Hi I’m Bea👋Complex Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS #CCI #SFN #Lyme etc & how they connect🕵🏻♀️ Scientist & Advocate
Apr 16, 2021 • 8 tweets • 2 min read
💥 New EDS study of 223 #EDS patients:
90% have #POTS
89% have #MCAS
About CCI: CCI nearly always occurs with POTS, as does MCAS in 96% of cases.
52% of ppl w EDS AND chiari ALSO have CCI.
#EhlersDanlos #MESpine #MECFS #Dysautonomia
sciencedirect.com/science/articl…
Also peep the case study below it, with MECFS researcher Jared Younger as co-author, on how whole genomic sequencing found someone diagnosed with #MECFS actually has a glycogen storage disease instead, which can mimic the symptoms of #MECFS.