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Amy Alkon

@amyalkon

Mar 30

@KPMemberService your system will not let urgent grievance be completed or put through. Convenient.

It will not let me retrieve what I wrote because the error message just covers it.

File this & next msg as urgent grievance & fix tech already. I have told you this before. & before & before. Must send this msg to Gregory Adams CEO. And next.

Shame on KP bc I am so sick because of the horrific negligence of Kaiser. I demanded on Oct 7 2025 a practitioner with knowledge/ expertise/ scope of practice to diagnose, evaluate, treat the KP-caused fluoroquinolone injury I have.

KP has caused increased & progressive debilitation thru never providing anyone with expertise. No one. It is March 29, 2026.

Bc KP has denied me the necessary I diagnosis, & never provided me with a single practitioner with expertise and scope of practice, I am forced to spend every day/night since Oct 7 earning no money, being very sick, getting progressively debilitated & unnecessarily progressively debilitated due to denial of care/tests by numerous KP practitioners w no scope of practice or knowledge of Fluoroquinolone injury who deny I have it & deny me care & harm w denials & FQ injury-contraindicated care.

I’ve had to fight so hard to get the MRIs I needed to identify tendon weakness in October so I could avoid or minimize movement, and only got them in March because you head of phys medicine refused since Nov to retract her orders which I saw were incorrect when Radiology showed them to me. I also refuse to be treated by a doctor with no expertise in my condition. None could be ordered until she retracted. Monstrous. I told her that she couldn’t force me to be treated by her through her scheduler who called me. Only when I threatened to sue her if she didn’t retract them did she retract them and then I had the problem of trying to find someone else to order them (correctly) while being giving no one with any scope of practice to help me or treat me.

Wonderful ortho PA Siri put them in but didn’t quite have standing to put in the orders correctly as I wrote them or maybe didn’t know. I had to have them corrected but I had to wait for him to come back from strike. Obscene. While that was going on, the FQ nerve damage driven dysautonomia and neuropathy in my foot was causing edema. The calcaneal nerve was compressed to the point I had the death of muscle in my foot. It became unsafe to stand at all because I could lose my ability to stand if more muscle died. It’s called fatty infiltration of muscle.

I had to write my own MRI orders and read an MRI textbook to do it in September. My hero gynecologist understood that he was the only thing standing between me and debilitation and put them in for me but I could only do below the ovaries.

She and the other physical medicine doctor who treated me, the guy, have no scope of practice in FQ anything, and he even told me flat out in an appointment that he doesn’t know anything about fluoroquinolone antibiotics, and then shortly afterward told me I couldn’t possibly have fluoroquinolone injury from FQ ocular drops which is not true.

Every doctor who had no scope of practice was bound by law and medical ethics to do one thing and one thing only and that is refer me to a with scope of practice or tell Kaiser that I needed this referral outside the system.

I have asked my primary care doctor for this referral repeatedly. As we have seen, he has not referred me and he did not do what I began demanding— to save my health and mobility!— tell Kaiser that I need to be referred by Kaiser to someone with scope of practice in the system or if no such practitioner exist then someone outside the system.

Again, we see his de facto refusal to refer bc I’ve asked/begged repeatedly and he has not done it & I’ve asked him for his clinical reasoning & he will not give it. He won’t even say he won’t refer me. He just doesn’t answer. He denies I have FQ injury but will not answer/ducks q when I ask why. CONT’D

Urgent grievance you must file @KPMemberService continued and you must send this message to Gregory Adams the Kaiser CEO.

My primary care doctor claims to have experience in scope of practice in Fluoroquinolone injury, yet told me that IV magnesium was not necessary. I desperately need this to alleviate some of the symptoms and avoid progressive harm. When I asked for it, I had begun to have the death of muscle in my foot and if that continues I could lose my ability to stand without a brace or prosthesis.

The neuropathy and edema should never have gotten to this point but your ignorant doctors in neurology who have no scope of practice have refuse me a necessary standard test for small fiber neuropathy called a skin punch biopsy that actually counts the intra-epidermal nerves.

I asked Dr. H flat out on Monday whether she or the head of neurology have any scope of practice or knowledge of Fluoroquinolone injury.

Her reply : “I don’t think any of us are familiar.” Meaning she or the Department had Dr. M. He is the head of neurology who has no idea what reactive oxygen species are and thus did not test me for the oxidative harm that is a major part of the chemical pathology and horrific destructiveness of Fluoroquinolone injury.

Understand the oxidative stress is foundational to being a neurologist and he is clueless. He refused me all the test for oxidative harm and only tested me for auto immune disease which is absolutely clear I don’t have absolutely none of the clinical symptoms. Nor do I have any tested symptoms and my CRP is 0.3 which tells you I do not have an autoimmune disease right off the cuff. How are your doctors so wildly ignorant? Foundational stuff?

Because she had no scope of practice and neither did he they were bound to do one thing and one thing only and that is refer me to a doctor with scope of practice. They violated the law and medical ethics as have every single practitioner who has treated me without scope of practice. The ones who should never be included in this are those who have helped me escape the negligence of other practitioners by ordering me test within their scope of practice. I’m always careful to never put a practitioner at risk in their help for me.

Getting back to my obscenely law violating and medical ethics violating PCP, he is engaging in what I understand to be major medical malpractice by claiming to have expertise and treated me entirely contrary to what expertise would have him do. I am not speculating here. What does absolutely ignorant primary care doctor who claims to know Fluoroquinolone and their pathology does not know is that FQs chelate magnesium(bind with magnesium in the gut and form an insoluble complex that is that excreted).

I told this negligent and destructive PCP that I am taking 10,000 mg of magnesium orally to only get a fraction of it. This is a huge overdose of magnesium and it gave me severe diarrhea which is also extremely unhealthy. He told me I must be taking the wrong oral kind. OK bc magnesium is bound in the gut by FQs, you could take magnesium by the late Queen of England and blessed by the Dalai Lama, and you still won’t get it in your system. Oh, and I’m a transdisciplinary medical expert and absolute nerd about chemistry and physiology and science and I knew to take magnesium glycinate.

IV magnesium is necessary because it bypasses the gut. And I had to fight several days for it a very stressful battle that required me writing magnesium orders and justifications for it so the practitioner ended up helping me wouldn’t get in trouble, and I have symptoms that made it under his scope of practice. But he didn’t answer my message about this and I knew he was out and I was terrified and I had to call my psychiatrist in tears telling him and his amazing nurse that I had an emergency. They know me. I never do this. He treats kids with terrible problems and they need him desperately.

Ran out of space. CONTD 2nd in grievance series

Third in the series @KPMemberService

Urgent grievance you must file @KPMemberService continued and you must send this message to Gregory Adams the Kaiser CEO.

I had to send my psychiatrist the write up I wrote for the other doctor, and I was terribly worried because maybe it wouldn’t be within his scope of practice but I thought it was because of GABA Blocking and NMDA excitotoxicity had left me with horrible destructive all day brain fog and searing feeling in my brain plus a depletion of my normally high executive function, thanks both to my genetics and approach to life, and substantially to his excellence as a doctor and science based practitioner and the ADHD drugs he adjusted to be optimal and his wonderful work to keep me highly cognitively functional.

He actually had to deny me the IV magnesium at first. Saying he needed to ask renal. No I desperately needed that magnesium but I thanked him for denying it and for asking because this is appropriate and ethical legal and prudent medical care. Unlike my primary care doctor whom I believe claimed he had experience because (my suspicion and opinion only ) he did not want to tell a patient that he did not know and perhaps tell a woman that he did not know.

The upshot has been medically , physically, and emotionally as well as professionally destructive to me— my primary care doctor keeping me from getting necessary care, especially urgently needed care like that IV magnesium.

I am still debilitated and I still have cardiac symptoms but his less my symptoms substantially and less in my pain. But the pain and symptoms come back between infusions and the sign says that I need probably five days straight of IV magnesium infusions which I will fight for and explain. This is what it takes to replenish magnesium intracellularly. Primary care doctor has not a clue in the world about this, telling me I’m probably just taking the wrong kind orally.

Obscene. 10,000 mg a day of magnesium glycinate. Getting a fraction in my system.

Because of the horrific negligence of Kaiser denying me all this care, I realized I needed to show my real electrolyte levels. I drink a massive amount of Morton lite salt (for potassium) & salt in my water & I still have deficient abnormal electrolytes now in last reading in ER where I had to wait six-ish hours to get IV mag sulfate infusion Kaiser negligently does not have enuf space in its IV infusion clinic to do before April 1. Emergency need! Dying muscle in foot. Horrible cardiac symptoms with my BPM leading to 138 and going down to 45. These are caused by neuropathy & require an Ewing Battery & tilt table & QSART, but my ignorant PCPrefuses to give me a referral to a cardiologist. I told him of tachycardia 177 bpm while seated on my couch calmly. A pounding heart all day & clutching lungs and sometimes dizziness. And how I fainted (orthostatic hypotension with syncope) in March.

