Clinically Vulnerable Families 💙💜💗 Profile picture
Nov 27 28 tweets 10 min read Read on X
🚨Clinically Vulnerable Families - closing
** Shared in full**

Thanks to the @covidinquiryuk staff & team

"The vast majority of people who died [.] were Clinically Vulnerable [.] including people who caught Covid-19 in hospitals, which were supposed to be places of safety."

1/
"Most urgently, we need to make healthcare safe for Clinically Vulnerable people."

"And by making it safe for them - by improving ventilation and putting in place other protective measures - we make it safe for others too."

2/
🛡Shielding

CEV people are a diverse group with varied personal circumstances.

It provided a passport:
🏠 Right to work from home
💷 SSP entitlement
🚚 Food & medicine deliveries
💉 Priority vaccine access

3/
🛡Problems with shielding

Communications: disempowering
No information on how to reduce risks

4/
CMO NI recognised "The approach [.] did not fully think through the loss of agency and loss of control."

Individual vs household approach unrealistic and unworkable:
🏫Children in school
⛺️Family members sleeping in a tent
🧠Mental health impacts
👩‍🔬Experimental programme

5/
🛡Execution of shielding

Systems are not up to the challenge
- Delays
- People falling through the cracks

Data sharing is recognised as "a colossal challenge" by the DHSC's most senior civil servant.

6/
🛡Communications

💙 Communications let CEV people down
💜 Information is very important
💗 Wasn't regular enough
💙 Advice was incomplete
💜 Whitty & Vallance were only on the TV when asked. He tried to signpost information, but it "was clearly a hopeless way"

7/
Incomplete advice:

- Varying abilities to comply
- Lack of scientific rational
- Non Covid-19 treatments
- Steps to alleviate effects of shielding

Practical steps were needed to inform and empower people.

8/
Timing

⏸️ Shielding was paused too soon
🍲 'Eat Out the Help Out'
📈 Exponential growth after Lockdown 1

CEV (and CV) remained at risk.

9/
⛔️ Immunosuppressed and immunocompromised people were left behind.

Access to antivirals is problematic.
CVF💙💜💗 remain concerned that this issue could fall through the cracks of the inquiry.

10/
Transitional support after shielding
- Marked lack of support

Needed to bridge gap:
Shielding ➡️ enhanced protection programme
Enhanced protection programme ➡️ nothing

"Public given false confidence that the virus no longer posed a significant threat."

11/
Clinically Vulnerable (unshielded)

🚫 Not shielded
🚫 Not contacted
🚫 Not informed about their risks

Some didn't know until invited for vaccines

🚫 No employment protections
🚫 No help getting medications / food
🚫 No SSP

Prof Snooks "Almost arbitrary cut off"

12/
Next time...

We cannot rule out shielding

"The core focus in any future pandemic should be that it is the duty of government to protect those who are vulnerable."

13/
Data issues

QCovid algorithm needs to be faster

14/
💙Support Clinically Vulnerable people to support themselves
💜Engage with Clinically vulnerable people
💗Prompt access to antiviral treatments
💙Educate the public - end #MaskAbuse

15/
🐘 The elephant in the room

"You are more likely to catch Covid in hospital than in any other setting"
- Matt Hancock

Clinically Vulnerable people may stay safe in the community but they can't in healthcare.

16/
🦠🏵 Are healthcare acquired (nosocomial) infections inevitable, OR can we reduce them?

17/
Over 90% of Clinically Vulnerable people have delayed / cancelled medical appointments due to high Covid risks.

"it is [.] impossible for those at higher risk to comply with the [govt] guidance even today when [accessing] healthcare because the environment [.] is not safe."

18/
🌬 Covid Transmission

"Incorrect assumptions [.] led to a failure to adopt a sufficiently precautionary approach."

"The significant role of airborne transmission is beyond doubt."

19/
💨 Adequate ventilation 💨

Dr. Shin picked this as his
"Headline Recommendation".

"If [the NHS estate, particularly ventilation and isolation capacity] is not improved, we will face the next emergency with the same difficulties that we encountered this Covid pandemic."

20/
Whitty "We should take indoor ventilation a lot more seriously."

"No one has seriously challenged @CliveBeggs [.] that the HTM guidelines are not fit for purpose and in urgent need of reform."

NB/ HTMs guide the design & operation of healthcare building systems for safety.

21/
@CliveBeggs A strong recommendation is needed despite the cost.

"The cost of doing nothing will be much higher, especially when, WHEN and not IF there is another pandemic with a pathogen which spreads through the air."

💨 "In the meantime, HEPA filters are 'low hanging fruit'". 💨

22/
@CliveBeggs 🥊FRSM vs. FFP2/3 🥊

"CVF urges the inquiry to accept the common sense evidence of its own independent experts."

"We cannot wait for randomised control trails which probably will never come."

23/
@CliveBeggs "It is [.] inconsistent to do so, given that FFP3s are already recommended for high consequences infectious diseases and aerosol generating procedures."

Adam then explains the
🧀Swiss Cheese model🧀 (sadly no cheese) vs. the hierarchy of controls.

24/
@CliveBeggs Recommendations:

💙Information on masks
💜Training for HCWs so they don't tell Clinically Vulnerable patients to remove masks [unless medically necessary].
💗HCWs to wear a mask or test if requested
💙Routine testing
💜Monitor CO2
💗Staggered appointments
💙Less crowding

25/
@CliveBeggs In the longer term...

Research to remove barriers and allow effective RPE in practice.

😷Why can't we make masks more comfortable?
💬Why can't we improve communication?

