Salvatore Mattera Profile picture
Nov 17, 2024 15 tweets 4 min read Read on X
When people talk about the devastation from COVID, they usually cite the number of people who died (7 million, 20 million, 30 million) or the economic cost ($14 trillion, $35 trillion, etc) but this pales in comparison to the true cost, something most people do not understand or talk about:
About 1 in 4 American adults have developed some type of long term health issues from their COVID infections. Data is limited, but it seems reasonable to assume this ratio is similar in other countries. Image
It was once widely believed that children weren't nearly as affected, but recent research has shown that's sadly not the case, with a similar share of kids and teenagers having long lasting health problems from their COVID infections Image
What's worse, there doesn't seem to be any reliable way to protect yourself from this besides avoiding infection. Vaccination has only a limited impact, and lifestyle is almost irrelevant: Even 18 year old US marines in peak physical condition developed long lasting health problems at a similar rateImage
In its mildest form, this might mean fatigue that lasts a few months. In the most extreme form, you might find yourself completely bed-bound, unable to work or care for yourself for months or years.
And no one - literally no one - understands what this is or how to fix it. There is no doctor, no scientist, no medical authority on the entire planet that can explain what's causing this or how to fix it, except to say that catching COVID is very bad.
No one knows if this is one disease state, or hundreds. If certain people are susceptible because of genetics, or environment, or if it's truly random. There are some hypotheses and some interesting findings, but nothing that even approaches a consensus.
And for that reason, no one knows what will happen to these people. We do know that these people are very likely to get reinfected with COVID, probably dozens more times over the rest of their lives. This may make their health issues worse, perhaps significantly so
What I find most disturbing about this is that the interest in figuring out the answers to these questions is almost non-existent. Funding for it is a mere pittance. Earlier this year, the NIH committed a mere ~$500M to research it: Image
That might sound like a lot, but for comparison, the NIH commits over 5X as much annually to HIV research. I'm not arguing to reduce the HIV research budget, but the percentage of Americans with HIV is well less than 1%. HIV is much better understood - we know how to avoid it and how to treat itImage
There's a bill floating around Congress that would bump the amount dedicated to research up to a modest $1 billion a year. So far, it's gotten commitment only from Democrats, most of whom would be described as far left. With the recent election, who knows if it even stands a chance of passing.
And this is for a disease that, again, affects about a quarter of the public, that no one understands, and that is not going away. It's hard to describe the disconnect between leadership and reality as anything other than bizarre.
Given that we know that at least a quarter of people are susceptible, and that everyone is on track for infinite COVID reinfections, and that every reinfection may make these people worse, it's entirely plausible that we may soon be living in a world where a large chunk of the population is significantly disabled
This might not be likely, but again, no one can really say with any real authority what the odds are one way or the other. And if it does happen, it would be one of the worst health disasters in human history. And yet...there's just nothing from any of our leaders anywhere
#MAHA

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More from @SalvMattera

Sep 10
Long COVID shares similarities with other chronic illnesses, and other post-viral syndromes, but on a society-wide basis it's more devastating because of how much more common it is:
I have a fairly large family and have known many friends, classmates, coworkers etc over the course of my life. Before COVID, I knew of exactly one person with Chronic Lyme, one person with fibromyalgia, and literally no one with ME/CFS, CIRS, GWI, etc.
But I now know about a dozen family members, friends, and coworkers that have or had some version of Long COVID. All people I knew for years before 2020. And I seem to hear of someone in my extended circle developing it at least every few months
Read 11 tweets
Aug 4
Well, it's been about 4 months now since I've consistently felt 90-95% recovered from Long COVID.

A lot of people talk about what helped them recover, but here's some things that DIDN'T help me recover:
Reducing stress - the last 4 months have included some of the most stressful days of my life.

Back in May my wife suffered from 4 strokes. The surgeon woke me up in the middle of the night to tell me that she was about to die, and that they needed to do emergency brain surgery.
I spent the next few hours alone, completely stressed and terrified, wondering what I was going to say to my daughter if my wife died.

Turns out this had no effect on my recovery.
Read 20 tweets
Jul 29
The evidence for Long COVID is simply overwhelming. There are now thousands of studies, validated biomarkers, reports and surveys from millions of people from virtually every country going back since the pandemic began. And yet, still widespread denial and gaslighting - why?
It's because the reality of the situation is far too horrible for most people to seriously contemplate. The best evidence says somewhere between 1 and 10 and 1 in 3 people suffer from Long COVID symptoms, at least in some form, including children.
These symptoms can and often are, completely disabling. While I often write about my own attempts at treatment, there are no formally approved treatments - there is no way to even reliably treat the symptoms.
Read 22 tweets
Jul 16
I went to the Stanford Chronic Fatigue Syndrome Clinic today. If you're in California, and you have Long COVID, and you're unable or unwilling to pay for a private doctor, it's probably your best option for finding treatment:
My expectations going in were low based on some of the reviews people left on the helpforlongcovid website, but I was pleasantly surprised. They prescribe several treatments, order blood work, and were willing to work with me to try to get other treatments I'm curious about
I would contrast this with Long COVID clinics I've been to, including Stanford, which only offers a couple treatments, doesn't really care about blood work, and the appointments basically consist of a long interview with not much offered, as if they are just collecting data
Read 18 tweets
Jul 15
I continue to remain 90-95% recovered from my Long COVID. But what did I recover from? I went back through my symptom journals, and here's a list of all the Long COVID symptoms I had at one point then recovered from:
Heart palpitations. Sometimes they would last literally all day, like 16 hours. And occur in different parts of my body (legs, neck). It really used to freak me out, to the point where I wouldn't even tell my doctors how bad it was.
Numbness, tinging and odd sensations in my hands and feet. Sometimes specific fingers would go numb for hours. With my feet, I'd feel like someone was touching them with their fingers, or if I had stepped on a bug.
Read 24 tweets
Jul 13
I don't have much sympathy for people who complain about the COVID lockdowns because my lockdown experience was worse than 90% of the people in this country. And yet, I would gladly relive the COVID lockdowns 10 times before I would live one year of being sick with Long COVID:
At the time, I lived in Seattle, which was one of the most locked-down and later lawless cities in the country. It's interesting to me that so many people don't remember this, but there was this thing called the CHAZ where protestors basically took over a few blocks of the city
My apartment was nearby, and so I was surrounded by constant civil unrest. Throughout the summer, there were roving street protests around my building: Cars were burned in front of my apartment. One time, police shot a canister of tear gas into the lobby
Read 20 tweets

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