Clinically Vulnerable Families πŸ’™πŸ’œπŸ’— Profile picture
Oct 2 β€’ 38 tweets β€’ 14 min read β€’ Read on X
πŸ’™πŸ’œπŸ’—Yesterday was a BIG day for CVF at the UK Covid Inquiry.

After a year of work, @lara_wong’s full written statement (much longer than her oral evidence) is now public.

You can also watch her full oral evidence on YouTube.

Highlights below.

⚠️LONG thread warning 🧡

1/
What is Clinically Vulnerable?
No exception for shielded Clinically Vulnerable children when schools returned.

Full (~1 hour) YouTube evidence here:
youtube.com/watch?v=B_Bjbh…

Written evidence here:
covid19.public-inquiry.uk/documents/inq0…

Please help to BOOST this thread to your followers!

2/
Clinically Vulerable households were pressured by teachers and headteachers, who were following poor government guidance, to return to unsafe schools without appropriate safty measures in place.

Families faced:
Fines
Prosecutions
Inappropriate referals to Children's Services.
3/
CVF members were very concerned about the risks to their children.

4/
Clinically Vulnerable children were NOT in schools prior to September 2020. Schools guidance in May 2020 recognised risks to Clinically Vulnerable children and families.

August 2020 there was a "guillotine" when ALL children were required to return.

Usual rules applied.

5/


In August 2020, "Eat Out to Help Out" had been driving up infection rates just before schools opened.

Schools were not doing anything to manage airborne risks, so our families felt particularly exposed.

No risk assessment or equality impact assessment considered their needs.
6/
Our concerns, which were really obvious to them as they had already been identified, were unaddressed.

People had no options. They had to choose between different risks:

A risk to life
A legal risk due to non-attendance

7/
There was no remote learning provided in September 2020, and shielded children were no longer shielded and *all* children were told that they *must* be in school.

8/
Children who were Clinically Vulnerable or in Clinically Vulnerable households were DENIED remote learning that was offered to children who were Covid positive.

9/
Families were threatened with fines and prosections, and advised to withdraw their child from the school roll if they represented a long-term absence.

10/
Parents who were threatened with fines and prosecutions were in really precarious circumstances.

People in certain jobs cannot continue if they are prosecuted.

11/
Testimony of a CEV child who was forced out of school.

12/
Responding to the idea of "Elective Home Education", CVF members were frequently unwilling home schoolers.

13/
The biggest reason for removing children was in 2021-2022 was health concerns relating to Covid, but our families many have also fallen under other categories.

14/
Flexibility could mean a number of different things:

Remote learning
Hybrid learning - outdoor / low risk and online
KEY EVIDENCE:

A severely immunosuppressed (CEV) family were threatened with fines and prosecution. They had legal support and representation from @legalmarkmc and Helen Mowatt.

Hampshire issued new guidance the next day.

16/
@legalmarkmc Hampshire ammended their guidance:

If a consultant level letter states that attendance at school of a child would endanger a life then the absence should be authorised.

Remote learning offered.
Any children removed from roll contacted.
Penalty notices withdrawn.

17/
@legalmarkmc This guidance was not widely disseminated. We were told that headteachers were advised not tell parents.

CVF tried to share this knowledge, and all Clinically Vulnerable people were potentially able to benefit.

Unfortunately, it didn't extend beyond Hampshire.

18/
@legalmarkmc This guidance was a departure from Department of Education guidance.

19/
@legalmarkmc Do you agree that until the vaccination programme was sufficiently advanced that there would have been quite a large number of families in which it could be said that there was a risk to the life of a family member from contracting Covid?

<Which CP asked this question?>
20/
@legalmarkmc A question from the DfE?

Do you accept that given the importance of children being in school that it was appropriate for the DfE to ensure that children who the CMO felt were not at materially increased risk from Covid were required to attend school?

21/
@legalmarkmc As @lara_wong recognised the need for evidence, she conducted a survey to gather data in line with standard DfE levels set for absences - which highlighted the serious impacts on CVF's families.

