🚨Clinically Vulnerable Families - closing
** Shared in full**

Thanks to the @covidinquiryuk staff & team

"The vast majority of people who died [.] were Clinically Vulnerable [.] including people who caught Covid-19 in hospitals, which were supposed to be places of safety."

1/
"Most urgently, we need to make healthcare safe for Clinically Vulnerable people."

"And by making it safe for them - by improving ventilation and putting in place other protective measures - we make it safe for others too."

2/
🛡Shielding

CEV people are a diverse group with varied personal circumstances.

It provided a passport:
🏠 Right to work from home
💷 SSP entitlement
🚚 Food & medicine deliveries
💉 Priority vaccine access

3/
🛡Problems with shielding

Communications: disempowering
No information on how to reduce risks

4/
CMO NI recognised "The approach [.] did not fully think through the loss of agency and loss of control."

Individual vs household approach unrealistic and unworkable:
🏫Children in school
⛺️Family members sleeping in a tent
🧠Mental health impacts
👩‍🔬Experimental programme

5/
🛡Execution of shielding

Systems are not up to the challenge
- Delays
- People falling through the cracks

Data sharing is recognised as "a colossal challenge" by the DHSC's most senior civil servant.

6/
🛡Communications

💙 Communications let CEV people down
💜 Information is very important
💗 Wasn't regular enough
💙 Advice was incomplete
💜 Whitty & Vallance were only on the TV when asked. He tried to signpost information, but it "was clearly a hopeless way"

7/
Incomplete advice:

- Varying abilities to comply
- Lack of scientific rational
- Non Covid-19 treatments
- Steps to alleviate effects of shielding

Practical steps were needed to inform and empower people.

8/
Timing

⏸️ Shielding was paused too soon
🍲 'Eat Out the Help Out'
📈 Exponential growth after Lockdown 1

CEV (and CV) remained at risk.

9/
⛔️ Immunosuppressed and immunocompromised people were left behind.

Access to antivirals is problematic.
CVF💙💜💗 remain concerned that this issue could fall through the cracks of the inquiry.

10/
Transitional support after shielding
- Marked lack of support

Needed to bridge gap:
Shielding ➡️ enhanced protection programme
Enhanced protection programme ➡️ nothing

"Public given false confidence that the virus no longer posed a significant threat."

11/
Clinically Vulnerable (unshielded)

🚫 Not shielded
🚫 Not contacted
🚫 Not informed about their risks

Some didn't know until invited for vaccines

🚫 No employment protections
🚫 No help getting medications / food
🚫 No SSP

Prof Snooks "Almost arbitrary cut off"

12/
Next time...

We cannot rule out shielding

"The core focus in any future pandemic should be that it is the duty of government to protect those who are vulnerable."

13/
Data issues

QCovid algorithm needs to be faster

14/
💙Support Clinically Vulnerable people to support themselves
💜Engage with Clinically vulnerable people
💗Prompt access to antiviral treatments
💙Educate the public - end #MaskAbuse

15/
🐘 The elephant in the room

"You are more likely to catch Covid in hospital than in any other setting"
- Matt Hancock

Clinically Vulnerable people may stay safe in the community but they can't in healthcare.

16/
🦠🏵 Are healthcare acquired (nosocomial) infections inevitable, OR can we reduce them?

17/
Over 90% of Clinically Vulnerable people have delayed / cancelled medical appointments due to high Covid risks.

"it is [.] impossible for those at higher risk to comply with the [govt] guidance even today when [accessing] healthcare because the environment [.] is not safe."

18/
🌬 Covid Transmission

"Incorrect assumptions [.] led to a failure to adopt a sufficiently precautionary approach."

"The significant role of airborne transmission is beyond doubt."

19/
💨 Adequate ventilation 💨

Dr. Shin picked this as his
"Headline Recommendation".

"If [the NHS estate, particularly ventilation and isolation capacity] is not improved, we will face the next emergency with the same difficulties that we encountered this Covid pandemic."

20/
Whitty "We should take indoor ventilation a lot more seriously."

