Clinically Vulnerable Families 💙💜💗 Profile picture
Nov 16 17 tweets 5 min read Read on X
Who will get a Covid booster in 2025? Far fewer than before...

The JCVI decision means that Clinically Vulnerable people u70 and who aren't immunosuppressed lose access.

“Cost-effectiveness” prioritised over protection.

NEW CONCERNING STUDY 👇

1/🧵 Adult eligibility  Adult eligibility should be based on the willingness-to-pay approach that is subject to procurement and delivery at a cost-effective price. The advice for universal vaccination from age 75 years is an example. JCVI has no role in the procurement or delivery of COVID-19 vaccines or any other vaccine.
Until now, Covid vaccine policy prioritised protecting 'at risk' groups.

Their approach focuses on “cost-effectiveness,” raising age thresholds. Not providing vaccine protection to younger Clinically Vulnerable. It’s a deeply worrying change.

This data may have been used.
2/ Fig. 3: Using data from the spring and autumn 2023 boosters and the 2023/24 winter wave of COVID-19, vaccine threshold prices stratified by age-group, risk-group and modelling approach.  We calculate the vaccine threshold price for the two time periods (top row: winter 2023/24; bottom row: spring 2023), 16 age groups (y-axis), three risk groups (panels) and five methodologies (red, dark-blue, light-blue, grey and black). Dots show the most likely value assuming £20,000 per QALY; when assuming £30,000 per QALY the extended bar-and-whisker plots show the 95%, 80% and 50% credible intervals co...
Younger Clinically Vulnerable people e.g. those with chronic heart failure, COPD, or diabetes could be excluded.

The study admits data for our group is limited, meaning the most at-risk could fall through the cracks.

*It is unclear if the study was used in decision-making.*

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The disparity is clear:

The willingness to pay for Covid boosters varies from under £1-£4 for healthy people under 70, but between £2-£30 for vulnerable people in the same age group.

Worse, this approach ignores the economic disparities within the at-risk group itself.

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Shifting vaccine decisions to economic models, which consider the ability and willingness to pay, rather than public health goals will deepen existing health inequalities for Clinically Vulnerable groups.

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Vaccines reduce transmission, protect the NHS, protect health and save lives.

Narrow economic criteria ignoring these benefits, risk putting everyone at greater risk.

6/
The focus on age-based thresholds ignores the reality for younger vulnerable groups.

So 30-year-old in heart failure could face far higher risks than a healthy 70-year-old, yet this new policy would exclude them from protection.

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Data gaps may also make this worse. The study struggles to distinguish between hospitalisations “for COVID” and “with COVID.”

It dilutes the data for Clinically Vulnerable people and leads to an over estimation of willingness, making it harder to justify protections we need.

8/ Findings: Willingness to pay thresholds vary from less than £1 for younger age-groups without any risk factors, to over £100 for older age-groups with comorbidities that place them at risk. This extreme non-linear dependence on age, means that despite the different method of estimating vaccine efficacy, there is considerable qualitative agreement on the willingness to pay threshold, and therefore which ages it is cost-effective to vaccinate. For pre-purchased vaccine, where the only cost is administration (~£10), a twice-yearly universal booster offer to all those aged 70 and over is cost-e...
New variants are unpredictable.

A variant with higher severity or greater immune escape would hit vulnerable groups like us hardest.

The policy assumes risks will stay static - but we know from experience how quickly things can change...

9/
This shift also ignores public health equity. Prioritising “cost-effectiveness” over vulnerability sends a chilling message:

That our lives are less valuable because protecting us isn’t deemed “efficient.”

10/
Public involvement is mentioned in the study - only *after* models were developed. Involving Clinically Vulnerable groups from the outset would create policies that reflect real needs and risks.

There is an urgent need for direct inclusion in "Equality Impact Assessments".

11/
Policymakers must:

1. Reverse this dangerous shift towards economic thresholds.
2. Collect better data on Clinically Vulnerable groups.
3. Centre equity and vulnerability in vaccine decisions, not just cost.

12/
Denying vaccines to the Clinically Vulnerable, based on what may well be flawed data and economic models, is not just bad policy - it is morally wrong.

We need protection, inclusion, and fairness!

13/
The full study is available here:

"Cost-effectiveness of routine COVID-19 adult vaccination programmes in England"

14/
medrxiv.org/content/10.110…
If you missed the JCVI advice you can find it here:

15/
gov.uk/government/pub…
We are deeply concerned about the impact of these changes on Clinically Vulnerable people.

