Share this page!

Enter URL or ID to Unroll

You can paste full URL like: https://x.com/threadreaderapp/status/1644127596119195649
or just the ID like: 1644127596119195649

How to get URL link on X (Twitter) App

  1. On the Twitter thread, click on or icon on the bottom
  2. Click again on or Share Via icon
  3. Click on Copy Link to Tweet
  4. Paste it above and click "Unroll Thread"!
  5. More info at Twitter Help
Naomi Harvey PhD #WearAMask Profile picture
@Naomi_D_Harvey
Jan 16 • 3 tweets • 2 min read • Read on X
An off label medication list has been compiled for cover from the Austrian Health Insurance Fund for ME/CFS and Post Covid Sydrome (long Covid).

I’ve used ChatGPT to translate them in the replies below this post in case it helps anyone else 🧵
Important: The medications listed are off-label for these indications. This means that thorough patient education and consent for therapy are required. As usual, attention must be paid to interactions and contraindications. According to recent literature, these medications are very promising and are already frequently used successfully for symptom improvement and relief: 1. Disturbed Sleep/Wake Rhythm: • a) Melatonin (extended-release, e.g., Circadin 2-4mg)
2. Symptoms of Mast Cell Activation (MCAS) or related syndromes like mast cell hyperactivity in the context of PAIS and ME/CFS, particularly regarding tachycardia: • a) H1 and H2 blockers (e.g., Desloratadine, Cetirizine, Dibondrin, Atarax, Famotidine, Cimetidine, Rupatadine) • b) Ketotifen, Cromoglicic acid 3. Postural Tachycardia Syndrome (PoTS) confirmed via Schellong Test/Tilt Table Test in the context of PAIS and ME/CFS, particularly regarding tachycardia: • a) (Cardioselective) Beta-blockers, such as Nebivolol • b) Ivabradine
4. Orthostatic Intolerance/PoTS confirmed via Schellong Test/Tilt Table Test in PAIS and ME/CFS: • a) Mestinon - Magistral prescription with 10mg or "standard" with 60mg • b) Midodrine (Gutron) • c) Fludrocortisone (Astonin H) 5. Endothelial dysfunction, increased proBNP, prevention of coronary artery disease (CAD) and post-exertional malaise (PEM) in PAIS and ME/CFS: • a) Statins, such as Atorvastatin 10mg • b) Magnosolv • c) Dioscomb
6. Endothelial dysfunction, microthrombi, circulation disorders in PAIS and ME/ CFS: • a) TASS (50mg), Sulodexide, Clopidogrel • b) Cerebokan 80mg
7. Cognitive dysfunction (suspected neuroinflammation) in PAIS and ME/CFS: • a) Low-dose Naltrexone (Magistral prescription 0.5mg to 5mg) • b) Low-dose Aripiprazole (Magistral prescription 0.25mg to 2mg) • c) Fluvoxamine (also for depressive and obsessive thoughts) • d) Guanfacine + N- Acetylcysteine Version: 2025-01-15 Contact: sekre-md@oegk.at

• • •

Missing some Tweet in this thread? You can try to force a refresh
　

Keep Current with Naomi Harvey PhD #WearAMask

Naomi Harvey PhD #WearAMask Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @Naomi_D_Harvey