"No one has seriously challenged @CliveBeggs [.] that the HTM guidelines are not fit for purpose and in urgent need of reform."

NB/ HTMs guide the design & operation of healthcare building systems for safety.

21/
@CliveBeggs A strong recommendation is needed despite the cost.

"The cost of doing nothing will be much higher, especially when, WHEN and not IF there is another pandemic with a pathogen which spreads through the air."

💨 "In the meantime, HEPA filters are 'low hanging fruit'". 💨

22/
@CliveBeggs 🥊FRSM vs. FFP2/3 🥊

"CVF urges the inquiry to accept the common sense evidence of its own independent experts."

"We cannot wait for randomised control trails which probably will never come."

23/
@CliveBeggs "It is [.] inconsistent to do so, given that FFP3s are already recommended for high consequences infectious diseases and aerosol generating procedures."

Adam then explains the
🧀Swiss Cheese model🧀 (sadly no cheese) vs. the hierarchy of controls.

24/
@CliveBeggs Recommendations:

💙Information on masks
💜Training for HCWs so they don't tell Clinically Vulnerable patients to remove masks [unless medically necessary].
💗HCWs to wear a mask or test if requested
💙Routine testing
💜Monitor CO2
💗Staggered appointments
💙Less crowding

25/
@CliveBeggs In the longer term...

Research to remove barriers and allow effective RPE in practice.

😷Why can't we make masks more comfortable?
💬Why can't we improve communication?

26/
@CliveBeggs CVF💙💜💗 are calling for the inquiry to recommend:

1. Review all DNACPRs since start of the pandemic
2. Review of the notes of all CEV
3. Psychological support for all affected

Decision support tools should only be used in the context of an overall clinical assessment.

27/
@CliveBeggs ⚖️ Equality Act ⚖️

Clinical vulnerability is a newly recognised issue that causes serious detriments across society but is not protected under the law.

"That is why we are asking the inquiry to consider recommending changes to the Equality Act"

28/

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More from @cv_cev

Dec 8
🥳 This is a HUGE win for CVF!

- Safe access to public buildings is a right!

As a consequence of our advocacy, national voting guidance has been updated to:
✅ Improve ventilation
✅ Add air filters
✅ “See a mask, wear a mask”

* VERY IMPORTANT THREAD *
PLEASE SHARE!
1/ Support for clinically vulnerable electors - alongside increasing ventilation of the room either through opening windows or doors or using HEPA filters where windows or doors cannot be kept open, you can ensure face masks are provided for polling station staff to use (using see a mask, wear a mask as a basis) and promote the use of social distancing when interacting with clinically vulnerable voters. Your staff training should cover how you can offer to conduct photographic ID checks for mask wearers, including whether checks could be conducted outside for these voters if photographic ID is...
6 years since Covid emerged, we are finally making important changes... thanks to your help!

The new guidance not only recognises our needs - due to heightened health risks - but also the risks posed by mask removal.

2/ polling station staff not having awareness of health risks when asking a clinically vulnerable voter to remove a face mask in order to check photographic ID  The Electoral Commission
Why is this so important?

- It is the first national guidance to address our issues directly.... and it sets an important precedent that we plan to build on!

3/ Read more:
clinicallyvulnerable.org/post/how-clini…
Read 7 tweets
Dec 3
A letter just landed on Baroness Hallett’s desk from CATA (Covid Airborne Transmission Alliance).

If you are a patient, an NHS worker, or Clinically Vulnerable... or you want to see safety measures updated - you need to see this!

1/
The Covid Inquiry is there to help us to learn lessons and change how we plan for pandemics.

But, NHS England quietly published a strategy (July '24) that says:

it will not be possible to halt the spread of a new pandemic virus, and it would be a waste... to attempt to do so
2/ See Appendix 5  https://www.england.nhs.uk/long-read/framework-for-managing-the-response-to-pandemic-diseases/#appendix-5-planning-assumptions
That clashes with Hallett’s recommendation:

"risk assessment that moves away... reasonable worst-case scenarios towards... a wider range of scenarios"

But their plan assumes mass infection is inevitable and acceptable.

