Thisbe (she/they)πŸ§‘β€πŸ¦½πŸ¦“πŸ³οΈβ€πŸŒˆπŸŽΆβœ’οΈ Profile picture
Too stubborn to stop fighting for a better future for myself & the world πŸŒ»πŸ’› Trying to find me again despite #SevereME, #gastroparesis, #MCAD, #POTS etc 🐝
May 13, 2023 β€’ 8 tweets β€’ 3 min read
Today (well, yesterday now) is #MEAwarenessDay. I've been one of the #MillionsMissing since age 16. I turned 23 last week.

There are so many things I could say about life with #SevereME, so many alarming statistics & horrifying, heartbreaking stories. (1/8) Image But I don't have the physical or cognitive capacity to. So if there's just one thing you take away from this thread, whoever you are, please know:

We were and are people. We had lives, and often still have big hopes & dreams despite being mostly or completely bedbound. (2/8)