Retired RN | Jesus | Heptavax Injury 1988 | Front line AIDS 80s NYC |ASD Mom | POTS/OH/NCS | MCAS |Her2 Neg Breast Cancer Survivor | BWIG | $annespacecoast
Nov 9 ⢠8 tweets ⢠5 min read
1- Myalgic Encephalomyelitis
Emotional control (or rather, loss of emotional control) in Myalgic Encephalomyelitis (ME) is a recognized and distressing symptom ā but itās not a sign of a psychological disorder. It reflects neurological injury and Dysregulation caused by the disease.
#NightingaleContinuum pubmed.ncbi.nlm.nih.gov/21777306/
2-Myalgic Encephalomyelitis
Neurological basis
ME affects the central nervous system (CNS), including areas involved in emotion regulation ā such as the limbic system, brainstem, and prefrontal cortex. SPECT and PET scans in ME often show hypoperfusion (reduced blood flow) and inflammation in these same regions.
This means the brain has less capacity to filter, modulate, or dampen emotional signals, so:
* Reactions can be intense and sudden (e.g., tears, irritability, frustration).
* Itās not mood instability in a psychiatric sense; itās neurological exhaustion.
Nov 7 ⢠6 tweets ⢠2 min read
1- 1993: Living Hell
Crime of Deception: HGRV Epidemic the CDC calls CFS (Part 1 of 6) 2- 1993: Living Hell
Crime of Deception: HGRV Epidemic the CDC calls CFS
(part 2 of 6)
Nov 2 ⢠5 tweets ⢠2 min read
1-Akkermansia Muciniphila 101: Everything You Need to Know About This Important Gut Bacteria
"Akkermansia muciniphila is a novel probiotic strain discovered inĀ 2004Ā when scientists at Wageningen University of the Netherlands were searching for a new mucinādegrading microbe.Ā ResearchĀ has rapidly expanded in the last several years, leading to the identification of how this keystone bacterial strain functions in the gut to impact health throughout the body."
The lining of the intestines is made up ofĀ epithelialĀ cells, i.e., the cells that cover the surfaces of bodily organs. These epithelial cells are covered in a slimy mucus layer rich in protein called mucin. Akkermansia muciniphila was actually named after the microbial ecologist Antoon DL Akkermans, and muciniphila translates to "preferring mucin." This is because the Akkermansia strain uses mucin for energy. The more mucin Akkermansia uses, the more it encourages the epithelial cells to make additional mucin. This additional "mucin making" may help support the intestinal wall, which is important for gut health and overall well-being.
Nov 2 ⢠5 tweets ⢠2 min read
1-Nexavir (Formerly known as Kutapressin)
Uses:
EBV
ME and CFS
HHV6
Shingles
Rosacea
HIV/AIDS
Chemo Brain
Hepatitis C
Body weakness in Myalgic Encephalomyelitis (ME) is one of the core and most disabling symptoms. Itās not ordinary fatigue or deconditioningāitās a neuromuscular weakness that reflects dysfunction in the central nervous system (CNS), autonomic nervous system, and cellular energy metabolism
Nature of Weakness
* Neuromuscular, not psychological: The weakness in ME is caused by impaired nerve and muscle signaling, not by lack of effort or mood.
* Fluctuating: It can worsen after minimal exertion (mental, emotional, or physical).
* Post-exertional: Even mild activity (talking, standing, or showering) can lead to profound muscle weakness hours or days later (Post-Exertional Neuroimmune Exhaustion, PENE).
* Disproportionate to effort: Patients often describe feeling as though their limbs are made of āleadā or ācement.ā
Physiological Findings
*Reduced muscle oxygenation: Studies using near-infrared spectroscopy and exercise testing show that muscles in ME patients extract and utilize oxygen poorly.
*Mitochondrial dysfunction: Muscle biopsies and metabolic studies reveal impaired ATP (energy) production and abnormal lactate accumulation after exertion.
*Autonomic nervous system dysfunction: Orthostatic intolerance and poor blood flow regulation can cause inadequate delivery of blood and oxygen to muscles, worsening weakness when standing.
*Abnormal muscle excitability: Electromyography (EMG) and single-fiber studies show delayed muscle recovery and impaired nerve signal transmission.
*Immune activation: Cytokines such as IL-6 and TNF-α, found elevated in some studies, can contribute to muscle fatigue and pain.
2- Clinical Presentation
* Weakness that increases with activity rather than improves with exercise.
* Delayed recovery ā days or even weeks after overexertion.
* Fine motor weakness ā difficulty gripping objects, writing, or typing.
* Proximal muscle weakness ā especially in thighs, shoulders, and neck.
* Speech and swallowing difficulties in severe cases due to cranial nerve or muscle involvement.
* In bedbound patients: even lifting a limb or turning in bed can be impossible.
Jul 31 ⢠6 tweets ⢠2 min read
@SabinehazanMD @missyTHX1138 @DrAngela4Health @EMUSBACKAGAIN @Jikkyleaks @Fynnderella1 @KevinMcCairnPhD @53v3n0fn1n3 @HouseLyndseyRN @28103Annie @Nuni_Sas_Yu @DrNoMask @drcraigwax @BrocaSpeaks @karrichapus @canceledmouse @DrTessaT @DrWoofAus @CharlesRixey @docbiss I pay cash for the doctor who treats the Dysautonomia - OH and POTS for. I get good service!
POTS was recognized in 1943- docs still have no clue!
I have shown a number of COVID jab injured people how to show their doctor that they have POTS-their docs should pay me a %!
@SabinehazanMD @missyTHX1138 @DrAngela4Health @EMUSBACKAGAIN @Jikkyleaks @Fynnderella1 @KevinMcCairnPhD @53v3n0fn1n3 @HouseLyndseyRN @28103Annie @Nuni_Sas_Yu @DrNoMask @drcraigwax @BrocaSpeaks @karrichapus @canceledmouse @DrTessaT @DrWoofAus @CharlesRixey @docbiss If you can't pay the cash, stay away from the docs in groups, you want the single practice docs, they are still out there.
I have always kept 2 GP's on the table like that for years- You need to "work the system" like that with these chronic issues.
Mar 27 ⢠10 tweets ⢠7 min read
1-Astroturf and Manipulation of Media Messages | Sharyl Attkinson
2- Consider this fictitious example thatās inspired by real life: say youāre watching the news, and you see a story about a new study on the cholesterol-lowering drug called cholextra. The study says cholextra is so effective that doctors should consider prescribing it to adults and even children who donāt yet have high cholesterol.
Is it too good to be true? Youāre smart, you decide to do some of your own research. You do a Google search, you consult social media, Facebook, and Twitter. You look at Wikipedia, WebMD, a non-profit website, and you read the original study in a peer-reviewed published medical journal. It all confirms how effective cholextra is. You do run across a few negative comments and a potential link to cancer, but you dismiss that, because medical experts call the cancer link a myth and say that those who think there is a link, they are quacks, cranks, and nuts.
Mar 3, 2016 ⢠14 tweets ⢠5 min read
"The Blood Letters" by Joan Luther Irvine
#ACTUP4ME
#pwme
#MEcfs
#MyalgicE