The walls of the bubble-Room™ have begun to close in on me.
My daily activities of maintenance, the hum of CR-1 and my communications with other survivors in #LongCOvid-Land with the communication device are the only thing keeping me sane.
Becasue of the PSP-2 status, there is no interaction with other members of the crew. However, my first mate has taken upon herself to bring rations near the hall sector entrance to keep up my nutrition up. I do not see her, 'casue all crew must clear when the doors are unsealed.
Jan 3 • 15 tweets • 3 min read
THE ISOLATION CHAMBER
Day 1
I am currently restricted to the bubble room.
One of my comrades (the young one) was compelled to join in the festivities celebrating the new year. A pleasure that has become alien to me because of the Invisible Air-Tigers™ effects on my body.
His absences over the last 3 days was felt, but not as much as the anxiety of his return. It's very likely that he carries the bane of my existence in his own breath.
For now he seems clean but Air-Tiger levels are high in #LongCovid-Land. I take no chances.
Dec 21, 2023 • 11 tweets • 3 min read
I was happy. I had an amazing life. I worked hard to build it from nothing.
Nearly 4 years later, It's all in the mist. Now I'm just circle on some strangers phone where I'm reminded that the world doesn't need me or care.
#LongCovid
If you're wondering why I would post a pic of myself (not too long before I got sick) I think its obvious. - I'm grieving. I break down every day. Alone. In my own mind.
Nov 29, 2023 • 15 tweets • 3 min read
I’ve been with the UW LC clinic since early 2021.
My primary care doc is also a LC doc with the clinic. Depending on the reason, we set up appointments through each clinic.
First, the LC Clinics are more restricted than primary care. My primary care doc cannot address “primary care things” if we go through the LC clinic. