Clinically Vulnerable Families ๐Ÿ’™๐Ÿ’œ๐Ÿ’— Profile picture
Sep 15, 2025 โ€ข 14 tweets โ€ข 5 min read โ€ข Read on X
๐Ÿ“ข Children and Young People Voices report about their pandemic experiences has been released today.

We would be interested in hearing your views. There is a chapter on Clinically Vulnerable families.

We have included screenshots below...

1/
They have recognised that children in CV families took on new caring responsibilities. Many have never been recognised or supported as "Young Carers".

2/ Weight of responsibility: Some children and young people took on responsibilities at  home during the pandemic. As well as carrying the load of practical tasks that needed to be done, such as looking after someone who was ill, taking care of siblings, or sanitising shopping for someone who was clinically vulnerable, some also felt the emotional weight of supporting their family through this time, particularly where people outside of the household could not come and help. Some were also affected by an awareness of the difficulties the adults were going through, including worsening mental hea...
Exposed to adult stress  Riley, aged 22, was living at home during the pandemic with their parents. This was a difficult time for the family because their mum was clinically vulnerable and their sibling, who had moved out, was struggling with an addiction. Living at such close quarters during lockdown - "like you're in a pressure cooker" - exposed them to the stress that their parents were going through and they described starting to share in this rather than feeling like a child any more. "Everyone felt very nervous. So then having that kind of like group worrying... I feel ...
There appears to be confusion in the report between disability (which is a mental or physical impairment) and clinical vulnerability (which are risk factors including health conditions, which puts someone at higher risk of poor outcomes and required shielding etc.).

3/ Heightened fear: Physically disabled children and young people and those with health  conditions, or in clinically vulnerable families, described their feelings of uncertainty, fear and anxiety about the risk of catching Covid-19 and the serious - and in some cases life threatening - implications this could have for them or their loved ones. Children and young people in secure settings also felt vulnerable and afraid of catching Covid-19 when sharing common spaces with other people during the pandemic. Experiencing bereavement during the pandemic could also lead to feelings of heightened fear.
Forgotten by others as a young shielder  Casey, aged 15, has a sibling who is clinically vulnerable. Casey described how she helped to protect her sibling during the pandemic, how hard it was to keep shielding when society opened up after the first lockdown and how she felt that her needs had been completely forgotten by those around her. She felt that people didn't seem to  15  2. Factors that shaped the pandemic  understand that young people were shielding too. "When we came out of [lockdown] but then we were still expected to shield... while everybody else was out and doing stuff, t...
Fear (or derivatives) is mentioned 67x
Anxiety 31x

These words are frequently used in relation to Clinically Vulnerable people or children in CV families - who were managing higher risks without appropriate airborne protections.

4/ 12 This case study reflects how one young person with caring responsibilities for her clinically vulnerable parent was affected by weight of responsibility and heightened fear during the pandemic.  Responsibility and fear looking after someone clinically vulnerable  Nicky, aged 21, described the pressure she felt during the pandemic when caring for her mum, who was clinically vulnerable following a transplant, and the "crippling fear" that she would get ill with Covid-19. With her older sibling living away from home and unable to visit, the responsibility fell solely to her. She d...
There is recognition that CV families faced difficulties when they were infected.

5/ โ˜ Isolating due to contracting Covid-19 was recalled as being difficult and lonely and when this occurred outside of lockdown, some were stressed about the knock-on effects of isolation, for example, missing exams and social events. Some also described feeling worried that they would infect their family members with Covid-19, who might then have worse symptoms. This was particularly acute for those in clinically vulnerable families (see Clinically vulnerable families).
CV / CEV children were worried about getting seriously ill.

6/ Those interviewed who were clinically vulnerable themselves, or had a health condition, described their feelings of anxiety and fear of catching the virus and the implications this could have for them. One child, who was diagnosed with Crohn's disease halfway through the pandemic, described how he viewed that period in two halves - with the first half being far more positive than the second, when the additional burden of having to be extra careful around Covid-19 led to feelings of anxiety about the chance of getting seriously ill from the virus.  "I was more strict with like the socia...
Additonal responsibilities for children in CV families.