Your negligent cornea surgeon heard all this from me &saw validated stats for these numbers (device validated with med devices by awesome Culver Marina nurse [first name Me**n ]) & did nothing. She should’ve stopped glucocorticoid & FQ meds & rushed me to a cardiologist.

PCP is clueless that Holter monitor is not able to read small fiber nerve damage in heart. Refuses to let me speak and tell him anything to try to explain why his refusals are not legitimate. And I must see cardiologist w/specialty for the (neuro dept) diagnosed small fiber nerve damage I have.

He also called me “rude” for my insisting it is essential to treat according to the underlying FQ condition not his insistence to treat symptoms (only two at a time!) w/o consideration of cause. He also called me rude for saying his approach/actions suggest does not have scope of practice.

This is emotional bullying used to shut down a legitimate patient push for health-protecting care. His refusals to tell me his clinical reasoning amount to denial of informed consent I’m owed by law. CONTD 3rd in series

Read 7 tweets

Amy Alkon

@amyalkon

Mar 23

@KPMemberService file this is an urgent grievance. It is 2026 and I don’t have a fax machine and it’s not safe for me to walk due to the negligence driven nerve damage in my foot that is caused the death of muscle and will take my ability to stand normally unless I stop any more of the muscle from dying.

That death of muscle and the massive multisystem debilitation and destruction to my body and brain and every part of me is due to the negligent Kaiser cornea surgeon’s absolutely negligent prescription of a Fluoroquinolone antibiotic concurrently with a glucocorticoid in a patient over 60+ my low electrolytes and athleticism that made this enormously risky for me. She should’ve prescribed alternate drugs but I would bet my best bras and my favorite evening dress and even my Mexican cowboy boots that she is not a clue as to what they are.

Grievance pasted in below. I demand you send this to Gregory Adams, the CEO of Kaiser. So he sees what kind of medical institution he has presiding over. And the horrific destruction to me and continuing debilitation through the negligence and ignorance of every provider violating the law and medical ethics in denying I have fluoroquinolone injury and refusing to care.

@KPSCALnews bet you won’t be bragging about this. @KPMedSchool how many of these negligent doctors did you train?

My PCP has claimed to have experience in fluoroquinolone injury and scope of practice in it and it is clear he has none. For example, from his denial of what the science on the chemical pathology shows is necessary care such as IV magnesium to make up for how quinones magnesium and excrete from your system that means bind magnesium.

I had to spend days of stress and begging and writing to get the IV magnesium from another practitioner. And then I had to go to the emergency room because Kaiser negligently does not have spots in their infusion lab for a patient with serious cardiac symptoms who needs an appointment right away—Not just for that but to possibly reverse the neuropathy driven edema and other effects of the fluoroquinolone driven nerve damage to possibly save the muscle in my foot. There is fatty infiltration of muscle which means the muscle has died.

This is due to the utter negligence and abusive behavior of Dr. V in phys med. She refused me MRIs that were necessary while having no scope of practice in fluoroquinolone injury to do this ortell me what she did, gaslighting me and telling me I don’t have Fluoroquinolone injury after what seem to be collusion with the negligent cornea surgeon who harmed me with a negligent prescription of Fluoroquinolone antibiotics you have been concurrently to me, a patient over 60 with a massive overdose of glucocorticoids, which I should not be given whatsoever. (FDA fluoroquinolone antibiotic black box of 2008– multiplied risk of tendon and rupture from routine movement and risk of irreversible debilitation. I was given no informed consent, no disclosure of risk. I was treated like life drugged with harmful drugs without my knowledge. This doctor is so medically ignorant and ignorant of the research in her own field that she told me at my first appointment that prednisolone acetate has no systemic side effects. Clinician and researcher Marianne O Price is one of the researchers looking into the question of how they caused less patient harm with the systemic effects of prednisone acetate by using other steroids. Such as fluorometholone. There is one of us reading the research in this negligent doctor’s fiel it is me.

Both of these drugs were contraindicated from start bc I had low electrolytes. I should’ve been given alternate prescriptions. As called for in her field/by FDA.

