🚨Clinically Vulnerable Families - closing
** Shared in full**

Thanks to the @covidinquiryuk staff & team

"The vast majority of people who died [.] were Clinically Vulnerable [.] including people who caught Covid-19 in hospitals, which were supposed to be places of safety."

1/
"Most urgently, we need to make healthcare safe for Clinically Vulnerable people."

"And by making it safe for them - by improving ventilation and putting in place other protective measures - we make it safe for others too."

2/
🛡Shielding

CEV people are a diverse group with varied personal circumstances.

It provided a passport:
🏠 Right to work from home
💷 SSP entitlement
🚚 Food & medicine deliveries
💉 Priority vaccine access

3/
🛡Problems with shielding

Communications: disempowering
No information on how to reduce risks

4/
CMO NI recognised "The approach [.] did not fully think through the loss of agency and loss of control."

Individual vs household approach unrealistic and unworkable:
🏫Children in school
⛺️Family members sleeping in a tent
🧠Mental health impacts
👩‍🔬Experimental programme

5/
🛡Execution of shielding

Systems are not up to the challenge
- Delays
- People falling through the cracks

Data sharing is recognised as "a colossal challenge" by the DHSC's most senior civil servant.

6/
🛡Communications

💙 Communications let CEV people down
💜 Information is very important
💗 Wasn't regular enough
💙 Advice was incomplete
💜 Whitty & Vallance were only on the TV when asked. He tried to signpost information, but it "was clearly a hopeless way"

7/
Incomplete advice:

- Varying abilities to comply
- Lack of scientific rational
- Non Covid-19 treatments
- Steps to alleviate effects of shielding

Practical steps were needed to inform and empower people.

8/
Timing

⏸️ Shielding was paused too soon
🍲 'Eat Out the Help Out'
📈 Exponential growth after Lockdown 1

CEV (and CV) remained at risk.

9/
⛔️ Immunosuppressed and immunocompromised people were left behind.

Access to antivirals is problematic.
CVF💙💜💗 remain concerned that this issue could fall through the cracks of the inquiry.

10/
Transitional support after shielding
- Marked lack of support

Needed to bridge gap:
Shielding ➡️ enhanced protection programme
Enhanced protection programme ➡️ nothing

"Public given false confidence that the virus no longer posed a significant threat."

11/
Clinically Vulnerable (unshielded)

🚫 Not shielded
🚫 Not contacted
🚫 Not informed about their risks

Some didn't know until invited for vaccines

🚫 No employment protections
🚫 No help getting medications / food
🚫 No SSP

Prof Snooks "Almost arbitrary cut off"

12/
Next time...

We cannot rule out shielding

"The core focus in any future pandemic should be that it is the duty of government to protect those who are vulnerable."

13/
Data issues

QCovid algorithm needs to be faster

14/
💙Support Clinically Vulnerable people to support themselves
💜Engage with Clinically vulnerable people
💗Prompt access to antiviral treatments
💙Educate the public - end #MaskAbuse

15/
🐘 The elephant in the room

"You are more likely to catch Covid in hospital than in any other setting"
- Matt Hancock

Clinically Vulnerable people may stay safe in the community but they can't in healthcare.

16/
🦠🏵 Are healthcare acquired (nosocomial) infections inevitable, OR can we reduce them?

17/
Over 90% of Clinically Vulnerable people have delayed / cancelled medical appointments due to high Covid risks.

"it is [.] impossible for those at higher risk to comply with the [govt] guidance even today when [accessing] healthcare because the environment [.] is not safe."

18/
🌬 Covid Transmission

"Incorrect assumptions [.] led to a failure to adopt a sufficiently precautionary approach."

"The significant role of airborne transmission is beyond doubt."

19/
💨 Adequate ventilation 💨

Dr. Shin picked this as his
"Headline Recommendation".

"If [the NHS estate, particularly ventilation and isolation capacity] is not improved, we will face the next emergency with the same difficulties that we encountered this Covid pandemic."

20/
Whitty "We should take indoor ventilation a lot more seriously."

"No one has seriously challenged @CliveBeggs [.] that the HTM guidelines are not fit for purpose and in urgent need of reform."

NB/ HTMs guide the design & operation of healthcare building systems for safety.

21/
@CliveBeggs A strong recommendation is needed despite the cost.

"The cost of doing nothing will be much higher, especially when, WHEN and not IF there is another pandemic with a pathogen which spreads through the air."

💨 "In the meantime, HEPA filters are 'low hanging fruit'". 💨

22/
@CliveBeggs 🥊FRSM vs. FFP2/3 🥊

"CVF urges the inquiry to accept the common sense evidence of its own independent experts."