For some, it isn’t survivable!
3/
Read 11 tweets
Nov 8
🧵 This autumn the UKHSA is rightly worried, as 'flu is a real risk...

TLDR:
Clinically Vulnerable people ALL need 'flu vaccines + antivirals this year (if symptomatic or exposed) + confused infection control guidance.

If you are Clinically Vulnerable, please read on...

1/ Graph showing the early rise of flu in the UK.
This year's strains aren't looking good:

The infections have started earlier.
A(H3N2) strains are dominant - and linked to worse outcomes.
A shifted strain (slightly different to vaccines) is also doing the rounds.

2/ Summary:  Influenza is now circulating in the community with earlier than usual onset of activity in the 2025 to 2026 season, and with an A(H3N2) drifted strain (K, also known as J.2.4.1) predominating  A(H3N2) predominance is associated with higher morbidity and mortality, particularly in the elderly, than when A(H1N1) predominates  All eligible groups should be encouraged to get vaccinated with the 2025 to 2026 seasonal influenza vaccine as soon as possible  Prompt antiviral post exposure prophylaxis and treatment for seasonal influenza should be offered to eligible groups  Antivirals gui...
If you have been invited for a vaccine, or live with a Clinically Vulnerable person (but don't qualify) please consider getting a vaccine - they can be as cheap as £9.95.

Everyone benefits from 'flu vaccines and children (up to 16) are offered them for free in school.

3/ Image of a banner outside a shop. A pharmacist is on the picture. She is has black straight hair, brown eyes, a big smile and is wearing a cream suit jacket with a staff badge.  Superdrug  *REMINDER!!!  IT'S FLU VACCINATION SEASON  Flu Jab Service provided by our healthcare professionals  Noyne Pharmacist  MEMBER PRICE £9.95  NORMAL PRICE £19.95  MEMBERS SAVE MORE  Service available here  Help protect yourself against several strains of the flu this season with one simple visit in-store. وو
Read 10 tweets
Oct 23
CVF💙💜💗's Closing Statement

⚠️SAFE
- Schools must be made safe.

👩‍🏫SUPPORT
- Children must be given appropriate support to continue their education at home.

🛡️STATUS
- Clinical Vulnerability must be recognised as a distinct group in the Equality Act.

1/ @AdamWagner1 KC
⚠️SAFETY
"There is good evidence that many schools can be made safer for Clinically Vulnerable children and those in Clinically Vulnerable families."

Ventilation is uncontroversial!

2/
Ventilation works!

"There is sufficient evidence and consensus now for the Inquiry to recommend that clear air is prioritised in schools"

3/
Read 7 tweets
Oct 21
🚨Boris Johnson - Children & Young People

Message to Gavin : 6/7/20
GW "need to push on the push compulsary attendance, and the message of normality"

AW "[You] encouraged him to continue the job.

Would you agree this was months before the vaccine...?"
BJ "Yes"
1/ @AdamWagner1
AW "Do you think in that race to return to normality [summer 2020] Clinically Vulnerable families may have been left behind?"

BJ "Getting back to school... would have been the best for all C&YP, CV or not."

2/
Johnson knew it would endanger our lives!!!

AW "It was sometimes not safe"

BJ "There was always going to be an argument... from that position... you were going to create a situation in which Vulnerable parents would be exposed to the virus picked up by kids in schools."

3/
Read 14 tweets
Oct 20
🚨Whitty is on the stand today... follow this thread.

CTI "What about children who lived with parents who were still at risk...?"

Whitty "The risk to shielding adult... will be increased somewhat, but the risk to the child... scarring their life chances indefinitely."

1/
CW "Risk-benefit taking a child-centred approach, was to prioritise the needs of the children.

I don't think [there is] convincing evidence, that was with the benefits of hindsight, an incorrect judgement."

- Don't the needs of the children include not killing their parents?
2/
CTI "But looking at if from the perspective of a child who might be a very difficult position... to be in."

CW "The need to have a conversation with the doctor [or nurse] their family know."
___

How would these conversation reduce risks?
Wouldn't it waste the time of HCWs?
3/
Read 23 tweets

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