When people talk about the devastation from COVID, they usually cite the number of people who died (7 million, 20 million, 30 million) or the economic cost ($14 trillion, $35 trillion, etc) but this pales in comparison to the true cost, something most people do not understand or talk about:
About 1 in 4 American adults have developed some type of long term health issues from their COVID infections. Data is limited, but it seems reasonable to assume this ratio is similar in other countries.
It was once widely believed that children weren't nearly as affected, but recent research has shown that's sadly not the case, with a similar share of kids and teenagers having long lasting health problems from their COVID infections
What's worse, there doesn't seem to be any reliable way to protect yourself from this besides avoiding infection. Vaccination has only a limited impact, and lifestyle is almost irrelevant: Even 18 year old US marines in peak physical condition developed long lasting health problems at a similar rate
In its mildest form, this might mean fatigue that lasts a few months. In the most extreme form, you might find yourself completely bed-bound, unable to work or care for yourself for months or years.
And no one - literally no one - understands what this is or how to fix it. There is no doctor, no scientist, no medical authority on the entire planet that can explain what's causing this or how to fix it, except to say that catching COVID is very bad.
No one knows if this is one disease state, or hundreds. If certain people are susceptible because of genetics, or environment, or if it's truly random. There are some hypotheses and some interesting findings, but nothing that even approaches a consensus.
And for that reason, no one knows what will happen to these people. We do know that these people are very likely to get reinfected with COVID, probably dozens more times over the rest of their lives. This may make their health issues worse, perhaps significantly so
What I find most disturbing about this is that the interest in figuring out the answers to these questions is almost non-existent. Funding for it is a mere pittance. Earlier this year, the NIH committed a mere ~$500M to research it:
That might sound like a lot, but for comparison, the NIH commits over 5X as much annually to HIV research. I'm not arguing to reduce the HIV research budget, but the percentage of Americans with HIV is well less than 1%. HIV is much better understood - we know how to avoid it and how to treat it
There's a bill floating around Congress that would bump the amount dedicated to research up to a modest $1 billion a year. So far, it's gotten commitment only from Democrats, most of whom would be described as far left. With the recent election, who knows if it even stands a chance of passing.
And this is for a disease that, again, affects about a quarter of the public, that no one understands, and that is not going away. It's hard to describe the disconnect between leadership and reality as anything other than bizarre.
Given that we know that at least a quarter of people are susceptible, and that everyone is on track for infinite COVID reinfections, and that every reinfection may make these people worse, it's entirely plausible that we may soon be living in a world where a large chunk of the population is significantly disabled
This might not be likely, but again, no one can really say with any real authority what the odds are one way or the other. And if it does happen, it would be one of the worst health disasters in human history. And yet...there's just nothing from any of our leaders anywhere
#MAHA
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Adding a new feature for Help for Long COVID - overview summaries of all the reviews posted online for a given treatment. Check out the first one for LDN:
If you don't have the time or energy to write your own LDN review, you can simply vote on the accuracy of this summary. Or you can leave a thumbs up or thumbs down on LDN. Just create an account and log in.
When it comes to getting treatment as a Long COVID patient, the biggest gap is around masking and prevention. I've been to 2 Long COVID clinics at major universities, and dozens of different doctors and specialists. Almost none of them emphasized masking or prevention
The Stanford Long COVID clinic told me that reinfection wasn't a big deal in their experience - that most patients who were reinfected experienced a temporary set back, but ultimately, it didn't matter.
This is completely contrary to the evidence, which shows that reinfection is very dangerous for people with Long COVID, often leading to a permanent decline in their health
There are two camps within the long COVID patient community, and I've never really identified with either:
The first is convinced that long COVID is the same thing as ME/CFS. They typically point to a particular meta analysis that shows somewhere around 45% of people with long COVID meet the diagnostic criteria for ME/CFS: pmc.ncbi.nlm.nih.gov/articles/PMC95…
But other studies, including a new one from Japan, put the percentage much lower. But even if we assume it is 45%, that's still not 100% -- what about the other 55% of people that don't have ME/CFS?
1 in 5 Americans have had lingering symptoms from a COVID infection. Many people recover naturally after a few months, but others are sick for years. If this happens to you, don't expect to get any form of treatment from your doctor. Instead, you'll have to experiment yourself:
Since there are no approved treatments, the way doctors approach it varies wildly. The most conservative doctors (likely the majority) will give you nothing at all, instead letting you suffer in pain and try to accept whatever is left of your life.
If this happens to you, and if you time, money, and insurance, you can doctor shop, going from one doctor to the next until you get some form of treatment. Eventually, you might run into someone who is willing to prescribe some things.
~1 in 5 Americans have had lingering symptoms following COVID. Often, they're mild and resolves quickly. Sometimes they are severe and last years, which is what happened to me. Unfortunately, if this happens to you, you are screwed. This is what it's like trying to get care:
I'll start by saying that I have a lot of advantages 95%+ of people do not have, and despite these advantages, my experience seeking care has been terrible.
I live within driving distance of some of the world's best hospital systems. I have enough disposable income that I can afford to spend (and have spent) tens of thousands of dollars on treatments. I have one of the best, if not the best, health insurance plans you could have.
I think my most controversial take on COVID, and what I think nearly everyone in is getting wrong about this, is that it's a disease whose burden falls primarily on the young. Not the old.
Conventional wisdom is that COVID is only something old people need to worry about. You see this in revisionist arguments over whether it was wise to close schools, or who should get vaccine booster shots. Or if young people needed to get vaccinated at all in the first place.
Underlying all of this is a very simplistic, and very naive view of the data. People are focusing only a single metric: deaths. And to be sure, deaths from COVID are overwhelmingly concentrated among people 65+: