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Froglet 🐸 Profile picture
Froglet 🐸
@froglet80
♿⛺🏳️‍🌈♀️ #LongCovid 2020 #CAIDS 2021 ☕https://t.co/Au7ALpE9YG 💸https://t.co/plwOkyuzyL ‼️no minors
Oct 11 • 14 tweets • 5 min read
Lots of interesting papers have dropped in a short period of time. But no one is connecting the dots. I want to discuss that, but lets start with this paper about large data sets, perspectives, and elephants. Because it sums up the problem well. 1️⃣

researchgate.net/figure/The-bli…Image Take, for example, this preprint on pediatric long covid that found dysregulation of myeloid compartment, T, B, and NK cells in kids. They frame it as specific to kids, different from that seen in adults.



But they ignore the elephant in the room. 2️⃣doi.org/10.1101/2025.0…
Aug 24 • 17 tweets • 5 min read
This is especially poignant to write, given my current situation. Honestly, I'm not sure what I can say that the article didn't already lay out, except that it's about damn time - and I fear it will come too late for too many of us.
1️⃣ I'm also acutely aware that Michael and many others who follow me have been in this same position before - a novel virus, immune dysfunction, no treatment and the world at large doesn't give a shit even as people are dying.
2️⃣
Jul 30 • 19 tweets • 4 min read
Its related, but complicated. We know a lot more about the virus and how it causes damage over time than we did in the early days. Also, U=U & TasP are now important factors.

But it wasn't always this way. Time for history lessons... and a discussion of why it matters

1️⃣ First, a brief reminder that the illness that came to be called AIDS was first identified in June 1981 & the first treatment - AZT - wasn't approved until March 1987. Originally a cancer drug, early adaptations for HIV used too-high doses and had horrific side effects.

2️⃣
Jul 29 • 12 tweets • 3 min read
so, here's the shit we need to talk about.

EVERYONE HAS LATENT VIRAL INFECTIONS FROM CHILDHOOD.

everyone. fully vaxxed or fully unvaxxed. you have at least a few.

your t cells keep them in check usually.

SARS-CoV-2 infection kills t cells & can allow reactivation

1️⃣ The fake debate about whether or not immune dysregulation persists, which is falsely framed with all the wrong terminology to keep us confused, doesn't actually even matter.

It is settled science that SARS-CoV-2 causes acute lymphopenia in hospitalized patients.

2️⃣
Jun 14 • 14 tweets • 4 min read
I've written ad nauseum about my journey thru this long covid nightmare for over five years now. You're probably all sick of hearing about it by now, but I figure you stick around because you think I'll find the answers somehow. And maybe I did, but you ain't gonna like it. 🧵 For those few that don't know - I contracted SARS-CoV-2 (herein, sars2) early in 2020 and subsequently developed persistent cd4 specific lymphopenia (the same type of immune deficiency seen in advanced HIV/AIDS) 🧵
May 11 • 14 tweets • 3 min read
I know everyone wants quick answers for #LongCovid but the thing is, they don't exist. Not for us, and not for #Virology or #Immunology in general. And when you try to force it, you run the risk of making things worse and not being able to determine the cause. 🧵 It's horrific and inexcuseable that the healthcare system, governments, and researchers have left us in the position of trying to live long enough for them to unass their heads and help us, but here we are. Thing is, that means we have to do it smart. 🧵
May 4 • 11 tweets • 2 min read
Hear me out. Everything is allergies now, right? Well, in a way, the deniers are actually correct. Most people are allergic to viruses, and can become very ill from contact with them. We should use this technicality to its fullest potential. 🧵 First, the background. What are "allergies?" Allergies are an immune response to a foreign substance the immune system perceives as a threat.That is, when your immune cells encounter pollen, for example, they perceive it as a threat and mount an attack as they would a virus 🧵
Apr 24 • 13 tweets • 3 min read
Luc Montagnier was a Nobel Prize recipient for his work in isolating HIV, but early in the pandemic when he demonstrated genetic sequences of HIV appearing in the genome of SARS-CoV-2 he was forced to withdraw his paper under political pressure. 🧵 Our community hasn't wanted to talk about what that potentially means, even in the face of massive amounts of data suggesting not only that they "may have function," but also that this seems to be the only part of SARSCoV2 which persists-independent of the rest of the virus. 🧵
Apr 22 • 9 tweets • 2 min read
Millions of us contracted SARS-CoV-2 in early 2020, a full year before any of the vaccines existed, and are still very ill. Since those don't have whole virus, but only spike? There is only one way they could possibly be the same illness. 🧵 If the vaccines are actually causing the same illness as Long Covid, then the spikey bits alone must be responsible. That's basic logic. And the only way that could be the case in Long Covid, years after infection, is if its replicating independently. 🧵
Apr 21 • 12 tweets • 2 min read
Imagine getting a virus you were told was a simple respiratory virus - "like the common cold" & "mild for most people," and five yeas later you are still sick, still disabled, and dying in a tent from so-called "AIDS defining infections." That is my reality. 🧵 I got SARS-CoV-2 in February, 2020. That was a full year before the vaccines existed, for the timeline-challenged. The virus did this to me, not the vaccine. 🧵
Apr 19 • 9 tweets • 3 min read
Every time I think stuff can't get any weirder, I'm promptly proven wrong by politics. Unfortunately, I haven't had the same luck with science. The universe has a helluva sense of humor.