"We cannot wait for randomised control trails which probably will never come."

23/
@CliveBeggs "It is [.] inconsistent to do so, given that FFP3s are already recommended for high consequences infectious diseases and aerosol generating procedures."

Adam then explains the
🧀Swiss Cheese model🧀 (sadly no cheese) vs. the hierarchy of controls.

24/
@CliveBeggs Recommendations:

💙Information on masks
💜Training for HCWs so they don't tell Clinically Vulnerable patients to remove masks [unless medically necessary].
💗HCWs to wear a mask or test if requested
💙Routine testing
💜Monitor CO2
💗Staggered appointments
💙Less crowding

25/
@CliveBeggs In the longer term...

Research to remove barriers and allow effective RPE in practice.

😷Why can't we make masks more comfortable?
💬Why can't we improve communication?

26/
@CliveBeggs CVF💙💜💗 are calling for the inquiry to recommend:

1. Review all DNACPRs since start of the pandemic
2. Review of the notes of all CEV
3. Psychological support for all affected

Decision support tools should only be used in the context of an overall clinical assessment.

27/
@CliveBeggs ⚖️ Equality Act ⚖️

Clinical vulnerability is a newly recognised issue that causes serious detriments across society but is not protected under the law.

"That is why we are asking the inquiry to consider recommending changes to the Equality Act"

28/

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More from @cv_cev

Jan 23
⚠️⚠️⚠️
Don't scroll past without 💕 + ♻️... 🙏
👇👇👇

- Can you help us to help you?

If you value our work at the C○vid Inquiry and beyond, your continued support is vital.

1/ Clean Air & Safer Access  United Kingdom  St Thomas' Hospital  LEARN to LIVE with COVID  #CLEANAIR  HIGHLIGHTED: Another way to help CVF  Arrow to start your own crowdfunder.  Clinically Vulnerable Families CIC About the project owner  Aim  We urgently need your help to support families by improv providing vital support, and advocating for freedoms.  access,  £380  Target: £15,000  2%  4 supporters  42 days left  Donate  Share  Help them get starte  Your support makes a difference  Become a fundraiser for  Clean Air & Safer Access  Start fundraising for this cause →
It is hard to explain how much effort has gone in over the past few years to raise understanding and awareness of issues amplified the emerge of C○vid.

2/ #ProtectVulnerableProtesters  CVF logo Image of a masked protester
We have participated in NICE as stakeholders and the inquiry as Core Participants (as the only group representing Clinically Vulnerable people).

📉📊 We have collected evidence as data and thousands of 💬 impact statements from people.

3/ Clinically Vulnerable Families  represent you as a Stakeholder  in the NICE appraisals of Evusheld & Antivirals  We can:  NICE  Comment  Give Evidence  Consult on Draft Guidance
Clinically Vulnerable Families  have been designated as  Core Participants  in the UK Covid-19 Inquiry  We can:  Access Evidence  Make opening & closing statements  Ask the witnesses questions
Read 8 tweets
Jan 21
🚨'Can You Keep a Secret?'. The BBC response is below in full.

In short, it essentially says:
“It’s farcical, sorry we offended you, we’ve noted your complaint.”

BUT if you (like us) aren't unhappy with this response, here is our next move... 🧵

1/ Thank you for contacting us regarding episode one of 'Can You Keep a Secret?'  'Can You Keep a Secret?' is an adult, farcical and offbeat comedy that follows a couple, William and Debbie, who commit insurance fraud after William takes too much of his medication, is left unconscious, and is mistakenly declared dead.  There was never any intention to make light of infection control or to trivialise the real challenges faced by those affected by Covid-19, including those who are clinically vulnerable. In the scene in question, their son Harry has just learned that his father is still alive, an...
Their response dodges the point.
Because the problem really wasn’t that “I didn’t get the joke”.

The problem is who the joke is aimed at and what it encourages most people to laugh at.

2/ Image
If the punchline is “PPE / precautions = anxious / ridiculous” then people who still need precautions (Clinically Vulnerable people) are the collateral damage.

So it is not about “offence” but creating stigma.

3/ Image
Read 10 tweets
Jan 8
Hi @bbccomedy.

We need to talk about the new @Dawn_French “comedy” series that implies that infection control is a joke.

This is a serious issue, particularly for Clinically Vulnerable people who remain at increased risk, and we are not laughing.
1/
In the first episode, a GP appears in a dramatic “protective outfit” and face shield, and we’re told it’s because “since Covid” they’ve developed “very, very, very bad health anxiety.”

