I PERSONALLY got disabled to the point that I’m fully homebound 2 years later (despite being fully vaxxed) from one infection. But I feel like when I talk about this, ppl think I’m saying “this is what I think will happen to everyone! Everyone will be disabled by 1 infection”
And of course, that’s not true. Not everyone dies from one infection- only 1% did even at the very beginning. 99% of ppl survived, as anti vaxxers love to remind us! Not everyone will be disabled by one infection - that much is very clear, as most ppl are accumulating infections
But what the science we have shows, what the many studies we do have show, is that each infection is liable to do some damage. This virus isn’t health neutral. Ppl who’ve had covid- one infection, even a mild one- sustain damage. You might not know it, but it’s visible in data
After Covid, you’re more likely to have a heart attack. You’re more likely to have a stroke. You’re more likely to develop blood clots. Covid damages your endothelial lining- the lining of your blood vessels- and of course, you might have no idea !
After Covid, even mild Covid cases, people are suffering cognitive damage. They’re scoring lower on cognitive function tests, and their brains look different on MRIs. They’re losing brain volume. Covid can disrupt the blood brain barrier- how would you know?
And then there’s the immune damage. The immune system is enormously complex, but we know that Covid is cause immune dysregulation and damage in at least some ppl, after some infections. We know it’s causing damage to certain immune cells, & leaving us prone to other infections
I hear a lot of ppl say things like “I know ppl who’ve gone back to normal they’re FINE!” The truth is you might know a 40 year old who has had covid 5 times. But in the future there will NEVER EVER be a 40 year old who’s only had covid 5 times. That won’t exist!
Their parents are setting them up to be 40 year olds who’ve had covid 20-80 times. Read that again. Somewhere in the range of 2 (once every 2 years, lucky) to 80 (twice a year, unlucky) times by age 40. And with each infection? More of the damage I just listed- and more!
Bc 1) I didn’t list the damage we already know covid does to other organs, or the risk of developing long covid or autoimmunity and 2) we don’t yet understand the heightened risk of cancers that may accompany covid infection (due to immune suppression)
The threat of Covid needs to be understood HOLISTICALLY and nobody is approaching it in this matter. It is a disease where we must factor in BOTH the acute and post acute health risks and multiple that by our INABILITY TO HOLD IMMUNITY TO IT and its rapid viral evolution
Covid’s relentlessness, its ability to reinfect multiple times within a year, its ability to do invisible damage- all of these are unaccounted for in the public’s perception of Covid’s risk
And lest you think- no need for me to worry! I’ve never had it/ I’ve had it once! Let me tell you a little story. First, you should know that NEARLY HALF of COVID infections are asymptomatic- part of why it’s such a worth foe. One review study found a rate of 44%
In my home, friends have to test before hanging out with me. I have a friend who has now tested positive 4 times within 2 years- and at least 3, I believe, of those times, was fully asymptomatic. Her first infection was mild. 2nd might’ve been slight sore throat
Can’t quite remember. But the next two for sure, she felt right as rain. We only knew she had Covid bc of the tests. If she was anyone else- someone who didn’t have to constantly test- she’d have no idea she had 4 Covid infections in 2 years. She’d probably think she’d had 1
The acute infection is not the whole story with Covid. Just like HIV, HPV, HSV, and many other viruses, Covid has a long tail and we are decades away from understanding what that long tail will bring. Protect yourself now - not after your 25th infection, when it’s far too late
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One thing that seems rly lost on ppl as I advocate for long covid prevention is that I’ve been lucky enough to stay in my home but so many ppl, once they can’t work for literally just a few weeks, a month, a few months, lose housing. Idk how this doesn’t register
Many ppl on the left w platforms minimize long covid by claiming “oh ppl get better w time” - I’m past the 2 year mark and still unable to work full time. But also not everyone is upper middle class with flexible paid leave, FML policies, work from home etc ??
It’s just such an odd blind spot bc it’s by and large ppl from the professional class saying this who have unlimited sick days or who know they can fall back on a safety net yet also feel entitled to minimize disease spread that can disable others
Ppl snipe that long covid patients aren’t more qualified to direct a pandemic response than public health officials only for those same officials to be 5 days behind us on recommending exactly what we said would be required based on info that was already available
Long Covid patients are better equipped to understand the dynamics at play bc, thanks to the utter abandonment of public health (including @ashishkjha!) we’ve spent years studying airborne infection control bc our literal lives were on the line
@ashishkjha While WHO and @cdc dragged their feat on admitting that there was, indeed, no distinct form of transmission called droplet- it’s simply “through the air transmission” now, a single category, we had to learn the hard way how it worked
Yea this is what irritates me. Like what are the risks of “overreacting” to hantavirus? 150 ppl had to sit in quarantine for 6 weeks? SO WHAT??? That’s literally not a risk.
The risks of under reacting are catastrophic, so why accept any risk at all even if it’s teeny tiny
This does NOT mean I think hantavirus will go pandemic based on what I’ve read it means I think the “risk calculation” the WHO is using is skewed in favor of individualism once again in a way that reveals their inability to prioritize community care
There is absolutely zero downside to simply using the precautionary principle to determine WITH UTTER CERTAINTY that every single person who was exposed or a known contact is cleared and that the virus has a low r0 and has not mutated
And other drs don’t want to talk about it publicly bc it is, thank god, becoming more and more passé, embarrassing, out of touch and career damaging to be ableist in public.
Go read a paper about long covid and POTS and stop speaking for once
White male doctors stop gaslighting majority female and marginalized patients for the first time in history challenge level
Impossible
POTS isn’t even some mysterious illness that no test can measure! Sustained increased in heart rate 30 bpm+ when you stand, wow so woo woo!
God damn, disabled ppl have to go through sooooo much fucking shit. So so so fucking much. I was disabled by govt negligence in letting covid spread and lost my career in progressive politics, as homebound, cannot stand in the shower, have a severe migraine disorder now,
I know ppl who’ve gotten long COVID, know they have it, are losing their livelihoods & health to it, and STILL arent masking or speaking on it bc of the extreme stigma. Thats why participating in masking matters beyond disease control but also to begin to break this deadly stigma
So much of how ppl view masking is social. If big influencers were masking indoors at least and photo’d masking, if DSA and other orgs were disciplined about like “yeah we make our spaces accessible for disabled ppl, for ppl with long covid” , social image of masking shifts
When a majority of your comrades participate in accessibility and embrace inclusion, it goes from being embarrassing to mask to being embarrassing NOT to mask. You show up and you’re in the minority, now you have the discomfort you felt masking- but going the other way
I’ll also add that not all disabled/immunocompromised ppl have access to the information that covid is dangerous for them or the covid/other infx diseases are airborne. There are POLITICAL reasons the medical industry chooses to downplay airborne disease control (1/)
That I’ve written about extensively on the Gauntlet, which come back to decades of resistance to recognizing airborne transmission of pathogens - which you can read about in this excellent paper - and the liability that is suddenly opened up if pathogens are fully airborne
You need to keep in mind that modern hospitals and healthcare facilities were DESIGNED from the ground up- the waiting rooms, the windowless patient care rooms, the cohorting, the ventilation/filtration standards, AS WELL as PPE for droplet protection