Clinically Vulnerable Families ๐Ÿ’™๐Ÿ’œ๐Ÿ’— Profile picture
Nov 27, 2024 โ€ข 28 tweets โ€ข 10 min read โ€ข Read on X
๐ŸšจClinically Vulnerable Families - closing
** Shared in full**

Thanks to the @covidinquiryuk staff & team

"The vast majority of people who died [.] were Clinically Vulnerable [.] including people who caught Covid-19 in hospitals, which were supposed to be places of safety."

1/
"Most urgently, we need to make healthcare safe for Clinically Vulnerable people."

"And by making it safe for them - by improving ventilation and putting in place other protective measures - we make it safe for others too."

2/
๐Ÿ›กShielding

CEV people are a diverse group with varied personal circumstances.

It provided a passport:
๐Ÿ  Right to work from home
๐Ÿ’ท SSP entitlement
๐Ÿšš Food & medicine deliveries
๐Ÿ’‰ Priority vaccine access

3/
๐Ÿ›กProblems with shielding

Communications: disempowering
No information on how to reduce risks

4/
CMO NI recognised "The approach [.] did not fully think through the loss of agency and loss of control."

Individual vs household approach unrealistic and unworkable:
๐ŸซChildren in school
โ›บ๏ธFamily members sleeping in a tent
๐Ÿง Mental health impacts
๐Ÿ‘ฉโ€๐Ÿ”ฌExperimental programme

5/
๐Ÿ›กExecution of shielding

Systems are not up to the challenge
- Delays
- People falling through the cracks

Data sharing is recognised as "a colossal challenge" by the DHSC's most senior civil servant.

6/
๐Ÿ›กCommunications

๐Ÿ’™ Communications let CEV people down
๐Ÿ’œ Information is very important
๐Ÿ’— Wasn't regular enough
๐Ÿ’™ Advice was incomplete
๐Ÿ’œ Whitty & Vallance were only on the TV when asked. He tried to signpost information, but it "was clearly a hopeless way"

7/
Incomplete advice:

- Varying abilities to comply
- Lack of scientific rational
- Non Covid-19 treatments
- Steps to alleviate effects of shielding

Practical steps were needed to inform and empower people.

8/
Timing

โธ๏ธ Shielding was paused too soon
๐Ÿฒ 'Eat Out the Help Out'
๐Ÿ“ˆ Exponential growth after Lockdown 1

CEV (and CV) remained at risk.

9/
โ›”๏ธ Immunosuppressed and immunocompromised people were left behind.

Access to antivirals is problematic.
CVF๐Ÿ’™๐Ÿ’œ๐Ÿ’— remain concerned that this issue could fall through the cracks of the inquiry.

10/
Transitional support after shielding
- Marked lack of support

Needed to bridge gap:
Shielding โžก๏ธ enhanced protection programme
Enhanced protection programme โžก๏ธ nothing

"Public given false confidence that the virus no longer posed a significant threat."

11/
Clinically Vulnerable (unshielded)

๐Ÿšซ Not shielded
๐Ÿšซ Not contacted
๐Ÿšซ Not informed about their risks

Some didn't know until invited for vaccines

๐Ÿšซ No employment protections
๐Ÿšซ No help getting medications / food
๐Ÿšซ No SSP

Prof Snooks "Almost arbitrary cut off"

12/
Next time...

We cannot rule out shielding

"The core focus in any future pandemic should be that it is the duty of government to protect those who are vulnerable."

13/
Data issues

QCovid algorithm needs to be faster

14/
๐Ÿ’™Support Clinically Vulnerable people to support themselves
๐Ÿ’œEngage with Clinically vulnerable people
๐Ÿ’—Prompt access to antiviral treatments
๐Ÿ’™Educate the public - end #MaskAbuse

15/
๐Ÿ˜ The elephant in the room

"You are more likely to catch Covid in hospital than in any other setting"
- Matt Hancock

Clinically Vulnerable people may stay safe in the community but they can't in healthcare.