26/
@CliveBeggs CVF💙💜💗 are calling for the inquiry to recommend:

1. Review all DNACPRs since start of the pandemic
2. Review of the notes of all CEV
3. Psychological support for all affected

Decision support tools should only be used in the context of an overall clinical assessment.

27/
@CliveBeggs ⚖️ Equality Act ⚖️

Clinical vulnerability is a newly recognised issue that causes serious detriments across society but is not protected under the law.

"That is why we are asking the inquiry to consider recommending changes to the Equality Act"

28/

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Clinically Vulnerable Families 💙💜💗

Clinically Vulnerable Families 💙💜💗 Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @cv_cev

Nov 27
🚨 British Medical Association - closing

"aging estates meant that infection control measures could not always be fully implemented."
- Large open bays
- Inability to distance
- Lack of side rooms for isolating patients
- Lack of ventilation

1/
"The inquiry proceedings have laid bare the catastrophic consequences that are destined to be repeated without fundamental change."

2/
"healthcare workers were at higher risk of contracting Covid-19."

"The Health and Safety Executive [failed] to challenge adequacy of the IPC guidance, to act on concerns raised by [the BMA], and to ensure that employers compied with their health and safety responsibilities."

3/
Read 10 tweets
Nov 26
🚨 @cymru_inquiry Covid Bereaved🏴󠁧󠁢󠁷󠁬󠁳󠁿
Anne-Louise Marsh-Rees, Co-Leader.
Great witness!

🩺Symptoms were unclear
🛡Shielding comm confusing
⛔️Protect the NHS

Please do look at this whole 🧵
1/
No communication with the people who were affected. They have had to work hard to lobby for changes.

2/
IPC guidelines weren't questioned when there was outbreak after outbreak.

Traffic lighting of wards for Covid+ patients and non Covid+ not adhered to.

3/
Read 7 tweets
Nov 16
Who will get a Covid booster in 2025? Far fewer than before...

The JCVI decision means that Clinically Vulnerable people u70 and who aren't immunosuppressed lose access.

“Cost-effectiveness” prioritised over protection.

NEW CONCERNING STUDY 👇

1/🧵 Adult eligibility  Adult eligibility should be based on the willingness-to-pay approach that is subject to procurement and delivery at a cost-effective price. The advice for universal vaccination from age 75 years is an example. JCVI has no role in the procurement or delivery of COVID-19 vaccines or any other vaccine.
Until now, Covid vaccine policy prioritised protecting 'at risk' groups.

Their approach focuses on “cost-effectiveness,” raising age thresholds. Not providing vaccine protection to younger Clinically Vulnerable. It’s a deeply worrying change.

This data may have been used.
2/ Fig. 3: Using data from the spring and autumn 2023 boosters and the 2023/24 winter wave of COVID-19, vaccine threshold prices stratified by age-group, risk-group and modelling approach.  We calculate the vaccine threshold price for the two time periods (top row: winter 2023/24; bottom row: spring 2023), 16 age groups (y-axis), three risk groups (panels) and five methodologies (red, dark-blue, light-blue, grey and black). Dots show the most likely value assuming £20,000 per QALY; when assuming £30,000 per QALY the extended bar-and-whisker plots show the 95%, 80% and 50% credible intervals co...
Younger Clinically Vulnerable people e.g. those with chronic heart failure, COPD, or diabetes could be excluded.

The study admits data for our group is limited, meaning the most at-risk could fall through the cracks.

*It is unclear if the study was used in decision-making.*

3/ Image
Read 17 tweets
Nov 10
🚨COVID INQUIRY ROUND UP (Wk 7)

Rosemary Gallagher MBE (Professional Lead for Infection Prevention and Control at the Royal College of Nursing) supported non-IP specialists e.g. aerosols experts "shaping guidance".

1/
"If Covid-19 was, in fact, airborne [.] it had implications for infection prevention and control guidance [.]"

"What was the NHS estate going to do to make it safe?"

"Improving the ventilation or looking at other technologies [.]."
2/
Next, possibly the best quote from Baroness Hallett this week:

3/
Read 10 tweets
Nov 6
Questioning Jenny Harries is "like pinning jelly to a wall", according to one CVF💙💜💗 member!

Thanks @AdamWagner1 for trying!
🧱🍮🔨

"People should be enabled to wear what they wish, as long as it's safe."
"FRSMs recommended because of issues of handling and fit-testing."
1/
Would you agree that FFP3 masks, if fit-tested, mean that the Clinically Vulnerable patient *is* safer, they don't just "feel safer"[.]?

🔨 'Hierarchy of controls'
🍮 Don't want to tell people - no harm
🧱 Difference feeling safe and effective PPE. Equally support FRSM

2/
"The evidence of effectiveness between FFP3s and FRSMs in clinical use is very, very small."

3/
Read 6 tweets
Oct 29
♻️ RETWEET if you think that Clinically Vulnerable people (those at the most risk from Covid) were economically impacted by the pandemic. ♻️

The @covidinquiryuk rejected us for this module, leaving us with * NO VOICE * !!!!

1/ Image
Image
Clinically Vulnerable (CV) people and their families faced, and in many cases continue to face, enormous economic strain.

For many, shielding was the only safe option, but it came with serious costs—lost jobs, reduced hours, and in many cases, the inability to work at all.

2/ 82%  of Clinically Vulnerable households lost work or retired early due to high Covid risks  [Poll of 364 Clinically Vulnerable people March 2024]  Clinically Vulnerable Families
Without protections, CV people and their families couldn’t simply return to “business as usual” as measures lifted.

Many continued shielding, at their own expense, as they were unable to risk exposure. For some, this meant months / even years out of the workforce.

3/ #CVVoices
Read 9 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us!

:(