7/ Weight of responsibility  22 Other sections in this report highlight how responsibility at home affected some children and young people during the pandemic (see Home and family and Clinically vulnerable families). As well as carrying the load of practical tasks, some also felt the emotional weight of supporting their family, particularly where people outside of the household could not come and help, which could affect wellbeing.
Children in CV families faced food insecurity.

8/ Food shopping while shielding could also be a challenge. Children and young people described their families finding it hard to get delivery slots for online shopping as well as experiencing difficulties with products being available. Going to the supermarket was hard, due to the risks of being out as well as the stress of queueing to get in or shelves being empty, but some households felt there was no choice. Some children and young people described food supplies at home being limited and having fewer snacks. Those who received food boxes 38 at home appreciated this support.  "There we...
CV families were left behind, while others moved on...

9/ It is notable that during lockdown some felt that "everyone was in the same boat" and did not have a reference point for what other families were doing. However, once restrictions eased for others, those interviewed described becoming more aware of what they still could not do and feeling more negatively about shielding requirements and the fact that they were more restricted than other people.  "When we came out of [lockdown] but then we were still expected to shield... while everybody else was out and doing stuff, they seemed to have forgotten about people who were shieldin...
Children in CV families were left to manage safety and faced bullying (discrimination).

10/ 14 Taking precautions when others were not was felt to be particularly tough on the return to school. Some children and young people felt conscious of wearing a mask, using hand sanitiser, or social distancing when others were not and found it upsetting having to justify this to others. One child recalled a school assembly to raise awareness around mask wearing and prevent bullying. However, another child described her experience of being bullied, including a distressing incident of being physically attacked by other pupils for wearing a mask, and felt that her school did not deal with this...
Children in CV households were locked out of education.

11/ 16 Some children and young people had to delay their return to school because the risks of catching Covid-19 were felt to be too high, and others went back but attended intermittently. In some cases, they asked their school to find a way for them to attend online, but were unsuccessful and had to resort to learning from home on their own, or in one case finding a fully online school. These children and young people described how excluded and unsupported they felt by their school and their local authority and how hard it was to be in dispute over their attendance.  "My mum kept me off b...
Long-term significant harms for their health, wellbeing, and education.
12/ Continuing impacts  Some of those interviewed highlighted ongoing impacts for them, affecting health, wellbeing, and education. Those who had been unable to return to secondary school after lockdowns described the ongoing impacts of having their education disrupted, including taking an extra year to complete secondary education, being disappointed in the grades they achieved, and feeling more limited in their options for further education.  "I couldn't get the grades that I wanted... Now I am in college later, way later than I'd like to be because I could be going into uni... but no I'...
The report has identified many serious impacts on children who were Clinically Vulnerable themselves or who lived in CV families.

13/ 4 Concluding remarks  1 These findings highlight how children and young people in clinically vulnerable families, or who were clinically vulnerable themselves, were affected by both practical and emotional challenges during the pandemic. The need to be diligent in taking precautions, and the ongoing worry of what might happen if someone at home caught Covid-19, meant that these children and young people could be affected both by weight of responsibility and heightened fear.  2 Children and young people in these circumstances were also affected by experiences of exclusion once restrictions e...
Please take a look at the full report and comment below.

Download here:


14/covid19.public-inquiry.uk/documents/inq0โ€ฆ

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More from @cv_cev

Jan 23
โš ๏ธโš ๏ธโš ๏ธ
Don't scroll past without ๐Ÿ’• + โ™ป๏ธ... ๐Ÿ™
๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡

- Can you help us to help you?

If you value our work at the Cโ—‹vid Inquiry and beyond, your continued support is vital.