3 other antibiotics she could’ve given w/o risk of mitochondrial destruction, collagen destruction, long-term debilitation, nerve damage, elevated matrix metalloproteinases, oxidative harm, & destroyed collagen matrix thruout my body. (1/2 urgent grievance continues that you must file)

This affects every part of me for my ability to balance and walk normally to my executive function and formally sharp cognition and all day energy, to my beautifully cared for skin (the most protective French sunblock since the 90s and never going out without an umbrella and or a hat) that is now destroyed.

Sure there’s aging but you don’t age to the extent of the destruction of college and you see in my face just over a period of months. This is Fluoroquinolone injury and she is monstrous for her cavalier negligence in prescribing what she did. She should’ve also stopped both drugs per the FDA and research supporting this that I read. My brain is messed up from this drug in its pernicious effects on GABA and the neurotoxic effects on NMDA.

My negligent PCP, Dr. S, is treating me symptom‑by‑symptom, refusing to treat more than two symptoms at a time, not treating me as a whole person with an underlying multisystemic injury. I use the Bradford Hill nine and various medical test that I had to spend months begging for from various providers. MRIs I had to write myself to get them correct, that my hero of a gynecologist put in because he cares about patience. He was allowed by the associate director of the hospital, the former had a gynecology.

PCP’s approach, like by insisting that tendon and balance issues will be treated as if they are any person’s tender balance issues and not due to the chemical destruction of tendons and nerves by the Fluoroquinolone that he knows clearly nothing about, is a violation of the law and medical ethics and a serious abdication of clinical responsibility in someone with a complex, multisystem condition. His denials have caused me to spend days and days writing to beg for care from other doctors and fighting through the

•He is accepting profound disability (can’t walk, can’t balance) as if it were a benign or static outcome, instead of referring urgently for neurologic, autonomic, and connective‑tissue workup. That is not standard of care for a sudden, severe functional decline.

PCP &KP Ignoring my explicit requests in writing since Oct 7, 2025 and it is now March 23 2026, to tell Kaiser I must either be given a provider in network with expertise and knowledge and scope of practice in Fluoroquinolone injury to evaluate me, give me diagnosis/tests/treatment, or KP must allow me to go out of network immediately. This may take going outside LA w remote appointments with practitioners in other areas or countries. There are not many qualified in this & I need doctor w scope of practice so I am not just denied tests I need by practitioners w utter ignorance of my condition practicing outside their scope of practice in violation of the law & medical ethics & harming me & making me unsafe in process.

The negligent neurologist is STILL refusing me a nerve punch biopsy for small fiber neuropathy. It is progressive. I have BAXTER’s neuropathy and dead muscle in my foot from the compression of calcaneal nerve. I have to ask dermatology, she says. But I don’t need a skin punch biopsy; I need a nerve punch biopsy. Dermatology PERFORMS test, but Neuro must order and interpret. Gold standard for small fiber neuropathy. I need to know the level of axonal damage/progression baseline.

I was told by neuro nurse who called me that this negligent neurologist denying me necessary nerve punch biopsy for FQ injury despite having no scope of practice had spoken with head of neuro & he said I don’t need this. I do. I need baseline for the nerve damage to see if it is progressing or stable or what.

Neuro headis so medically ignorant as to be a danger to patients He told me he does not know what ROS are. “What is that?” he asked. I thought I’d spoken too fast. I said reactive oxygen species. He again said what is that? What that is is foundational to being a neurologist & a factor in numerous neurological diseases!

(2/3 file as urgent grievance @KPMemberService continuation/must send to KP ceo Gregory Adams)

It is obscene negligence that he has not a clue. And that he denies patient care based on his ignorance. Monstrous.

This other neurologist is so ignorant of Fluoroquinolone injury that she told me even if I had this test I only needed one leg and not bilaterally. Well that is true if you have an autoimmune disease where the damage presents bilaterally. In Fluoroquinolone and injury, contrary to the ignorant doctor, Different limbs have different levels of nerve function. How am I having a medical provider deny me care based on massive ignorance by every single doctor who is treating me, save for those who are helping me by finding ways within their scope of practice to give me tests I desperately need that all of these negligent practitioners refuse me based on ignorance of fluoroquinolone injury.

