Please, please, please, unless your patient will die without a fluoroquinolone antibiotic, and there is no other possible drug that could save them, please do not prescribe fluoroquinolone antibiotics and spread the word that they can cause horrific symptoms and lifelong debilitating. Especially when prescribed concurrently with a cortical steroid in a patient over 60. FDA black box 2008. Nerve damage is 2016. I forget what your aortic dissection is. And there are countless other ruinous risks to patient mobility and balance and lifetime health.
Undisclosed to patients. Like me. Had my exceptionally negligent Kaiser Permanente Crenshaw cornea surgeon disclosed the risks of FQs, I would’ve asked for an alternative that did the job without these risks. And there are three.
And yes, despite FDA egregiously & unscientifically claiming risks of systemic absorption are only from oral & injected, they are also from eye and eardrops. Case reports of both + I’ll campaign to get both researchers to study this so that can be brought out more than it has been by Sullivan and others, and press FDA to stop this absolutely scientifically unwarranted & harmful claim that only the oral and injected forms have systemic effects.
Has no one heard of Carl Sagan? and beyond case reports from ocular and ear drops, there are surely numerous undiagnosed cases of patients suffering FQ debilitation due to eye & eardrops.
Tho this sparse evidence DOES exist, Sagan: “Absence of evidence is not evidence of absence.”
As soon as I complete my absolute egregious fight since October 7 to get Kaiser to give me the diagnostic imaging I need to know which tendons are in danger of rupture so I can minimize or avoid use of those parts, and get tests for the progressive and progressing large fiber & small fiber neuropathy symptoms I have, I will fight to help other patients get care and I will also follow through on asking @SecKennedy to have me (as a medical expert in both transdisciplinary medical science and delivery of care) testify to FDA about denial of care now endemic at numerous medical institutions.
I’m also good with talking with an expert at the FDA to petition them to recognize the problem. I prefer testifying so it is transparent to the public and I can post it on social media and let people know.
I already have solutions (see Chap 2, GOING MENOPOSTAL: What you (and your doctor) need to know about the real science of menopause and perimenopause (@BenbellaBooks).
Essential is making up for lack of evidence behind much of our medical care, bc med schools obscenely turn out class after class without training them how to read and critically evaluate research. Med institutions must backstop doctors’ lack of knowledge/ability to read research and frankly, lack of time to read it at an institution like Kaiser.
They see patients every 20 minutes + have onerous elec medical record keeping requiremts. As I’m sure many of you do.
You either go home at 9 PM after transcribing audio recordings of patient sessions or you look into your screen thruout appt & possibly miss a subtle signal like a twitch in your patient’s face that suggests a potential serious problem.
@KPMemberService Kaiser Permanente is behaving monstrously—to exactly the wrong person. No patient should be treated this way. But this patient is an expert on laws on delivery of care; I write correct ICD-10 codes inc new FQ diag code, & I even wrote the only correct MRIs I’ve gotten. Put in for me by my fucking hero gynecologist.
Phys med head (who opened appt by calling Chinese “medicine” a “different way of seeing” & talked of meridians—pseudoscience!) is so terrible at her job that she didn’t know to write separate hand & joint (wrist) MRIs, which meant field of view was too large to pick up need detail.
Instead of clinical condition of FQ tendonopathy &signs of it like surrounding tissue edema that proceeds rupture, she sloppily &wastefully wrote MRIs for “diffuse pain.” (1/2)
Undisclosed to patients. Like me. Had my exceptionally negligent Kaiser Permanente Crenshaw cornea surgeon disclosed the risks of FQs, I would’ve asked for an alternative that did the job without these risks. And there are three.
And yes, despite FDA egregiously & unscientifically claiming risks of systemic absorption are only from oral & injected, they are also from eye and eardrops. Case reports of both + I’ll campaign to get both researchers to study this so that can be brought out more than it has been by Sullivan and others, and press FDA to stop this absolutely scientifically unwarranted & harmful claim that only the oral and injected forms have systemic effects.
Has no one heard of Carl Sagan? and beyond case reports from ocular and ear drops, there are surely numerous undiagnosed cases of patients suffering FQ debilitation due to eye & eardrops.
Tho this sparse evidence DOES exist, Sagan: “Absence of evidence is not evidence of absence.”
As soon as I complete my absolute egregious fight since October 7 to get Kaiser to give me the diagnostic imaging I need to know which tendons are in danger of rupture so I can minimize or avoid use of those parts, and get tests for the progressive and progressing large fiber & small fiber neuropathy symptoms I have, I will fight to help other patients get care and I will also follow through on asking @SecKennedy to have me (as a medical expert in both transdisciplinary medical science and delivery of care) testify to FDA about denial of care now endemic at numerous medical institutions.
I’m also good with talking with an expert at the FDA to petition them to recognize the problem. I prefer testifying so it is transparent to the public and I can post it on social media and let people know.