Naomi Harvey PhD #WearAMask Profile picture
Jan 2
@BocaHudson @SouthwestAir @FAANews @FlyTPA @FoxNews @cnnbrk @MarkWilsonTV Brian, that’s completely normal. Most wheelchair users can walk for short distances, maybe just a few steps, but they can standup and get out of the chair. We’re not ‘wheelchair bound’. It’s always been that way, but people assume incorrectly that wheelchair users can’t stand up.
@BocaHudson @SouthwestAir @FAANews @FlyTPA @FoxNews @cnnbrk @MarkWilsonTV I can walk between rooms in my house, so I can stand up and walk to a chair as well, but I can’t walk more than 50m. I need my wheelchair to get anywhere outside of the house. I am not strong enough to propel myself either, I need someone to push it. Please delete your tweet.
@BocaHudson @SouthwestAir @FAANews @FlyTPA @FoxNews @cnnbrk @MarkWilsonTV The people in this picture (whose privacy you have violated by the way) appear to be mostly elderly. It’s not at all surprising that elderly people may have disabilities and health problems that prevent them walking through the whole airport.
Read 4 tweets
Naomi Harvey PhD #WearAMask Profile picture
Dec 30, 2024
@Bettje37 @SasBoekenwurm Being upright (even sat) can be a form of stress on the body. I can only sit upright for certain periods of time. But I don’t rest in bed unless it’s absolutely essential. I lean on my side on the sofa, reclined so not flat but not upright, legs up.
@Bettje37 @SasBoekenwurm That works for me but not everyone, some have to be completely flat for extended periods of time.

But if you had covid recently, you will be depleted in various things, glutathione especially and often zinc, B12, taurine etc,
@Bettje37 @SasBoekenwurm I’d focus on getting glutathione levels up (can either take Liposomal glutathione or the cheaper option is to take glycine + NAC, but in both cases start with v low doses and build up slowly as they have sulfur in which can upset the gut). B vitamins, minerals like zinc…
Read 7 tweets
Naomi Harvey PhD #WearAMask Profile picture
Nov 26, 2024
I’ve often tried to make clear here how important choline is for health.

Almost none of us get enough of it by diet alone, and it is so crucial for so many bodily systems, from cells to liver & brain health.

Primarily found in egg yolks 🍳 make sure you get your choline!
⬇️
x.com/naomi_d_harvey… x.com/naomi_d_harvey…
Read 5 tweets
Naomi Harvey PhD #WearAMask Profile picture
Nov 18, 2024
“Rest didn’t help me, I rested for years and only gained more function when I started moving more again”

This is a common opinion ion encountered amongst pwME who have seen some functional gains. I would argue however that this perspective comes from a logical fallacy.
When we are judging what happens ourselves over time, we cannot be our own control.

In other words, we can do one thing, and cannot know what would have happened if we’d done differently.

This sort of thing means people often think something didn’t work when actually it did.
An example is the lockdowns in 2020. The modelling predicted mass casualties and deaths if we didn’t lock down.

So we did. And guess what? We didn’t reach the level of mass deaths reported - because we locked down.
Read 16 tweets
Naomi Harvey PhD #WearAMask Profile picture
Sep 25, 2024
Dr Melvin Ramsay was one of the 1st advocates for #MEcfs who defined the disease based on 3 features proven today: 1) muscle fatiguability after minimal exertion + a delay in restoration of muscle power (2) cerebral dysfunction, & (3) impaired circulation
en.m.wikipedia.org/wiki/Melvin_Ra…
Dr Ramsay advocated for use of objective testing with hand grip strength measurement on consecutive days to ascertain muscle weakness and a worse performance on day 2.

This test is simple, cheap, and accessible to most of us.

He was measuring PEM before it had the name.
His method of repeated hand grip testing has been validated in tests over and again.

Even recently, being proven as a marker of disability severity on both patients with ‘original’ ME and post-Covid ME #LongCovid

medrxiv.org/content/10.110…
Read 6 tweets
Naomi Harvey PhD #WearAMask Profile picture
Sep 24, 2024
What can be done for a person in the UK if they’re bedbound with severe ME but end up homeless?

Police/authorities don’t take it seriously when disabled people are abused by neglect.

But if someone who cannot care for themselves is pushed out of a house, where do they go?
There are people like this all over the world.

There is, to my awareness, no service, organisation or charity that is there to help disabled people escape abuse or find homes when they need constant care & become homeless.

They can’t go to standard shelters.
I know of people in four countries right now who are at threat of this, in various stages of severity with ME. There will be thousands, especially with other disabilities considered.

One is in the UK, her account is private, but she is being threatened with homelessness.
Read 5 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us!

Send Email!

:(