Every single one violates the law and medical ethics by treating outside their scope of practice and I am progressively damaged as I have to fight and fight and fight and do nothing else since October 7, earning no money, having no social life or world, living off my savings that I will run out of and become homeless. Kaiser is monstrously negligent.

I demand you file this as an urgent grievance. And again of that every grievance Kaiser has taken down from me by member services employees on the phone is incorrect in some or many ways.

KP only allows submission by fax or mail. This is really great at preventing patients from submitting grievances. It is not safe for me to walk at all with the nerve compression and the death of muscle in my foot. Caused by the monsters negligence of Kaiser Permanente and the multiplied and ongoing negligence of denying me care and never providing me a single provider with scope of practice and expertise and knowledge of Fluoroquinolone injury to give me a diagnosis. I have no diagnosis whatsoever only ignorant practitioners with no scope of practice denying that I have this.

@KPMemberService file this third and the series of posts as a continuation of the urgent grievance in the previous two and you must send to Kaiser CEO Gregory Adams. I demand he be shown the utter negligence in violation the law and medical ethics and simple human decency that is causing me progressive debilitation and taking every bit of my time and gutting me emotionally as I fight Kaiser for so much as a practitioner with knowledge and expertise in my condition. Having been denied this since October 7, 2025 when I demanded in writing. And that was urgent Under timely access rules due to the FDA black box of 2008 for Fluoroquinolone antibiotics with multiplied risk of tendon rupture from routine movement from the concurrent prescription of a Fluoroquinolone and a glucocorticoid in a patient over 60. Me, on other words.

The level of work that I must do every single day to fight Kaiser for care that is appropriate and cop by the evidence not one of your ignorant doctors denying me care has red is monstrous. I will become homeless and die on the street because Kaiser is aggressively and monstrously negligent. And as I have demanded and demanded and demanded since October 7, 2025, Kaiser has never followed through on its own protocols respecting the law and medical ethics to give me a single practitioner with with knowledge and expertise and scope of practice to diagnose me.

Refusing a patient a diagnosis and then denying care is a serious violation of like a slew of laws and codes.

The IV magnesium denied me by my absolutely ignorant primary care doctor who claims to have expertise in fluoroquinolone injury and clearly has none, I got by massive work to explain and then beg other doctors to give it to me where there was some overlap in their area of medicine. Had to sit in the emergency room for six hours. Because your negligence as an institution has your infusion lab have no appointments until April one. Research and physiology suggests I would lose my ability to stand in that time.

Nonprofit? Hilarious. 3/3

Read 4 tweets

Amy Alkon

@amyalkon

Nov 9, 2025

Please, please, please, unless your patient will die without a fluoroquinolone antibiotic, and there is no other possible drug that could save them, please do not prescribe fluoroquinolone antibiotics and spread the word that they can cause horrific symptoms and lifelong debilitating. Especially when prescribed concurrently with a cortical steroid in a patient over 60. FDA black box 2008. Nerve damage is 2016. I forget what your aortic dissection is. And there are countless other ruinous risks to patient mobility and balance and lifetime health.

Undisclosed to patients. Like me. Had my exceptionally negligent Kaiser Permanente Crenshaw cornea surgeon disclosed the risks of FQs, I would’ve asked for an alternative that did the job without these risks. And there are three.

And yes, despite FDA egregiously & unscientifically claiming risks of systemic absorption are only from oral & injected, they are also from eye and eardrops. Case reports of both + I’ll campaign to get both researchers to study this so that can be brought out more than it has been by Sullivan and others, and press FDA to stop this absolutely scientifically unwarranted & harmful claim that only the oral and injected forms have systemic effects.

Has no one heard of Carl Sagan? and beyond case reports from ocular and ear drops, there are surely numerous undiagnosed cases of patients suffering FQ debilitation due to eye & eardrops.

Tho this sparse evidence DOES exist, Sagan: “Absence of evidence is not evidence of absence.”

As soon as I complete my absolute egregious fight since October 7 to get Kaiser to give me the diagnostic imaging I need to know which tendons are in danger of rupture so I can minimize or avoid use of those parts, and get tests for the progressive and progressing large fiber & small fiber neuropathy symptoms I have, I will fight to help other patients get care and I will also follow through on asking @SecKennedy to have me (as a medical expert in both transdisciplinary medical science and delivery of care) testify to FDA about denial of care now endemic at numerous medical institutions.

