When people talk about the devastation from COVID, they usually cite the number of people who died (7 million, 20 million, 30 million) or the economic cost ($14 trillion, $35 trillion, etc) but this pales in comparison to the true cost, something most people do not understand or talk about:
About 1 in 4 American adults have developed some type of long term health issues from their COVID infections. Data is limited, but it seems reasonable to assume this ratio is similar in other countries.
It was once widely believed that children weren't nearly as affected, but recent research has shown that's sadly not the case, with a similar share of kids and teenagers having long lasting health problems from their COVID infections
What's worse, there doesn't seem to be any reliable way to protect yourself from this besides avoiding infection. Vaccination has only a limited impact, and lifestyle is almost irrelevant: Even 18 year old US marines in peak physical condition developed long lasting health problems at a similar rate
In its mildest form, this might mean fatigue that lasts a few months. In the most extreme form, you might find yourself completely bed-bound, unable to work or care for yourself for months or years.
And no one - literally no one - understands what this is or how to fix it. There is no doctor, no scientist, no medical authority on the entire planet that can explain what's causing this or how to fix it, except to say that catching COVID is very bad.
No one knows if this is one disease state, or hundreds. If certain people are susceptible because of genetics, or environment, or if it's truly random. There are some hypotheses and some interesting findings, but nothing that even approaches a consensus.
And for that reason, no one knows what will happen to these people. We do know that these people are very likely to get reinfected with COVID, probably dozens more times over the rest of their lives. This may make their health issues worse, perhaps significantly so
What I find most disturbing about this is that the interest in figuring out the answers to these questions is almost non-existent. Funding for it is a mere pittance. Earlier this year, the NIH committed a mere ~$500M to research it:
That might sound like a lot, but for comparison, the NIH commits over 5X as much annually to HIV research. I'm not arguing to reduce the HIV research budget, but the percentage of Americans with HIV is well less than 1%. HIV is much better understood - we know how to avoid it and how to treat it
There's a bill floating around Congress that would bump the amount dedicated to research up to a modest $1 billion a year. So far, it's gotten commitment only from Democrats, most of whom would be described as far left. With the recent election, who knows if it even stands a chance of passing.
And this is for a disease that, again, affects about a quarter of the public, that no one understands, and that is not going away. It's hard to describe the disconnect between leadership and reality as anything other than bizarre.
• • •
Missing some Tweet in this thread? You can try to
force a refresh
If you're someone who thought COVID was over and the vaccine saved the day, then the appointment of RFK Jr might come as a surprise or a shock to you. But it's what I expected - I've said for a long time I've assumed the COVID vaccines will eventually be banned in some areas.
This is because COVID is not over. It's given about a quarter of the population a new chronic health condition, and with every reinfection, it gets a little worse. People know their own bodies, and understand that their health is in decline.
But most of them don't know why. Largely because the government and the media has sold a story that COVID is over - that as long as you're vaccinated, you have nothing to worry about. To sell this lie, they have created an increasingly complex web of propaganda
People want it *so badly* but sorry, it's just not. Literally the only way you can think that is if you just don't look at the data. Which most people don't. Because they don't want to.
I've given up on other people masking. It would be nice if they did, but it's hard to see it happening at this point, at least until they're personally affected by long COVID, and even then, maybe not.
I've seen literally dozens of doctors for my long COVID symptoms. Most of them in California. In this thread, I'm going to list a few that I recommend. Hopefully, this is helpful for anyone struggling. Unfortunately, most of these folks do not take insurance, but you may be able to get reimbursed.
I'm not going to include links because of the algorithm. if you're reading this, I assume you're intelligent enough to find these folks.
First, Jo Marie Munnich who I think is sort of a good starter doctor. She's reasonably priced, is very nice and extremely supportive. She's not into the more esoteric or riskier treatments, but if you're looking for the sort of first line treatments (e.g. LDN) this is where I'd start.
Few people take COVID seriously anymore. Part of this may be from experience - people got COVID a couple times, recovered, and think they're fine - but a lot can be blamed on the media. Here are some tactics the media continues to use to downplay COVID and mislead the public:
Referring to it in the past tense. Most headlines will use the word "during" when referring to COVID, such as "during the pandemic".
Some will be even bolder, and explicitly declare that we are living in a "post-pandemic" world.
1 in 37 Americans have COVID. This means that there are ~300K ppl who have COVID right now that will develop long COVID, just as I did. This is what it's like to get long COVID as a healthy young person, and what treatments are available when you have $$ and great insurance:
I was diagnosed with long COVID shortly after my third COVID infection in early 2023. This is despite getting all the vaccines and all the boosters, and despite taking paxlovid. I was 33 years old, with no major health problems. Only time I saw a doctor was at my annual physical
I worked out 5-6x/wk, sometimes 2x/day. I had a personal trainer at Equinox. The day I found out I had COVID for the 3rd time, I had booked a hot yoga class for that night. I had to call and cancel, "sorry I have COVID," I said. I didn't know it would probably be the last time I ever booked a hot yoga class
COVID is surging again. If you're infected, you may develop long COVID, even if you're young and healthy, have had COVID before, or were vaccinated. This will come as a surprise to people, mostly because of a consistent campaign to downplay and discredit this disabling illness:
This article from the New York Post blatantly and falsely declared that long COVID is "fake". Anyone who believes this dangerous lie might find themselves surprised when their next COVID infection disables them.
This WSJ editorial declared that long COVID is "exaggerated" and "nothing to worry about". It's certainly something to worry about for the estimated 4 million Americans who are out of work because of long COVID.