22/
@legalmarkmc @lara_wong Persistent and severe absences were concerningly high. Indeed, they appeared to be the highest group.

23/
@legalmarkmc @lara_wong The need for safer schools.

There was no real options for these families.

Children were not taught.

24/
@legalmarkmc @lara_wong Wearing a mask has been quite politicised. Any other protective gear like wearing shin pads or goggles in science is not politicised. But if children choose to wear a mask it is seen as a safeguarding concern sometimes, which is a real worry for us.

25/
@legalmarkmc @lara_wong Some children felt at risk from others.

Children attending school in high-risk environments had legitimate concerns due to unaddressed risks. Children were facing and managing much higher risks than other children.

Nobody was supporting them.

26/
@legalmarkmc @lara_wong Children in Clinically Vulnerable families knew through testing that they were positive, and the real risks that they might kill their loved one.... and in some cases they did - and they knew it.

27/
@legalmarkmc @lara_wong New challenges for young carers.

28/
@legalmarkmc @lara_wong There was a huge burden carried by children who were facing risks and challenges that were not recognised.

School guidance was actively against them. They had to be in school and headteachers should "reassure" them.

29/
@legalmarkmc @lara_wong High-risk families had to balance risks in terms of attending healthcare.

30/
@legalmarkmc @lara_wong Safety should be seen as a basic right.

We need to include Clinical Vulnerability in the Equality Act.

Disability is about impairments, and not the risk people face from pathogens.

31/
@legalmarkmc @lara_wong The need for safe choices to enable:

Schools to safeguard children.
Safe peer interactions.
Hybrid and remote learning.

Remote school is better than nothing!

32/
@legalmarkmc @lara_wong Children in critical exam years were unable to get the grades they need, or in some cases any grades at all.

33/
@legalmarkmc @lara_wong Children in critical exam years were unable to get the grades they need, or in some cases any grades at all.

33/
@legalmarkmc @lara_wong Lana's story:

Lana, a bright child, was refused online learning. She taught herself her GCSEs and achieved a grade 7 in her English (an "A").

She missed a pass in her Maths GCSE by 1 or 2 marks.

34/
@legalmarkmc @lara_wong The "National Tutoring Programme" did not support our children.

She wanted to go into Science as a career, her future has been harmed. She should not have been put in that position. It was completely avoidable!

There were children who were unable to take exams at all.

34/
ADDING BECAUSE SOME CAN’T SEE IT

Persistent and severe absences were concerningly high. Indeed, they appeared to be the highest group.

23/
If you can, pls support us here:
πŸ‘‰ clinicallyvulnerable.org/donate

While you are here, please also sign and share our petition for #KeepCovidBoosters.

All assistance is very much appreciated!
petition.parliament.uk/petitions/7331…

CV children (u12) cannot even buy private doses in the UK.

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More from @cv_cev

Sep 30
πŸ‘ͺ As the UK Covid Inquiry began to focus on Children and Young people yesterday, CVF's barrister @AdamWagner1 KC stood to address the chair, Baroness Hallett, and shared our powerful opening submissions.

He started by sharing "David's" story (13).
1/
Then, Lana's story and the pressure she faced.

2/
It is a myth, of course, that children remained relatively unaffected by Covid-19. Thousands of them were and remain Clinically Vulnerable.

88 died
6000 Covid admissions
250 needed PICU care

3/
Read 13 tweets
Sep 23
"Something as simple as breathing in shared indoor spaces has become a barrier to accessibility and inclusion for millions of people, and it's time to change that!"
"Millions of people with chronic conditions are being put at risk or quietly excluded because clean indoor air has not been treated as a fundamental human right."