1/ Clean Air & Safer Access  United Kingdom  St Thomas' Hospital  LEARN to LIVE with COVID  #CLEANAIR  HIGHLIGHTED: Another way to help CVF  Arrow to start your own crowdfunder.  Clinically Vulnerable Families CIC About the project owner  Aim  We urgently need your help to support families by improv providing vital support, and advocating for freedoms.  access,  ยฃ380  Target: ยฃ15,000  2%  4 supporters  42 days left  Donate  Share  Help them get starte  Your support makes a difference  Become a fundraiser for  Clean Air & Safer Access  Start fundraising for this cause โ†’
It is hard to explain how much effort has gone in over the past few years to raise understanding and awareness of issues amplified the emerge of Cโ—‹vid.

2/ #ProtectVulnerableProtesters  CVF logo Image of a masked protester
We have participated in NICE as stakeholders and the inquiry as Core Participants (as the only group representing Clinically Vulnerable people).

๐Ÿ“‰๐Ÿ“Š We have collected evidence as data and thousands of ๐Ÿ’ฌ impact statements from people.

3/ Clinically Vulnerable Families  represent you as a Stakeholder  in the NICE appraisals of Evusheld & Antivirals  We can:  NICE  Comment  Give Evidence  Consult on Draft Guidance
Clinically Vulnerable Families  have been designated as  Core Participants  in the UK Covid-19 Inquiry  We can:  Access Evidence  Make opening & closing statements  Ask the witnesses questions
Read 8 tweets
Jan 21
๐Ÿšจ'Can You Keep a Secret?'. The BBC response is below in full.

In short, it essentially says:
โ€œItโ€™s farcical, sorry we offended you, weโ€™ve noted your complaint.โ€

BUT if you (like us) aren't unhappy with this response, here is our next move... ๐Ÿงต

1/ Thank you for contacting us regarding episode one of 'Can You Keep a Secret?'  'Can You Keep a Secret?' is an adult, farcical and offbeat comedy that follows a couple, William and Debbie, who commit insurance fraud after William takes too much of his medication, is left unconscious, and is mistakenly declared dead.  There was never any intention to make light of infection control or to trivialise the real challenges faced by those affected by Covid-19, including those who are clinically vulnerable. In the scene in question, their son Harry has just learned that his father is still alive, an...
Their response dodges the point.
Because the problem really wasnโ€™t that โ€œI didnโ€™t get the jokeโ€.

The problem is who the joke is aimed at and what it encourages most people to laugh at.

2/ Image
If the punchline is โ€œPPE / precautions = anxious / ridiculousโ€ then people who still need precautions (Clinically Vulnerable people) are the collateral damage.

So it is not about โ€œoffenceโ€ but creating stigma.

3/ Image
Read 10 tweets
Jan 8
Hi @bbccomedy.

We need to talk about the new @Dawn_French โ€œcomedyโ€ series that implies that infection control is a joke.

This is a serious issue, particularly for Clinically Vulnerable people who remain at increased risk, and we are not laughing.
1/
In the first episode, a GP appears in a dramatic โ€œprotective outfitโ€ and face shield, and weโ€™re told itโ€™s because โ€œsince Covidโ€ theyโ€™ve developed โ€œvery, very, very bad health anxiety.โ€

2/ Image of doctor in white coveralls, gloves and a face shield pulling a face and grabbing the sides of the face shield whilst failing to examine a patient effectively.
Then the doctor refuses to get close to the patient, barely touches a wrist, and incorrectly declares them dead.

It invites audiences to mock precautions (during the current flu wave) and suggests that doctors who take measures are less competent.

3/ The doctor briefly grabs the patient's wrist...
Before rapidly pulling their hand away and dropping their arm. Failing to take a pulse, but then declaring the patient dead.
Read 11 tweets
Dec 8, 2025
๐Ÿฅณ This is a HUGE win for CVF!

- Safe access to public buildings is a right!