I’m also good with talking with an expert at the FDA to petition them to recognize the problem. I prefer testifying so it is transparent to the public and I can post it on social media and let people know.

I already have solutions (see Chap 2, GOING MENOPOSTAL: What you (and your doctor) need to know about the real science of menopause and perimenopause (@BenbellaBooks).

Essential is making up for lack of evidence behind much of our medical care, bc med schools obscenely turn out class after class without training them how to read and critically evaluate research. Med institutions must backstop doctors’ lack of knowledge/ability to read research and frankly, lack of time to read it at an institution like Kaiser.

They see patients every 20 minutes + have onerous elec medical record keeping requiremts. As I’m sure many of you do.

You either go home at 9 PM after transcribing audio recordings of patient sessions or you look into your screen thruout appt & possibly miss a subtle signal like a twitch in your patient’s face that suggests a potential serious problem.

@KPMemberService Kaiser Permanente is behaving monstrously—to exactly the wrong person. No patient should be treated this way. But this patient is an expert on laws on delivery of care; I write correct ICD-10 codes inc new FQ diag code, & I even wrote the only correct MRIs I’ve gotten. Put in for me by my fucking hero gynecologist.

Phys med head (who opened appt by calling Chinese “medicine” a “different way of seeing” & talked of meridians—pseudoscience!) is so terrible at her job that she didn’t know to write separate hand & joint (wrist) MRIs, which meant field of view was too large to pick up need detail.

Instead of clinical condition of FQ tendonopathy &signs of it like surrounding tissue edema that proceeds rupture, she sloppily &wastefully wrote MRIs for “diffuse pain.” (1/2)

Tragic waste of 4 MRIs that need to be redone. Simply evil arrogant carelessness. At least other phys med doctor I saw by using fact that I’m entitled to a 2nd opinion by law looked at MRI sequence I wrote at my request & ended up copying it word for word. Bc yes, I can write MRI orders that well, & believe me I had no idea how to write one in September.

I know the laws on delivery of care, I have filed such a strong IMR with the California Department Of managed care that they didn’t wait 30 or 45 days but went after Kaiser in under a week.

Still, my care is inappropriate and denied in many cases or they just don’t know the test or how to perform it. And we’re talking 3 mm skin punch biopsy for small fiber neuropathy. This is a Neuro standard and the head of neurology, who does not know what reactive oxygen species are, and thus did not test me for the mitochondrial harm and oxidative damage that he does not understand. Only inflammation metrics which I knew were fine. 0.3 CRP. Sed rate of 3, etc. I had to scheme my way to mito health/oxidative harm (MMPs + excess ROS) through begging various doctors.

Kaiser has behaved so egregiously to me that it’s mind blowing. I was told by the officious little social worker tasked with throwing me out of the building (or rather having the poor security guard to the dirty work) that Ameen Dinani was behind throwing me out. He told me that about a minute after he told me he was not at liberty to tell me who was who is behind throwing me out, because I am a mediator and I knew what exactly what was happening and I remain the picture of the picture of calm.

I didn’t bite at a single bit of the various forms of bait that the guy threw at me. I believe these were intended to rile me and get me to act out. Poor guy. The more he kept at it, the more I simply calmly and more calmly simply disputed all the textbook Robo-stated therapyspeak the guy was throwing at me. It was rather hilarious. It was like being in a medical car crash that would have no physical damage but was really fascinating.

He had nbeen asking me what my purpose was in the lobby. And the purpose was to beg for a cancellation appointment at another dept that was still open. But he talked over me every time I tried to answer.

And I of course did not raise my voice a smidgen or show anything but cool— the antithesis of the crazy patient making a fuss. Then he gets to throw them out & isn’t he a wonderful hero, this tightly wound little man, with the air of contempt and passive aggressive rage, irate that I didn’t fit textbook upset patient ranting and raving & just sat there probably barely containing a smile as he tried his next tactic: we should use active listening. Mediator tool that makes you sound like a robot. He just needed to use listening listening, like a human being, as the guard was. This poor guard, tall, kind face, African descent, enlisted to throw out a 61-year-old woman who can no longer walk properly. I looked at his kind face. And into his eyes. HE couldn’t help but show that he felt compassion for me. And I would guess probably rightly that he thought what they were doing to me was horrible.