16/
๐Ÿฆ ๐Ÿต Are healthcare acquired (nosocomial) infections inevitable, OR can we reduce them?

17/
Over 90% of Clinically Vulnerable people have delayed / cancelled medical appointments due to high Covid risks.

"it is [.] impossible for those at higher risk to comply with the [govt] guidance even today when [accessing] healthcare because the environment [.] is not safe."

18/
๐ŸŒฌ Covid Transmission

"Incorrect assumptions [.] led to a failure to adopt a sufficiently precautionary approach."

"The significant role of airborne transmission is beyond doubt."

19/
๐Ÿ’จ Adequate ventilation ๐Ÿ’จ

Dr. Shin picked this as his
"Headline Recommendation".

"If [the NHS estate, particularly ventilation and isolation capacity] is not improved, we will face the next emergency with the same difficulties that we encountered this Covid pandemic."

20/
Whitty "We should take indoor ventilation a lot more seriously."

"No one has seriously challenged @CliveBeggs [.] that the HTM guidelines are not fit for purpose and in urgent need of reform."

NB/ HTMs guide the design & operation of healthcare building systems for safety.

21/
@CliveBeggs A strong recommendation is needed despite the cost.

"The cost of doing nothing will be much higher, especially when, WHEN and not IF there is another pandemic with a pathogen which spreads through the air."

๐Ÿ’จ "In the meantime, HEPA filters are 'low hanging fruit'". ๐Ÿ’จ

22/
@CliveBeggs ๐ŸฅŠFRSM vs. FFP2/3 ๐ŸฅŠ

"CVF urges the inquiry to accept the common sense evidence of its own independent experts."

"We cannot wait for randomised control trails which probably will never come."

23/
@CliveBeggs "It is [.] inconsistent to do so, given that FFP3s are already recommended for high consequences infectious diseases and aerosol generating procedures."

Adam then explains the
๐Ÿง€Swiss Cheese model๐Ÿง€ (sadly no cheese) vs. the hierarchy of controls.

24/
@CliveBeggs Recommendations:

๐Ÿ’™Information on masks
๐Ÿ’œTraining for HCWs so they don't tell Clinically Vulnerable patients to remove masks [unless medically necessary].
๐Ÿ’—HCWs to wear a mask or test if requested
๐Ÿ’™Routine testing
๐Ÿ’œMonitor CO2
๐Ÿ’—Staggered appointments
๐Ÿ’™Less crowding

25/
@CliveBeggs In the longer term...

Research to remove barriers and allow effective RPE in practice.

๐Ÿ˜ทWhy can't we make masks more comfortable?
๐Ÿ’ฌWhy can't we improve communication?

26/
@CliveBeggs CVF๐Ÿ’™๐Ÿ’œ๐Ÿ’— are calling for the inquiry to recommend:

1. Review all DNACPRs since start of the pandemic
2. Review of the notes of all CEV
3. Psychological support for all affected

Decision support tools should only be used in the context of an overall clinical assessment.

27/
@CliveBeggs โš–๏ธ Equality Act โš–๏ธ

Clinical vulnerability is a newly recognised issue that causes serious detriments across society but is not protected under the law.

"That is why we are asking the inquiry to consider recommending changes to the Equality Act"

28/

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More from @cv_cev

Mar 25
๐Ÿ“‰ Kent MenB outbreak

โš ๏ธEast Kent Trust failed to report their first case for 2 daysโš ๏ธ

Here's what you need to know.
TLDR: Peaked 13th March. No new cases since - with reporting delays, but that's even better news than it sounds.
1/๐Ÿงต ๐Ÿ‘‡ @laurabundock @SkyNews
THE OUTBREAK IS DECLINING but understates how well that's going. ๐Ÿ“‰

The earliest case became unwell on 9th March, with the latest on 16th March, and the peak was 13th March.

2/
Cases take time to be confirmed and reported.

The fact that nothing new has surfaced in the data as of 23rd March - despite the reporting lag - means the real-world situation is almost certainly better than the numbers show.

