Clinically Vulnerable Families πŸ’™πŸ’œπŸ’— Profile picture
Jan 17, 2025 β€’ 21 tweets β€’ 6 min read β€’ Read on X
πŸ’₯Clinically Vulnerable Families πŸ’₯

Yesterday, @lara_wong, took the stand as founder and leader of CVF.
**Sorry for the delay!**

- New risks posed by Covid-19
- We need to be recognised as an equality group.

1/ FOLLOW THIS THREAD
Clinically Vulnerable people were, and are still, being let down.

2/
The lack of infection prevention and control in vaccination centres for an airborne virus was very concerning.

3/
People who had multiple conditions or rare diseases were not in clearly defined groups and had to fight for their own eligibility.

4/
Good examples of vaccination centres:

πŸ’™ Drive through
πŸ’œ Tented (very well ventilated)

5/
People were never informed on how to reduce their risks using better, close fitting masks such as FFP3 or FFP2s.

Some people were asked to remove better masks.
6/
Third Primary doses.

These were hugely problematic, because people were often aware that they were eligible. They also had to prove that they did qualify and they were not told how to do this.

7/
Problems with the recording of doses in the NHS computer system.

8/
Therapeutics (antivirals)

Hugo Keith KC, asked about issues with the range of antivirals available.

9/
There was a need for different antiviral treatments.

10/
The importance of Evusheld and the impact on the severely immunosuppressed.

The consequence of not protecting them was phenomenal:

πŸ’” Mental health
πŸ’” Social connections
πŸ’” Ability to re-engage with the rest of the world

11/
The lack of the UK government's action left severely immunosuppressed people essentially locked up without any route out.

12/
People who are severely immunosuppressed have a greater reliance on antiviral treatments.

13/
Severely immunosuppressed people are invited twice a year in order to improve their immune response, and the vaccines are beneficial for the majority.

14/
Hugo Keith KC lays out concern around antiviral clinical trials.

15/
Concerns that some people were invited on clinical trials with a 50% chance of treatment when they already had been given emergency approvals.

16/
The importance of children's vaccines to Clinically Vulnerable families.

17/
It was incredibly difficult for children in Clinically Vulnerable families who were left waiting for their vaccines because they were not priortised.

18/
Misinformation / disinformation

The wider community - there is a clear knock on from people not taking up their vaccines if it is undermined.

Clinically Vulnerable people are not immune to these messages.

19/
CVF do appreciate how accessible the Covid Inquiry venue is and the efforts of inquiry staff to impleme measures to reduce the risks for Clinically Vulnerable people who attend.

20/
If you can, please do support our work.

Many thanks! πŸ’•

21/
crowdfunder.co.uk/p/clinically-v…

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More from @cv_cev

Apr 30
πŸ”Š Calling all UK COβ‚‚ monitor owners
AND any helpful UK voters

PLEASE REPOST ♻️ ❀️ and tag others!

πŸ™ Can you *please* help us at the local elections next Thursday?
- Even if you don't own one, we still need your help!

1/🧡
<Read our new article - next post> HELP AUDIT  VENTILATION  FOR OUR ACCESSIBILITY SURVEY OF  THE LOCAL ELECTIONS  YOUR VOICE.  CLEAN AIR.  BETTER SPACES.  CO  SPOT IT.  Use a COβ‚‚ monitor to check air quality.  RECORD IT.  Share what you find.  Help make public spaces healthier for everyone.  COβ‚‚  1113  PPM  21  TOGETHER,  WE CAN BREATHE BETTER!  Clinically Vulnerable Families
Last year, your evidence helped us change the Electoral Commission guidance for assisting Clinically Vulnerable voters - which has improved safety for everyone.

This year, we NEED YOUR HELP - to audit whether the guidance has worked. πŸ™

2/
Read more πŸ‘‡
clinicallyvulnerable.org/post/2026-loca…
1. 🌬️ BRING YOUR COβ‚‚ MONITOR
- if you have one!

Take the indoor reading of COβ‚‚ (in ppm) ideally at head height, 50cm away from people, leaving over 30 seconds to settle.

Remember the number... you need it later!

3/ #MyMaskMyVote Image of a CO2 monitor. Signage for polling station visible behind.  However, this was taken *outside* of a polling station immediately after being inside. This is not how to measure CO2! It is for illustrative purposes only.
Read 7 tweets
Apr 10
Let this sink in...

πŸš‘ HEALTHY adults vaccinated against Covid Sept - Dec 2025 reduced their likelihood of emergency and urgent care visits by 50%.