Again, since October 4 when they started in October 7 when I put in the request that kicked off “timely access” rules of @cadmhc that probably only the rare patient knows about but I know about, all I wanted was to try to mitigate the horrific harm by their doctor with appropriate & urgently needed imaging & nerve tests so I might have a chance of stopping the progression of the nerve damage taking my balance and so I could know which tendons were at risk so I could avoid or minimize using those parts of my body.

My calm and continued calm so got this officious little social worker—with those bulging veins in his forehead an angry little eyes—more & more irate that I got him off his game totally.

He blurted out that it was head of BM & rehab at Kaiser West LA, Ameen Dinani who was behind throwing me out! (2/3)

Now, apologies if I’ve said some of this before, but I’m talk texting in my hands don’t really work. They really really hurt right now. So I’m just trying to not be repetitive but I probably am a bit.

Ameen Dinani, head of depts of phy med & rehab at Kaiser West LA, had actually called my cell phone previously when I was sitting in the lobby trying to make some other crazy magic happen to get care that I should’ve just been given.

He told me he would help me in this phone call he made my cell phone Wednesday, November 6 around 2 PM probably and then never called me back again though he had promised he wouldn’t.

And I hope I didn’t say this before but the reason I was in the lobby was that this med guy number two told me at 11:30 on Monday November 4 that he put through the hands and feet MRIs for me. I called Radiology to tell them I will take any time they have, 2 AM, 5 AM, etc. and they already know this about me. I will do one part at a time and come back the next day for another part and the next day for another part. Whatever they can do.

There’s a problem. The order is actually not in the system and Radiology appropriately tells me that I need to call physical medicine and get them to fix this. The Radiology person is a phone operator and not a magician. And she is right.

I call and message through Kaiser’s portal and call and message and beg him to fix this. No reply. I called the nurses and ask to check did he hit submit, is there some problem with their tech? Now Kaiser’s Tech is working because my motherfucking hero of a gynecologist has been putting through whatever MRI order he can for me, all of which I write. Which takes me till 4 o’clock in the morning but I get meticulously correct.

But the hands and the wrists are above the ovaries and so are the shoulders and I need this guy to order them. Monday goes by. Still no ordering, same thing on Tuesday. I’m told that he has not answered or looked at either message that I or the nurses have sent him to beg him to fix this. I asked him to please ask another human being there who can fix this or look into it. Nothing is done. Wednesday all day, I am begging and begging for someone to fix this or just tell me that you’re not gonna give them to me so I can go beg for an appointment and some other department to try to get somebody else to write these for me and put them in.

Nobody will put me thru to a person who will tell me anything. I just want a yes or no that they’re gonna give me the order. B’chaim it takes too much out of me to plead for appts + I have to limp around which is dangerous to my tendons. Of course if it’s necessary I will do it.

Finally, the clerk who answers tells me late in the afternoon on Wed Nov 5 that the orders have been put through. I’d begged them call me as soon as they were in bc I needed to call radiology ASAP to possibly get a cancellation appointment maybe at 5 AM when other people don’t wanna come in. All in Radiology have been heroic in extending selves & I’m beyond grateful.

Radiology is closed then
too late to Pur in for appt, but I’m a complete fucking dumbshit in that I actually believe phys med dept that MRI order is finally in system.

So all day Thu am, I fight & scheme to get care + have appt. Wonderful Radiology tech must take lunch & has three patient MRIs after that & says then he’ll come back & we’ll figure out appts for me!! Love this guy!

I wait gladly & gratefully for hours. 330 p.m. Thu Nov 6, he’s back. I limp to him at computer so he can make magic finding me 5 AM etc slot.

OMG. Order I was told was put in is not there! I’m sure I sobbed. Can’t recall. I sob a lot these days.

I go to lobby to map out anything I can do, ideally before KP closes, like which dept to limp to to plead for cancellation appt to beg another doctor to order MRI.

How DARE I be so disruptive a patient as to calmly strategize my way around Kaiser’s obscene & law/rule/medical ethics violating denial of care!

Cast that bitch out!

Read 4 tweets

Amy Alkon

@amyalkon

Oct 19, 2025

I’m being forced to make a terrible trade-off due to Kaiser Permanente’s ongoing aggressive negligence in the wake of their doctor's breathtakingly negligent prescribing.

I have to risk (possibly irreversible) harm to my tendons to try to stop the neuropathy—nerve damage—that may compromise my ability to balance and move for the rest of my life.

