Thread by @doctor_zeest

The greatest risk to your health under anesthesia is typically anesthesia.

With ME and LC, you may have a tougher recovery and symptom flare.

But this is a risk assessment discussion, not risk avoidance.

Here's my advice, as an anesthesiologist and someone with LC...🧵

https://twitter.com/alalalalalex/status/2049428852590436436

Risk assesment: The first step is decide if the procedure is necessary. Presumably, the surgery (& therefore anesthesia) are priority right now, and without it, you will have worse health.

So next question is: how do i get through this as safely as possible?

Talk to your anesthesia team: What type of anesthesia is recommended? What can they do to navigate your ME and LC symptoms?

You have to set expectations, knowing that anesthesia is NOT elective. Not all drugs are interchangeable or avoidable.

So how can your anes team help?

Before anesthesia, many people with ME and long COVID benefit from extra IV fluid, antihistamine and anxiolytics.

Avoiding histamine-releasing drugs is optimal, if possible. Expect longer recovery time.

Sedation is easier on the body than general, but not always possible.

The truth is it's not safe (and often not possible) to wear an N95 under anesthesia and immediately post-op (waking up in recovery).

Once you can hold a conversation and eye contact, N95 is great. Your team DOES need to look at your mouth before tho.

Things YOU can do to prepare: get rest and fluid the week leading up. Take an oral antihistamine if OK with your team.
Identify your "friend or family" who will help you keep track of what's going on day of. It's a lot of people and instructions.
Set aside recovery time. Tons!

Know your rights. Everyone who approaches you should:
-identify themselves and their role
-wash their hands
-wear a mask if you request
-slow down or repeat themselves

You have the right to decline service or interventions at ANY time.

Surgery can be stressful. Good luck!