3/ Image of bar chart  Figure 2. Cases of invasive meningococcal disease in Kent outbreak, by case category, outbreak bacterial subtype: serotype P1.12-1,16-183, attendance at Club Chemistry, and date of onset (data as of 23 March 2026)  6  5-  4  Number of cases  3  2  1-  0  07 Mar  09 Mar  11 Mar  13 Mar  15 Mar  17 Mar  19 Mar  21 Mar  23 Mar  Date of onset  Confirmed outbreak strain  Confirmed  Probable  Attended Club Chemistry  Includes 17 Confirmed - outbreak strain and 3 Confirmed and 2 Probable case(s). Excludes 1 Probable case with missing date information.
Read 15 tweets
Mar 18
Meningitis
* Important thread for those who prefer balanced and factual information *

In order to understand risk we need to break down a few things....

๐Ÿฆ Risk from the bacteria
๐Ÿ’™๐Ÿ’œ๐Ÿ’— Individual risk
๐ŸŽ“ Environmental risks
1/
The Kent outbreak is predominantly MenB (Group B). This is a serious infection - and potentially an adapted strain - investigations are ongoing...

Bacterial meningitis is rare but more severe than viral, and up to 1 in 10 cases of bacterial meningitis in the UK is fatal.

2/
MenB isn't new. There are around 300 cases of MenB per year in the UK, even with vaccination programmes.

What's unusual is the cluster - multiple cases linked to a single location in a short window. It has now spread to a student at a second university in Canterbury, Kent.
3/
Read 9 tweets
Mar 5
UK COVID INQUIRY - CVF๐Ÿ’™๐Ÿ’œ๐Ÿ’—
@AdamWagner1 Closing Submissions

The Covid Inquiry has good ventilation protocols (as advised by CVF at the start of the Inquiry) including HEPA filters.

Under 1000ppm is therefore the safe threshold ( but without it would be under 800ppm).

1/
We need to understand airborne transmission in order to make all indoor environments safer for everyone, and especially for Clinically Vulnerable people.

2/
The need for Clinically Vulnerable people to have:

Safety
Support
& Status

3/
Read 14 tweets
Mar 1
๐ŸšจCOVID INQUIRY ROUND UP (Wk2)

This week saw CVF's evidence & organisations representing: disability, domestic abuse, faith, migrants, homeless, prisons, local government.

Expert evidence focused on: later life, LGBTQ+, race and gender inequalities (Dr Clare Wenham, below)

1/
EXPERT RACIAL INEQUALITIES

Prof Laia Bรฉcares discussed the risks in multigenerational households where there were keyworkers and children in schools.

2/
EXPERT LATER LIFE
Prof @JamesNazroo

CVF were concerned that many older people, who were at high risk, were not supported to shield - which included advice on how to stay safe, as well as food deliveries and community outreach.

3/
Read 15 tweets
Feb 26
๐Ÿšจ NEW DfE GUIDANCE
- VENTILATION & AIR QUALITY -

Clean air matters - especially for #ClinicallyVulnerable children, staff and families. This is an important recognition that airborne transmission is preventable.

1/ Image
But the proposed COโ‚‚ thresholds are too high. 800ppm should be the upper limit - not 1500ppm. By 1500ppm, air is already significantly rebreathed. Thatโ€™s not a precautionary standard for children, let alone those at higher risk.



2/gov.uk/government/pubโ€ฆ
If weโ€™ve learned anything from the pandemic, itโ€™s that minimum compliance is not the same as safety. #ClinicallyVulnerable pupils cannot โ€œchooseโ€ lower exposure if the baseline standard is poor.

3/
Read 8 tweets
Feb 25
๐ŸšจFINAL CVF EVIDENCE

We would encourage you to watch @lara_wong 's inquiry evidence in full.

However, out amazing team have clipped these extracts for you!

1/
CVF's Survey

In the summer of 2025, CVF gathered in depth survey evidence about the impacts of the pandemic on CV households - which has now been shared multiple times to inquiry experts and others.

2/
People were commonly told that

"They should hurry up and die so that they could get their lives back."

3/
Read 31 tweets

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