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More from @froglet80

Froglet

@froglet80

Dec 9

gofundme.com/SaveFroglet80
Hi, I’m Froglet. I’m a 44 year old disabled unhoused female in Texas with Long Covid & resulting immunodeficiency. I’m crowdfunding for medical tests & treatments that might help me manage my illness instead of doing this to survive month to month. Please, if you don’t read any further, just take a moment to share this campaign on your social networks before you go. 🧵

I contracted SARS-CoV-2 in February 2020, and never fully recovered. I have since been diagnosed with persistent CD4 specific lymphopenia - which is the same type of immune deficiency seen in HIV/AIDS. I’ve experienced significant neurocognitive decline, changes in vision and hearing, dysautonomia, and opportunistic infections including reactivated cytomegalovirus, candidiasis, and p jirovecii pneumonia, as well as ongoing GI and dermatological symptoms, weight loss, night sweats, pain, and fatigue. 🧵

There’s still no test for Long Covid, or approved treatments. I’ve been unable to work regularly since becoming ill nearly five years ago, but don’t receive any form of government assistance - nor do I qualify for insurance thru the ACA, and my state has chosen not to expand Medicaid. I have to pay out of pocket for the little medical care I can access, and my health continues to decline.
🧵

Read 11 tweets

Froglet

@froglet80

Dec 5

Remember how in the eighties, everyone mistook the fact that the first cluster of patients with AIDS were all gay men, to mean that only gay men could get it, so they didn't connect the dots when people getting blood transfusions fell ill until a few more years went by? 🧵

Thats exactly what i hear all over again when i see people trying to find any commonality between people with long covid other than the fucking obvious one that is right there in the name: covid. thats it, the answer is covid, its not even a mystery this time. 🧵

long covid isn't caused by latent viral infections, hereditary illnesses, age, weight, comorbidities, etc. Just like aids isn't caused by being gay, or injecting drugs, or being from haiti (why the fuck is haitian bashing popular again also btw?) 🧵

Read 19 tweets

Froglet

@froglet80

Nov 28

I have masked in indoor public spaces for 5 years. Today, with a cold front bearing down on us and in desperate need to wash my winter clothes - and thankfully with funds to do so because of a generous donor - I found myself in an impossible situation 🧵

I spent over two hours attempting to get a ride via @lyft @AskLyft, from a popular business parking lot near my camp. FOUR drivers waited until they pulled up, to cancel my ride. In each instance, I had let them know in the driver note, I am not ill but immune compromised, my mask protects everyone. 🧵

@lyft @AskLyft The first one actually responded with a mask emoji, leading me to believe it would be fine & maybe even be lucky enough that they would mask also 🤞
🧵

Read 23 tweets

Froglet

@froglet80

Nov 15

How we frame public discourse is important. Failure to do so accurately, legitimizes absurd views that cannot be debated because they have no basis in rationality. 🧵

Let's examine using a benign example: What color is the sky?
🧵

Well, as it turns out, the question doesn't adequately address differences in weather or time of day, so while most would automatically say "blue," there are ranges of technically correct answers.
🧵

Read 17 tweets

Froglet

@froglet80

Oct 8

Have you seen messages like this on your crowdfunding / mutual aid posts? They're all scams. Read on to learn how it works.

Those are bots, that search for keywords, and post automated messages. Thats why they usually appear within minutes of making the post. If you interact with them in any way, you'll soon receive messages like this, that give the game away.

Its a pyramid scheme. They want you to join their club that promises huge mutual aid returns. The catch is, you have to pay to play. They give you a list of fundraisers you have to donate to, and a script to use to promote the scheme.

Read 21 tweets

Froglet

@froglet80

Sep 21

Statement to @NIH RECOVER-TLC

Hello, my name is Froglet Taylor and I am a 44 year old female from Houston, Texas. I have had Long Covid for 4.5 years and am very disturbed that the majority of research to this point has been repetitive observational studies as millions of people like myself continue to get sicker with each passing day & are unable to access financial support because there is no point of care test for long covid.

1/

The first time I had Covid was in February 2020, when health department officials in Houston were telling us the virus hadn't been detected here and healthcare workers need masks for other things so we shouldn't use them. Untold numbers of people were not only infected as a result of these lies, but also denied timely testing which now limits their ability to obtain treatment or be included in research.

2/

I've since been diagnosed with persistent cd4 lymphopenia, which is the exact type of immune deficiency seen in HIV/AIDS. One of many reinfections with SARS-CoV-2 caused my CD4 count to plummet to 84, and as a result I developed candidiasis, p. jirovecii pnuemonia, and reactivated CMV. I've since had several other opportunistic infections, many also from the list of those known as "AIDS Defining Conditions."

3/

Read 10 tweets

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