I already have solutions (see Chap 2, GOING MENOPOSTAL: What you (and your doctor) need to know about the real science of menopause and perimenopause (@BenbellaBooks).
Essential is making up for lack of evidence behind much of our medical care, bc med schools obscenely turn out class after class without training them how to read and critically evaluate research. Med institutions must backstop doctors’ lack of knowledge/ability to read research and frankly, lack of time to read it at an institution like Kaiser.
They see patients every 20 minutes + have onerous elec medical record keeping requiremts. As I’m sure many of you do.
You either go home at 9 PM after transcribing audio recordings of patient sessions or you look into your screen thruout appt & possibly miss a subtle signal like a twitch in your patient’s face that suggests a potential serious problem.
@KPMemberService Kaiser Permanente is behaving monstrously—to exactly the wrong person. No patient should be treated this way. But this patient is an expert on laws on delivery of care; I write correct ICD-10 codes inc new FQ diag code, & I even wrote the only correct MRIs I’ve gotten. Put in for me by my fucking hero gynecologist.
Phys med head (who opened appt by calling Chinese “medicine” a “different way of seeing” & talked of meridians—pseudoscience!) is so terrible at her job that she didn’t know to write separate hand & joint (wrist) MRIs, which meant field of view was too large to pick up need detail.
Instead of clinical condition of FQ tendonopathy &signs of it like surrounding tissue edema that proceeds rupture, she sloppily &wastefully wrote MRIs for “diffuse pain.” (1/2)
Tragic waste of 4 MRIs that need to be redone. Simply evil arrogant carelessness. At least other phys med doctor I saw by using fact that I’m entitled to a 2nd opinion by law looked at MRI sequence I wrote at my request & ended up copying it word for word. Bc yes, I can write MRI orders that well, & believe me I had no idea how to write one in September.
I know the laws on delivery of care, I have filed such a strong IMR with the California Department Of managed care that they didn’t wait 30 or 45 days but went after Kaiser in under a week.
Still, my care is inappropriate and denied in many cases or they just don’t know the test or how to perform it. And we’re talking 3 mm skin punch biopsy for small fiber neuropathy. This is a Neuro standard and the head of neurology, who does not know what reactive oxygen species are, and thus did not test me for the mitochondrial harm and oxidative damage that he does not understand. Only inflammation metrics which I knew were fine. 0.3 CRP. Sed rate of 3, etc. I had to scheme my way to mito health/oxidative harm (MMPs + excess ROS) through begging various doctors.
Kaiser has behaved so egregiously to me that it’s mind blowing. I was told by the officious little social worker tasked with throwing me out of the building (or rather having the poor security guard to the dirty work) that Ameen Dinani was behind throwing me out. He told me that about a minute after he told me he was not at liberty to tell me who was who is behind throwing me out, because I am a mediator and I knew what exactly what was happening and I remain the picture of the picture of calm.
I didn’t bite at a single bit of the various forms of bait that the guy threw at me. I believe these were intended to rile me and get me to act out. Poor guy. The more he kept at it, the more I simply calmly and more calmly simply disputed all the textbook Robo-stated therapyspeak the guy was throwing at me. It was rather hilarious. It was like being in a medical car crash that would have no physical damage but was really fascinating.
He had nbeen asking me what my purpose was in the lobby. And the purpose was to beg for a cancellation appointment at another dept that was still open. But he talked over me every time I tried to answer.
And I of course did not raise my voice a smidgen or show anything but cool— the antithesis of the crazy patient making a fuss. Then he gets to throw them out & isn’t he a wonderful hero, this tightly wound little man, with the air of contempt and passive aggressive rage, irate that I didn’t fit textbook upset patient ranting and raving & just sat there probably barely containing a smile as he tried his next tactic: we should use active listening. Mediator tool that makes you sound like a robot. He just needed to use listening listening, like a human being, as the guard was. This poor guard, tall, kind face, African descent, enlisted to throw out a 61-year-old woman who can no longer walk properly. I looked at his kind face. And into his eyes. HE couldn’t help but show that he felt compassion for me. And I would guess probably rightly that he thought what they were doing to me was horrible.
Again, since October 4 when they started in October 7 when I put in the request that kicked off “timely access” rules of @cadmhc that probably only the rare patient knows about but I know about, all I wanted was to try to mitigate the horrific harm by their doctor with appropriate & urgently needed imaging & nerve tests so I might have a chance of stopping the progression of the nerve damage taking my balance and so I could know which tendons were at risk so I could avoid or minimize using those parts of my body.
My calm and continued calm so got this officious little social worker—with those bulging veins in his forehead an angry little eyes—more & more irate that I got him off his game totally.