If you share our concerns, please contact your MP and ask them to ensure equitable access to Covid vaccines for all who need them. 🙏

16/
parliament.uk/get-involved/c…
@_CatintheHat Huge proportions of Clinically Vulnerable households have lost work or retired early due to high Covid risks. Image

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More from @cv_cev

Nov 10
🚨COVID INQUIRY ROUND UP (Wk 7)

Rosemary Gallagher MBE (Professional Lead for Infection Prevention and Control at the Royal College of Nursing) supported non-IP specialists e.g. aerosols experts "shaping guidance".

1/
"If Covid-19 was, in fact, airborne [.] it had implications for infection prevention and control guidance [.]"

"What was the NHS estate going to do to make it safe?"

"Improving the ventilation or looking at other technologies [.]."
2/
Next, possibly the best quote from Baroness Hallett this week:

3/
Read 10 tweets
Nov 6
Questioning Jenny Harries is "like pinning jelly to a wall", according to one CVF💙💜💗 member!

Thanks @AdamWagner1 for trying!
🧱🍮🔨

"People should be enabled to wear what they wish, as long as it's safe."
"FRSMs recommended because of issues of handling and fit-testing."
1/
Would you agree that FFP3 masks, if fit-tested, mean that the Clinically Vulnerable patient *is* safer, they don't just "feel safer"[.]?

🔨 'Hierarchy of controls'
🍮 Don't want to tell people - no harm
🧱 Difference feeling safe and effective PPE. Equally support FRSM

2/
"The evidence of effectiveness between FFP3s and FRSMs in clinical use is very, very small."

3/
Read 6 tweets
Oct 29
♻️ RETWEET if you think that Clinically Vulnerable people (those at the most risk from Covid) were economically impacted by the pandemic. ♻️

The @covidinquiryuk rejected us for this module, leaving us with * NO VOICE * !!!!

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Clinically Vulnerable (CV) people and their families faced, and in many cases continue to face, enormous economic strain.

For many, shielding was the only safe option, but it came with serious costs—lost jobs, reduced hours, and in many cases, the inability to work at all.

2/ 82%  of Clinically Vulnerable households lost work or retired early due to high Covid risks  [Poll of 364 Clinically Vulnerable people March 2024]  Clinically Vulnerable Families
Without protections, CV people and their families couldn’t simply return to “business as usual” as measures lifted.

Many continued shielding, at their own expense, as they were unable to risk exposure. For some, this meant months / even years out of the workforce.

3/ #CVVoices
Read 9 tweets
Oct 8
💥Clinically Vulnerable Families 💥

Quite a moment as Dr Catherine Finnis take the stand as volunteer deputy leader of CVF.

1/ FOLLOW THIS THREAD Dr Catherine Finnis swears in
A brief introduction to CVF

We were founded due to the risks in schools, but the inquiry is focused on the risks in healthcare in this module.

2/
One of the benefits of the shielding programme:

"was that you had a passport through that shielding letter to enable you to work from home."

3/
Read 34 tweets
Oct 6
🚨COVID INQUIRY ROUND UP (Wk 4)
Due to sickness, this week of evidence ended early.

CMO 🏴󠁧󠁢󠁷󠁬󠁳󠁿
Impact witnesses:
Ambulance, GPs, Intensive Care
Former medical director of WHSCT
National Ambulance Adviser NHS England
Intensive Care Experts and witnesses

1/
🏴󠁧󠁢󠁷󠁬󠁳󠁿 The Welsh CMO, Sir Frank Atherton, spoke about "broadly accepting" advice from the now highly contentious 'IPC cell' led by Dr Lisa Ritchie.

2/
The term "precautionary principle" has now been redefined within the inquiry multiple times to suit different people's purposes.

This is CMO 🏴󠁧󠁢󠁷󠁬󠁳󠁿's interpretation.

3/
Read 11 tweets
Sep 29
🚨COVID INQUIRY ROUND UP (Wk 3)
⚠️This week was bookended with heavy testimony.

We heard from:
Expert GP Prof Edwards
College of Paramedics, Tracy Nicholls
Dr Mulholland
CMOs ☘️ 🏴󠁧󠁢󠁳󠁣󠁴󠁿 🏴󠁧󠁢󠁥󠁮󠁧󠁿
and Prof Kevin Fong

🚫 Shielding expert Prof Snooks

For more ⬇️
1/
Please click through to read subthreads if you missed them. 🙏

Prof @adriangkedwards

2/
⚠️ Hard hitting evidence shared by @tracyniks OBE. The forgotten frontline of paramedics, who were woefully underprotected.

3/
Read 14 tweets

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