Check out the update... then read on 🧵covid.gov The Wayback Machine records this version of Covid.Gov from April 10, 2025 - just over a week ago.
web.archive.org/web/2025041023…🧵
Apr 18 • 12 tweets • 3 min read
I've been trying to figure out how to even write this for a while, but its hard because what I need to write about is most of the reason that I can't. Its not "brain fog;" I don't have clouds in my head. Its the fucking virus. 🧵 Both the one no one wants to talk about, and the ones that actually do the killing once another one takes down the t cell sentries. The ones we all carry but ... no one wants to talk about. 🧵
Apr 2 • 9 tweets • 3 min read
this is completely false. we don't think the science abandoned us; we know that society abandoned science - and us. this derogatory headline is actually proof of it. read on to see why - and if you are able, request community note on the OP below 🧵 SARS-CoV-2 causes immune dysfunction. This is not speculation; I made an entire thread linking to scientific studies published in peer reviewed academic journals showing this. You can read it here.
Mar 16 • 32 tweets • 8 min read
I had hoped by this second #LongCovidAwarenessDay, as I wouldn’t need to write one of these posts. That by now, we'd be in the "living with it" stage in the true sense of that phrase - but I've been sick for 1,857 days.
#LongCovidAwarenessDay2025
#LCAwareness
#LongCovid
#LongCovidAwareness On my first #Covidversary, I wrote about the simultaneous terror and hope. I'd just heard the first whispers of possible persistence - in a type of immune cell, no less. The parallels to another virus were chilling.
#LongCovidAwarenessDay2025
Jan 30 • 4 tweets • 2 min read
i feel like a goddamn truther but i think i should probably put this here for future reference and i hate that i think that Image and these 🤦🤦🤦
im just tryin to read the news and catch up i swear 😭🫣 Image
Image
Jan 30 • 8 tweets • 2 min read
i do not and will not endorse a candidate that is an hiv minimizer/denialist no matter what he promises "us." and that is why i dont really consider this "my community." Neither my support nor my silence can be bought. Not for empty promises of vague focuses, nor even for guaranteed and badly needed funding. I DO NOT WANT YOUR HELP if the cost is harm to the HIV community. And I will NOT remain silent, I will NOT endorse you, while you harm them.
Jan 17 • 33 tweets • 8 min read
Obviously, HIV and SARS-COV-2 are different viruses. That's why they have different names, after all. But they do share many pathological mechanisms, and that's been known for literally years now. 🧵 SARS-CoV-2 and HIV-1: So Different yet so Alike. Immune Response at the Cellular and Molecular Level
pmc.ncbi.nlm.nih.gov/articles/PMC96…
Dec 13, 2024 • 32 tweets • 8 min read
Please help me fund the testing I need in a quest to figure out how to manage Long Covid. Every share & donation helps. Thank You 🙏

•gofundme.com/SaveFroglet80
•ko-fi.com/froglet80
•cash.app/froglet80
•venmo.com/u/froglet80
•paypal.me/froglet80 12/13 #FrogletAid
🚀BOOST 🧵thread
🗨️COMMENT #MutualAid #Crowdfunding requests
❤️ LIKE
🔄 RETWEET
💲If able, DONATE to meet a need!
#HelpFolksLive2024
#MutualAidBoost
#CommunityCare
Dec 11, 2024 • 15 tweets • 6 min read
There's been a lot of posts lately, remembering a weirdly romanticized version of the political activism spurred by the AIDS crisis in the 1980s and 1990s. Everyone likes to talk about Larry Kramer and ACT UP, but how many actually remember the rest of the story? 🧵 banner: aids - we need research not hysteria Behind the political activism, there were real people really dying from a real illness while the rest of the world really just ignored it. Kinda like today, actually - but weirdly no one likes to discuss this part of history. 🧵 die-in demonstration during aids crisis
Dec 10, 2024 • 53 tweets • 11 min read
12/10 #FrogletAid #CommunityCare Thread

Drop your #MutualAid requests & #Crowdfunding links in the comments on *this* thread

LIKE & SHARE

-- If able, please donate to those in need! --

#MutualAidBoost
#HelpFolksLive2024

Dec 9, 2024 • 11 tweets • 5 min read
gofundme.com/SaveFroglet80
Hi, I’m Froglet. I’m a 44 year old disabled unhoused female in Texas with Long Covid & resulting immunodeficiency. I’m crowdfunding for medical tests & treatments that might help me manage my illness instead of doing this to survive month to month. Please, if you don’t read any further, just take a moment to share this campaign on your social networks before you go. 🧵 I contracted SARS-CoV-2 in February 2020, and never fully recovered. I have since been diagnosed with persistent CD4 specific lymphopenia - which is the same type of immune deficiency seen in HIV/AIDS. I’ve experienced significant neurocognitive decline, changes in vision and hearing, dysautonomia, and opportunistic infections including reactivated cytomegalovirus, candidiasis, and p jirovecii pneumonia, as well as ongoing GI and dermatological symptoms, weight loss, night sweats, pain, and fatigue. 🧵labs from january 2022