My negligent Kaiser eye surgeon caused both of these debilitating harms by basically using an FDA black box warning about a dangerous drug combination as a recipe for "care." (🧵1/9)

FDA 2008 black box on fluoroquinolone antibiotics (there are a bunch more in subsequent years):

Fluoroquinolone antibiotic + corticosteroid in patient over 60—risks irreversible tendon damage, including 46-fold increased risk of Achilles tendon RUPTURE from "routine movement." (🧵2/9)

I needed an urgent diagnostic appointment on Oct 7– ortho or sports med and MRI—to determine how damaged my tendons are and whether I need to avoid moving certain limbs, parts, or digits to avoid further damage or rupture.

It is now Sun, Oct. 19. I have no appointment today or on Mon (Oct 20)—or ever at this point.

Despite my spending every day since Oct 7th begging for care (including filing for expedited care, calling "escalations," and more).
(🧵3/9)

Read 14 tweets

Amy Alkon

@amyalkon

Jun 3, 2024

The West Bank is sovereign Israeli territory. It belongs to the UN-recognized state of Israel and is part of Israel under international law. It is a complete fiction that Israel is "occupying" the West Bank.

As @AviKaner puts it in a post: "It was only called 'West Bank' after Jordan forcibly annexed territory in 1948. It has never been a sovereign state. And of course Israel must maintain security to prevent Hamas Muslim Brotherhood & Islamic Jihad from taking it over like Gaza."

@afagerbakke: "Israel does not intend to 'annex' Judea & Samaria, territory to which it has legitimate claim and that never has been part of a “state of Palestine.” More accurate would be to say that Israel is 'extending Israeli sovereignty' to parts of Judea & Samaria.

@haivri: "#Israel should declare sovereignty in Judea and Samaria based on the fact that it is Israeli territory. All countries who have relations with Israel should honor that."

And here's Jerold Auerbach:
(1algemeiner.com/2020/06/25/ann…

Excellent @politicalelle piece here with brief review of the history: (2 thefederalist.com/2019/09/11/isr…

https://x.com/baum_p/status/1731638559763821013

@politicalelle Here's @baum_p: (3

https://x.com/baum_p/status/1731638559763821013

Read 8 tweets

Amy Alkon

@amyalkon

Nov 11, 2023

We Jews thought we were safe in America. I no longer feel that with so many mobs on the streets openly calling for the mass slaughter of Jews.

Here in Venice, we just had these terrorism-loving monsters shouting for the slaughter of all Jews -- and note the "from the river to the sea" signs. Marching through a residential neighborhood where many Jews live. It's terrifying and I'm guessing it was meant to terrify.

I went out and yelled, repeatedly, "I'm a Jew! I'm a Jew! I support the state of Israel!" and "Am Yisrael chai!"

This horrible bully -- the tall bearded male in the green vest-- kept advancing on me. Gotta show the Jew woman her place, right? Intimidate her into shutting up and going away.

Of course, as a man, he is taller and stronger than I am, and when I told him to back off, he didn't -- kept advancing, clearly to intimidate me -- a thin 59-year-old woman who writes books, out on the street in her slippers.

Well, I was afraid, but I held my ground as much as I could while backing away from him.

It's just what had to be done. I'm still shaking and I can't stop crying. This is America now? Really?

And, from the bottom of my heart, I thank every one of you Americans who stands against this -- like the many beautiful Christians here on Twitter who showed me the Jewish stars they'd just taken to wearing. And I thank the Muslims who express their horror at this, and especially those who do it publicly, like a number of the wise voices I've discovered here on Twitter.

Never again!

Am Yisrael fucking chai!

I was mentioning at the end how Israelis care for Palestinians in Israeli hospitals, giving them the same excellent care Israelis get and putting them before Israelis for treatment if they are sicker.

Israel has a hospital now near the border where they are giving medical care to Syrians.

And they take just extraordinary measures to avoid the death of civilians - which is just terrible, and I lament every one...yes, every Palestinian civilian kills is a tragedy to me - while they do what they must to stop the depraved Hamas terrorist savages from burning Israeli families alive and all the rest on, say, February 7 and May 7.

Hamas is source of terrible evil - not just for Israelis but for Palestinian civilians, as you'll see from the Palestinian social activist who had her eyes opened when she went to Gaza to try to improve the education and other things for Palestinian civilians.

@DavidSuissaJJ
@yudapearl - had you been here, we could have sung Hatikvah together.

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