🏨 Hospitalisations were reduced by 55%

(compared with those not vaccinated)
1/🧡 Image
The UK has not shared data from 2025. But for CV people it is much worse:

2024 JCVI data showed that vaccines reduced hospitalisations for Clinically Vulnerable people by 45%.

They published it!
...then removed millions with health conditions from eligibility!

2/ Image
45% may sound lower.
But if your baseline is 2-12x more likely to be hospitalised from Covid, a 45% reduction in risk prevents 2-12x more hospitalisations per dose.

The JCVI removed high-risk groups on cost-effectiveness grounds.
But the cost-effectiveness case is stronger!

3/
Read 12 tweets
Mar 29
The government just published its Pandemic Preparedness Strategy.

TLDR: Some welcome commitments inc. on ventilation. But Clinically Vulnerable people are still not clearly defined or automatically protected, and the prioritisation framework won't arrive until 2027.

1/🧡 Department of Health & Social Care  Pandemic Preparedness Strategy: building our capabilities  Published 25 March 2026
What's new?

Published 25 March 2026, this is the UK's first major pandemic strategy since Covid.

It covers all 4 nations, sets out 12 principles and detailed action plans to 2030, backed by around Β£1 billion of investment.

But what about the detail...?

2/
They know another pandemic is coming... and epidemics are also a risk.

The question is:
Will Clinically Vulnerable families be protected when it does?

- This document raises the question more than it answers it.

3/ While pandemics of this scale are rare, major epidemics are far more common and milder  pandemics still cause significant damage. A future pandemic is a certainty - we just don’t  know when it will happen or what will cause it. It would most likely be caused by a virus,  though it could also be caused by bacteria or fungi. It could be spread by one or more of  the routes of infection transmission, with the 5 main transmission routes being: β€’ respiratory β€’ oral β€’ blood or sexual β€’ touch 1 Scientific Advisory Group for Emergencies and DHSC’s DHSC and ONS: direct and indirect health impacts  o...
Read 20 tweets
Mar 25
πŸ“‰ Kent MenB outbreak

⚠️East Kent Trust failed to report their first case for 2 days⚠️

Here's what you need to know.
TLDR: Peaked 13th March. No new cases since - with reporting delays, but that's even better news than it sounds.
1/🧡 πŸ‘‡ @laurabundock @SkyNews
THE OUTBREAK IS DECLINING but understates how well that's going. πŸ“‰

The earliest case became unwell on 9th March, with the latest on 16th March, and the peak was 13th March.

2/
Cases take time to be confirmed and reported.

The fact that nothing new has surfaced in the data as of 23rd March - despite the reporting lag - means the real-world situation is almost certainly better than the numbers show.

3/ Image of bar chart  Figure 2. Cases of invasive meningococcal disease in Kent outbreak, by case category, outbreak bacterial subtype: serotype P1.12-1,16-183, attendance at Club Chemistry, and date of onset (data as of 23 March 2026)  6  5-  4  Number of cases  3  2  1-  0  07 Mar  09 Mar  11 Mar  13 Mar  15 Mar  17 Mar  19 Mar  21 Mar  23 Mar  Date of onset  Confirmed outbreak strain  Confirmed  Probable  Attended Club Chemistry  Includes 17 Confirmed - outbreak strain and 3 Confirmed and 2 Probable case(s). Excludes 1 Probable case with missing date information.
Read 15 tweets
Mar 18
Meningitis
* Important thread for those who prefer balanced and factual information *

In order to understand risk we need to break down a few things....

🦠Risk from the bacteria
πŸ’™πŸ’œπŸ’— Individual risk
πŸŽ“ Environmental risks
1/
The Kent outbreak is predominantly MenB (Group B). This is a serious infection - and potentially an adapted strain - investigations are ongoing...

Bacterial meningitis is rare but more severe than viral, and up to 1 in 10 cases of bacterial meningitis in the UK is fatal.

2/
MenB isn't new. There are around 300 cases of MenB per year in the UK, even with vaccination programmes.

What's unusual is the cluster - multiple cases linked to a single location in a short window. It has now spread to a student at a second university in Canterbury, Kent.
3/
Read 9 tweets
Mar 5
UK COVID INQUIRY - CVFπŸ’™πŸ’œπŸ’—
@AdamWagner1 Closing Submissions

The Covid Inquiry has good ventilation protocols (as advised by CVF at the start of the Inquiry) including HEPA filters.

Under 1000ppm is therefore the safe threshold ( but without it would be under 800ppm).

1/
We need to understand airborne transmission in order to make all indoor environments safer for everyone, and especially for Clinically Vulnerable people.

2/
The need for Clinically Vulnerable people to have:

Safety
Support
& Status

3/
Read 14 tweets

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