2/ Image of doctor in white coveralls, gloves and a face shield pulling a face and grabbing the sides of the face shield whilst failing to examine a patient effectively.
Then the doctor refuses to get close to the patient, barely touches a wrist, and incorrectly declares them dead.

It invites audiences to mock precautions (during the current flu wave) and suggests that doctors who take measures are less competent.

3/ The doctor briefly grabs the patient's wrist...
Before rapidly pulling their hand away and dropping their arm. Failing to take a pulse, but then declaring the patient dead.
Read 11 tweets
Dec 8, 2025
🥳 This is a HUGE win for CVF!

- Safe access to public buildings is a right!

As a consequence of our advocacy, national voting guidance has been updated to:
✅ Improve ventilation
✅ Add air filters
✅ “See a mask, wear a mask”

* VERY IMPORTANT THREAD *
PLEASE SHARE!
1/ Support for clinically vulnerable electors - alongside increasing ventilation of the room either through opening windows or doors or using HEPA filters where windows or doors cannot be kept open, you can ensure face masks are provided for polling station staff to use (using see a mask, wear a mask as a basis) and promote the use of social distancing when interacting with clinically vulnerable voters. Your staff training should cover how you can offer to conduct photographic ID checks for mask wearers, including whether checks could be conducted outside for these voters if photographic ID is...
6 years since Covid emerged, we are finally making important changes... thanks to your help!

The new guidance not only recognises our needs - due to heightened health risks - but also the risks posed by mask removal.

2/ polling station staff not having awareness of health risks when asking a clinically vulnerable voter to remove a face mask in order to check photographic ID  The Electoral Commission
Why is this so important?

- It is the first national guidance to address our issues directly.... and it sets an important precedent that we plan to build on!

3/ Read more:
clinicallyvulnerable.org/post/how-clini…
Read 7 tweets
Dec 3, 2025
A letter just landed on Baroness Hallett’s desk from CATA (Covid Airborne Transmission Alliance).

If you are a patient, an NHS worker, or Clinically Vulnerable... or you want to see safety measures updated - you need to see this!

1/
The Covid Inquiry is there to help us to learn lessons and change how we plan for pandemics.

But, NHS England quietly published a strategy (July '24) that says:

it will not be possible to halt the spread of a new pandemic virus, and it would be a waste... to attempt to do so
2/ See Appendix 5  https://www.england.nhs.uk/long-read/framework-for-managing-the-response-to-pandemic-diseases/#appendix-5-planning-assumptions
That clashes with Hallett’s recommendation:

"risk assessment that moves away... reasonable worst-case scenarios towards... a wider range of scenarios"

But their plan assumes mass infection is inevitable and acceptable.

For some, it isn’t survivable!
3/
Read 11 tweets
Nov 8, 2025
🧵 This autumn the UKHSA is rightly worried, as 'flu is a real risk...

TLDR:
Clinically Vulnerable people ALL need 'flu vaccines + antivirals this year (if symptomatic or exposed) + confused infection control guidance.

If you are Clinically Vulnerable, please read on...

1/ Graph showing the early rise of flu in the UK.
This year's strains aren't looking good:

The infections have started earlier.
A(H3N2) strains are dominant - and linked to worse outcomes.
A shifted strain (slightly different to vaccines) is also doing the rounds.

2/ Summary:  Influenza is now circulating in the community with earlier than usual onset of activity in the 2025 to 2026 season, and with an A(H3N2) drifted strain (K, also known as J.2.4.1) predominating  A(H3N2) predominance is associated with higher morbidity and mortality, particularly in the elderly, than when A(H1N1) predominates  All eligible groups should be encouraged to get vaccinated with the 2025 to 2026 seasonal influenza vaccine as soon as possible  Prompt antiviral post exposure prophylaxis and treatment for seasonal influenza should be offered to eligible groups  Antivirals gui...
If you have been invited for a vaccine, or live with a Clinically Vulnerable person (but don't qualify) please consider getting a vaccine - they can be as cheap as £9.95.

Everyone benefits from 'flu vaccines and children (up to 16) are offered them for free in school.

3/ Image of a banner outside a shop. A pharmacist is on the picture. She is has black straight hair, brown eyes, a big smile and is wearing a cream suit jacket with a staff badge.  Superdrug  *REMINDER!!!  IT'S FLU VACCINATION SEASON  Flu Jab Service provided by our healthcare professionals  Noyne Pharmacist  MEMBER PRICE £9.95  NORMAL PRICE £19.95  MEMBERS SAVE MORE  Service available here  Help protect yourself against several strains of the flu this season with one simple visit in-store. وو
Read 10 tweets

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