He blurted out that it was head of BM & rehab at Kaiser West LA, Ameen Dinani who was behind throwing me out! (2/3)
I know the laws on delivery of care, I have filed such a strong IMR with the California Department Of managed care that they didn’t wait 30 or 45 days but went after Kaiser in under a week.
Still, my care is inappropriate and denied in many cases or they just don’t know the test or how to perform it. And we’re talking 3 mm skin punch biopsy for small fiber neuropathy. This is a Neuro standard and the head of neurology, who does not know what reactive oxygen species are, and thus did not test me for the mitochondrial harm and oxidative damage that he does not understand. Only inflammation metrics which I knew were fine. 0.3 CRP. Sed rate of 3, etc. I had to scheme my way to mito health/oxidative harm (MMPs + excess ROS) through begging various doctors.
Kaiser has behaved so egregiously to me that it’s mind blowing. I was told by the officious little social worker tasked with throwing me out of the building (or rather having the poor security guard to the dirty work) that Ameen Dinani was behind throwing me out. He told me that about a minute after he told me he was not at liberty to tell me who was who is behind throwing me out, because I am a mediator and I knew what exactly what was happening and I remain the picture of the picture of calm.
I didn’t bite at a single bit of the various forms of bait that the guy threw at me. I believe these were intended to rile me and get me to act out. Poor guy. The more he kept at it, the more I simply calmly and more calmly simply disputed all the textbook Robo-stated therapyspeak the guy was throwing at me. It was rather hilarious. It was like being in a medical car crash that would have no physical damage but was really fascinating.
He had nbeen asking me what my purpose was in the lobby. And the purpose was to beg for a cancellation appointment at another dept that was still open. But he talked over me every time I tried to answer.
And I of course did not raise my voice a smidgen or show anything but cool— the antithesis of the crazy patient making a fuss. Then he gets to throw them out & isn’t he a wonderful hero, this tightly wound little man, with the air of contempt and passive aggressive rage, irate that I didn’t fit textbook upset patient ranting and raving & just sat there probably barely containing a smile as he tried his next tactic: we should use active listening. Mediator tool that makes you sound like a robot. He just needed to use listening listening, like a human being, as the guard was. This poor guard, tall, kind face, African descent, enlisted to throw out a 61-year-old woman who can no longer walk properly. I looked at his kind face. And into his eyes. HE couldn’t help but show that he felt compassion for me. And I would guess probably rightly that he thought what they were doing to me was horrible.
Again, since October 4 when they started in October 7 when I put in the request that kicked off “timely access” rules of @cadmhc that probably only the rare patient knows about but I know about, all I wanted was to try to mitigate the horrific harm by their doctor with appropriate & urgently needed imaging & nerve tests so I might have a chance of stopping the progression of the nerve damage taking my balance and so I could know which tendons were at risk so I could avoid or minimize using those parts of my body.
My calm and continued calm so got this officious little social worker—with those bulging veins in his forehead an angry little eyes—more & more irate that I got him off his game totally.
He blurted out that it was head of BM & rehab at Kaiser West LA, Ameen Dinani who was behind throwing me out! (2/3)
Now, apologies if I’ve said some of this before, but I’m talk texting in my hands don’t really work. They really really hurt right now. So I’m just trying to not be repetitive but I probably am a bit.
Ameen Dinani, head of depts of phy med & rehab at Kaiser West LA, had actually called my cell phone previously when I was sitting in the lobby trying to make some other crazy magic happen to get care that I should’ve just been given.
He told me he would help me in this phone call he made my cell phone Wednesday, November 6 around 2 PM probably and then never called me back again though he had promised he wouldn’t.
And I hope I didn’t say this before but the reason I was in the lobby was that this med guy number two told me at 11:30 on Monday November 4 that he put through the hands and feet MRIs for me. I called Radiology to tell them I will take any time they have, 2 AM, 5 AM, etc. and they already know this about me. I will do one part at a time and come back the next day for another part and the next day for another part. Whatever they can do.
There’s a problem. The order is actually not in the system and Radiology appropriately tells me that I need to call physical medicine and get them to fix this. The Radiology person is a phone operator and not a magician. And she is right.
I call and message through Kaiser’s portal and call and message and beg him to fix this. No reply. I called the nurses and ask to check did he hit submit, is there some problem with their tech? Now Kaiser’s Tech is working because my motherfucking hero of a gynecologist has been putting through whatever MRI order he can for me, all of which I write. Which takes me till 4 o’clock in the morning but I get meticulously correct.
But the hands and the wrists are above the ovaries and so are the shoulders and I need this guy to order them. Monday goes by. Still no ordering, same thing on Tuesday. I’m told that he has not answered or looked at either message that I or the nurses have sent him to beg him to fix this. I asked him to please ask another human being there who can fix this or look into it. Nothing is done. Wednesday all day, I am begging and begging for someone to fix this or just tell me that you’re not gonna give them to me so I can go beg for an appointment and some other department to try to get somebody else to write these for me and put them in.