As a consequence of our advocacy, national voting guidance has been updated to:
โœ… Improve ventilation
โœ… Add air filters
โœ… โ€œSee a mask, wear a maskโ€

* VERY IMPORTANT THREAD *
PLEASE SHARE!
1/ Support for clinically vulnerable electors - alongside increasing ventilation of the room either through opening windows or doors or using HEPA filters where windows or doors cannot be kept open, you can ensure face masks are provided for polling station staff to use (using see a mask, wear a mask as a basis) and promote the use of social distancing when interacting with clinically vulnerable voters. Your staff training should cover how you can offer to conduct photographic ID checks for mask wearers, including whether checks could be conducted outside for these voters if photographic ID is...
6 years since Covid emerged, we are finally making important changes... thanks to your help!

The new guidance not only recognises our needs - due to heightened health risks - but also the risks posed by mask removal.

2/ polling station staff not having awareness of health risks when asking a clinically vulnerable voter to remove a face mask in order to check photographic ID  The Electoralย Commission
Why is this so important?

- It is the first national guidance to address our issues directly.... and it sets an important precedent that we plan to build on!

3/ Read more:
clinicallyvulnerable.org/post/how-cliniโ€ฆ
Read 7 tweets
Dec 3, 2025
A letter just landed on Baroness Hallettโ€™s desk from CATA (Covid Airborne Transmission Alliance).

If you are a patient, an NHS worker, or Clinically Vulnerable... or you want to see safety measures updated - you need to see this!

1/
The Covid Inquiry is there to help us to learn lessons and change how we plan for pandemics.

But, NHS England quietly published a strategy (July '24) that says:

it will not be possible to halt the spread of a new pandemic virus, and it would be a waste... to attempt to do so
2/ See Appendix 5  https://www.england.nhs.uk/long-read/framework-for-managing-the-response-to-pandemic-diseases/#appendix-5-planning-assumptions
That clashes with Hallettโ€™s recommendation:

"risk assessment that moves away... reasonable worst-case scenarios towards... a wider range of scenarios"

But their plan assumes mass infection is inevitable and acceptable.

For some, it isnโ€™t survivable!
3/
Read 11 tweets
Nov 8, 2025
๐Ÿงต This autumn the UKHSA is rightly worried, as 'flu is a real risk...

TLDR:
Clinically Vulnerable people ALL need 'flu vaccines + antivirals this year (if symptomatic or exposed) + confused infection control guidance.

If you are Clinically Vulnerable, please read on...

1/ Graph showing the early rise of flu in the UK.
This year's strains aren't looking good:

The infections have started earlier.
A(H3N2) strains are dominant - and linked to worse outcomes.
A shifted strain (slightly different to vaccines) is also doing the rounds.

2/ Summary:  Influenza is now circulating in the community with earlier than usual onset of activity in the 2025 to 2026 season, and with an A(H3N2) drifted strain (K, also known as J.2.4.1) predominating  A(H3N2) predominance is associated with higher morbidity and mortality, particularly in the elderly, than when A(H1N1) predominates  All eligible groups should be encouraged to get vaccinated with the 2025 to 2026 seasonal influenza vaccine as soon as possible  Prompt antiviral post exposure prophylaxis and treatment for seasonal influenza should be offered to eligible groups  Antivirals gui...
If you have been invited for a vaccine, or live with a Clinically Vulnerable person (but don't qualify) please consider getting a vaccine - they can be as cheap as ยฃ9.95.

Everyone benefits from 'flu vaccines and children (up to 16) are offered them for free in school.

3/ Image of a banner outside a shop. A pharmacist is on the picture. She is has black straight hair, brown eyes, a big smile and is wearing a cream suit jacket with a staff badge.  Superdrug  *REMINDER!!!  IT'S FLU VACCINATION SEASON  Flu Jab Service provided by our healthcare professionals  Noyne Pharmacist  MEMBER PRICE ยฃ9.95  NORMAL PRICE ยฃ19.95  MEMBERS SAVE MORE  Service available here  Help protect yourself against several strains of the flu this season with one simple visit in-store. ูˆูˆ
Read 10 tweets

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