"If the act of breathing in a space puts someone at risk, access isn't equitable."
"We all breathe the same air, but not with the same consequences. For people with chronic conditions and other risk factors, unsafe air means unsafe spaces."
Read 4 tweets
Sep 23
Boston schools πŸ‘πŸ‘πŸ‘

Leading the way since 2020. They invested in IAQ sensors in every classroom across the district.
Their data was made publicly available, and they connected implemented demand controlled ventilation by linking sensors to the building management system.
They were able to:

REPAIR - broken ventilation systems
EDUCATE - communities about air quality
UPGRADE - they prioritised ventilation in major renovations to balance indoor air quality with energy efficiency
Read 6 tweets
Sep 15
πŸ“’ Children and Young People Voices report about their pandemic experiences has been released today.

We would be interested in hearing your views. There is a chapter on Clinically Vulnerable families.

We have included screenshots below...

1/
They have recognised that children in CV families took on new caring responsibilities. Many have never been recognised or supported as "Young Carers".

2/ Weight of responsibility: Some children and young people took on responsibilities at  home during the pandemic. As well as carrying the load of practical tasks that needed to be done, such as looking after someone who was ill, taking care of siblings, or sanitising shopping for someone who was clinically vulnerable, some also felt the emotional weight of supporting their family through this time, particularly where people outside of the household could not come and help. Some were also affected by an awareness of the difficulties the adults were going through, including worsening mental hea...
Exposed to adult stress  Riley, aged 22, was living at home during the pandemic with their parents. This was a difficult time for the family because their mum was clinically vulnerable and their sibling, who had moved out, was struggling with an addiction. Living at such close quarters during lockdown - "like you're in a pressure cooker" - exposed them to the stress that their parents were going through and they described starting to share in this rather than feeling like a child any more. "Everyone felt very nervous. So then having that kind of like group worrying... I feel ...
There appears to be confusion in the report between disability (which is a mental or physical impairment) and clinical vulnerability (which are risk factors including health conditions, which puts someone at higher risk of poor outcomes and required shielding etc.).

3/ Heightened fear: Physically disabled children and young people and those with health  conditions, or in clinically vulnerable families, described their feelings of uncertainty, fear and anxiety about the risk of catching Covid-19 and the serious - and in some cases life threatening - implications this could have for them or their loved ones. Children and young people in secure settings also felt vulnerable and afraid of catching Covid-19 when sharing common spaces with other people during the pandemic. Experiencing bereavement during the pandemic could also lead to feelings of heightened fear.
Forgotten by others as a young shielder  Casey, aged 15, has a sibling who is clinically vulnerable. Casey described how she helped to protect her sibling during the pandemic, how hard it was to keep shielding when society opened up after the first lockdown and how she felt that her needs had been completely forgotten by those around her. She felt that people didn't seem to  15  2. Factors that shaped the pandemic  understand that young people were shielding too. "When we came out of [lockdown] but then we were still expected to shield... while everybody else was out and doing stuff, t...
Read 14 tweets
Jun 11
The final preliminary hearing for the Children & Young People’s module was today, CVF, again, made the case for safety.

Children's deaths *would* have been higher if many Clinically Vulnerable families had not kept their children away from schools.

⚠️Long thread
1/
πŸ’” 88 children died (2020 - October 2022)

In the first year of the pandemic:

πŸ₯6,338 paediatric Covid admissions
β€οΈβ€πŸ©Ή259 needed intensive care

2/
Schools were 'closed' due to the balance of risks:

βš–οΈRisk of to children when not in school
βš–οΈRisk of to everyone from Covid-19 transmission

3/
Read 26 tweets
Mar 17
Today @BBCMoreOrLess discussed pandemic impacts on Children & Young People:

"It turned out that they would be spared from the worst impacts of the disease."

The specific impacts on CV children, those in CV families or struggling with Long Covid were barely considered.

1/🧡
Dr Munroe dismissed risks to children:

"Covid itself had a relatively small clinical impact on young people."

In reality, CEV children were told to shield due to their risks. Over 200 children have died, and with a different response those deaths may have been preventable.
2/
This was the only section in which @TimHarford did point to the direct harms:

"For a few young people, Covid WAS a very serious disease. Long Covid has also been a problem for some. And young people did die."

Unfortunately, it was immediately followed up with...

3/
Read 21 tweets

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