sixth, the psychiatrist Tyler Prestwood at Stanford. He doesn't agree with all of my ideas, but he's been open to most of them.
Lastly, Denise Hilliard in the East Bay. Wasn't a great experience honestly, but she can prescribe the Patterson Protocol if you have his blood tests.
If you thought this thread was helpful, I have something bigger in mind. More to come.
Notice I didn't list any long covid clinics here. It's not because I didn't try them. They just aren't very helpful. In the best case scenario, you'll sit on a wait list for 9 months and get an LDN script if you're lucky. Don't waste your time.
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Few people take COVID seriously anymore. Part of this may be from experience - people got COVID a couple times, recovered, and think they're fine - but a lot can be blamed on the media. Here are some tactics the media continues to use to downplay COVID and mislead the public:
Referring to it in the past tense. Most headlines will use the word "during" when referring to COVID, such as "during the pandemic".
Some will be even bolder, and explicitly declare that we are living in a "post-pandemic" world.
1 in 37 Americans have COVID. This means that there are ~300K ppl who have COVID right now that will develop long COVID, just as I did. This is what it's like to get long COVID as a healthy young person, and what treatments are available when you have $$ and great insurance:
I was diagnosed with long COVID shortly after my third COVID infection in early 2023. This is despite getting all the vaccines and all the boosters, and despite taking paxlovid. I was 33 years old, with no major health problems. Only time I saw a doctor was at my annual physical
I worked out 5-6x/wk, sometimes 2x/day. I had a personal trainer at Equinox. The day I found out I had COVID for the 3rd time, I had booked a hot yoga class for that night. I had to call and cancel, "sorry I have COVID," I said. I didn't know it would probably be the last time I ever booked a hot yoga class
COVID is surging again. If you're infected, you may develop long COVID, even if you're young and healthy, have had COVID before, or were vaccinated. This will come as a surprise to people, mostly because of a consistent campaign to downplay and discredit this disabling illness:
This article from the New York Post blatantly and falsely declared that long COVID is "fake". Anyone who believes this dangerous lie might find themselves surprised when their next COVID infection disables them.
This WSJ editorial declared that long COVID is "exaggerated" and "nothing to worry about". It's certainly something to worry about for the estimated 4 million Americans who are out of work because of long COVID.
Catching COVID is extremely risky, even if you've been vaccinated. A new study puts the odds of developing long COVID, a major disease that can disable you for months, years, or the rest of your life, at 3.5% following infection. Compare that to some other "risky" activities:
Base jumping, considered to be among the riskiest sports in the world, has a non-fatal accident rate of 0.4%. That makes catching covid as a vaccinated person about 9X riskier than base jumping.
Surfing is rarely fatal, but injuries are common. For every surf, the odds of sustaining some sort of injury are 0.66%.
The reason why I continue to post about COVID and long COVID is because I've seen it cause so much devastation in the lives of my family and friends. I sometimes wonder, am I just particularly unlucky? Or are most people in denial? Examples:
My brother might have died from COVID. He died of pneumonia back in February 2020. No one was testing back then. And a few people who went to the funeral had COVID around that time.
Later that year, my aunt contracted COVID, and died of a heart attack 6 months later. She was in her 50s.
The 1918 flu is called the "Spanish flu" because in most places, the media censored it. Except Spain, where they reported honestly. This isn't a conspiracy theory - it's a historical fact. And I think it is occurring right now again with COVID:
This article in The New Republic - "How America’s Newspapers Covered Up a Pandemic" - provides an overview of what happened in 1918. In short, the media either avoided talking about the flu altogether, or they blamed something else for the damage the flu was causing.
"the big-city newspapers...sugarcoated the truth, practicing an alarming level of self-censorship. Any article or headline suggesting more than casual concern about the disease would be open to attack"