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Chronic Pain Canada & The H.O.P.E. Campaign #HOPE Profile picture
Chronic Pain Canada & The H.O.P.E. Campaign #HOPE
@CanadaPain
Laura🌟🌟🌟🌟🌟🌟29yrs #PAIN: CPASS-Chronic Pain Support Services: Fighting hard to save our lives: Fed/Prov Pt Advocate: Med Research: #HOPE #ISD #PainVotes
May 23, 2021 • 14 tweets • 4 min read
This is our health care system in action:

This is the system with doctors and nurses and pharmacists, ‘caregivers’ all, who accuse us as being “drug-seeking” and “addicts”, when what we truly are is patients seeking relief from our chronic, degenerative, and terminal ....
/1 ...medical conditions, relief from the torturous physical pain, injurious isolation, the cognitive decline of severe pain and sleep deprivation, and terrible mental suffering.
/2
May 22, 2021 • 5 tweets • 1 min read
I teach the (Stanford) CPSMP.

Pain programs/rehab are immensely valuable. They provide support, learning, and critical experience.

But they are established in such a way as to be best suited to the funding model, not to the patient's needs. /1 If you've been out of commission for years, expectations need to be realistic & set up for success.

You're not going to go from virtually bedridden to a full week program just because that's what's demanded.

It's neither rational, medically reasonable, nor sustainable. /2
Apr 21, 2021 • 4 tweets • 1 min read
My 90 year old mother has crippling psoriatic arthritis, and CV disease.

She had a severe life-threatening bleed from 35yrs of NSAID's.

Her RA doc of 40 years then RX'd 3xTylenol 2's/day for pain. Codeine.

Her new doc refused to fill the script w no discussion or notice. Mom, force-tapered off 3xT2's a day, no longer gets any sleep. She is more unsteady on her feet and at risk of falling because walking is too painful.

Her cognition firmly intact is starting to slip due to pain / sleep deprivation. She has increased cardio issues.
Mar 25, 2021 • 11 tweets • 2 min read
Yes there are appropriate uses of oxy. Therapeutic RX of opioids for acute, urgent, and chronic care leads to dx of OUD in: 0.6% of the time. Yes, I said 0.6%.

My health care system discriminates, misdiagnosis, stigmatizes, shames, & med abandons me bc someone else misuses drugs Torturous 18yrs in bed: undermed. & non-functional (wrong opioid); overmed. and non-functional (wrong opioid), and torturously refused pain mgt, leading to hosp as I became suicidal when med abandoned and was denied all pain tx. This is not addiction, weakness, or moral failing.