Nobody will put me thru to a person who will tell me anything. I just want a yes or no that they’re gonna give me the order. B’chaim it takes too much out of me to plead for appts + I have to limp around which is dangerous to my tendons. Of course if it’s necessary I will do it.
Finally, the clerk who answers tells me late in the afternoon on Wed Nov 5 that the orders have been put through. I’d begged them call me as soon as they were in bc I needed to call radiology ASAP to possibly get a cancellation appointment maybe at 5 AM when other people don’t wanna come in. All in Radiology have been heroic in extending selves & I’m beyond grateful.
Radiology is closed then
too late to Pur in for appt, but I’m a complete fucking dumbshit in that I actually believe phys med dept that MRI order is finally in system.
So all day Thu am, I fight & scheme to get care + have appt. Wonderful Radiology tech must take lunch & has three patient MRIs after that & says then he’ll come back & we’ll figure out appts for me!! Love this guy!
I wait gladly & gratefully for hours. 330 p.m. Thu Nov 6, he’s back. I limp to him at computer so he can make magic finding me 5 AM etc slot.
OMG. Order I was told was put in is not there! I’m sure I sobbed. Can’t recall. I sob a lot these days.
I go to lobby to map out anything I can do, ideally before KP closes, like which dept to limp to to plead for cancellation appt to beg another doctor to order MRI.
How DARE I be so disruptive a patient as to calmly strategize my way around Kaiser’s obscene & law/rule/medical ethics violating denial of care!
Cast that bitch out!
Ameen Dinani, head of depts of phy med & rehab at Kaiser West LA, had actually called my cell phone previously when I was sitting in the lobby trying to make some other crazy magic happen to get care that I should’ve just been given.
He told me he would help me in this phone call he made my cell phone Wednesday, November 6 around 2 PM probably and then never called me back again though he had promised he wouldn’t.
And I hope I didn’t say this before but the reason I was in the lobby was that this med guy number two told me at 11:30 on Monday November 4 that he put through the hands and feet MRIs for me. I called Radiology to tell them I will take any time they have, 2 AM, 5 AM, etc. and they already know this about me. I will do one part at a time and come back the next day for another part and the next day for another part. Whatever they can do.
There’s a problem. The order is actually not in the system and Radiology appropriately tells me that I need to call physical medicine and get them to fix this. The Radiology person is a phone operator and not a magician. And she is right.
I call and message through Kaiser’s portal and call and message and beg him to fix this. No reply. I called the nurses and ask to check did he hit submit, is there some problem with their tech? Now Kaiser’s Tech is working because my motherfucking hero of a gynecologist has been putting through whatever MRI order he can for me, all of which I write. Which takes me till 4 o’clock in the morning but I get meticulously correct.
But the hands and the wrists are above the ovaries and so are the shoulders and I need this guy to order them. Monday goes by. Still no ordering, same thing on Tuesday. I’m told that he has not answered or looked at either message that I or the nurses have sent him to beg him to fix this. I asked him to please ask another human being there who can fix this or look into it. Nothing is done. Wednesday all day, I am begging and begging for someone to fix this or just tell me that you’re not gonna give them to me so I can go beg for an appointment and some other department to try to get somebody else to write these for me and put them in.
Nobody will put me thru to a person who will tell me anything. I just want a yes or no that they’re gonna give me the order. B’chaim it takes too much out of me to plead for appts + I have to limp around which is dangerous to my tendons. Of course if it’s necessary I will do it.
Finally, the clerk who answers tells me late in the afternoon on Wed Nov 5 that the orders have been put through. I’d begged them call me as soon as they were in bc I needed to call radiology ASAP to possibly get a cancellation appointment maybe at 5 AM when other people don’t wanna come in. All in Radiology have been heroic in extending selves & I’m beyond grateful.
Radiology is closed then
too late to Pur in for appt, but I’m a complete fucking dumbshit in that I actually believe phys med dept that MRI order is finally in system.
So all day Thu am, I fight & scheme to get care + have appt. Wonderful Radiology tech must take lunch & has three patient MRIs after that & says then he’ll come back & we’ll figure out appts for me!! Love this guy!
I wait gladly & gratefully for hours. 330 p.m. Thu Nov 6, he’s back. I limp to him at computer so he can make magic finding me 5 AM etc slot.
OMG. Order I was told was put in is not there! I’m sure I sobbed. Can’t recall. I sob a lot these days.
I go to lobby to map out anything I can do, ideally before KP closes, like which dept to limp to to plead for cancellation appt to beg another doctor to order MRI.
How DARE I be so disruptive a patient as to calmly strategize my way around Kaiser’s obscene & law/rule/medical ethics violating denial of care!
Cast that bitch out!
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