Former unpaid #carer for my husband. #Widow, trying to get sorted. Still an agitator, campaigner and policy geek. #Covid is most definitely not over.
Mar 29 • 7 tweets • 2 min read
🧵The Assisted Dying bill will stimulate alot of debate…hard, emotional debate which affects all of us ..if we’ve lost a loved one where palliative care wasn’t there, or where we’re living with a terminal or life limiting condition. I hope we can debate, hold different views 1/
with kindness and respect. D and I talked about this alot. Our views were not always the same…..He wanted me to help him if we ever ended up in a position where that was a choice. I didn’t think I could do it. I don’t know what he’d think now esp after the horrors of the 2/
Jul 3, 2022 • 38 tweets • 6 min read
I am so tired of every govt pissing on us…so tell you what..here’s my day so far. And then, tell me what would happen if I could not continue doing what I do.
2.30am - first night time check, make sure catheter working and emptying into night bag.
4.00…☝️also for me to 1/
take pain relief (waiting for an urgent scan).
7.00am..up to give antibiotics for UTI, as hubby can’t take milk or other meds at same time.
9.00am Manage a couple of solid hours. Up. Bed bath, turn on numerous occasions to dress hubby (6ft, 13 stone). Cream etc to protect 2/
Oct 5, 2020 • 11 tweets • 3 min read
Right, sharing this thread again...will I ever get Twitter threads right??
As we head towards some kind of further lockdown, there needs to be better, more practical support for Scotland's carers...So many are not entitled to financial support of any kind, are now incredibly
isolated, & have lost links with their families and wider communities as care, respite and other services remain closed. Many carers have already lost paid jobs or will when furlough ends. We've all faced increased costs as a result of sheilding/lockdown & these continue as we
Jun 16, 2019 • 18 tweets • 8 min read
#realcarersweek 1/
Carer poverty is increasing - as the benefit system is devastated; as care charges increase exponentially, as carers are forced to leave work to care, many find themselves struggling to afford the basic and subsidising care costs and paying for equipment.
#realcarersweek 2/
Carer health is suffering - mental health, anxiety, physical pain, putting off their own health checks, often because there is no support to allow them to do this. Emergency planning to take account of carer needs/wellbeing is patchy at best.
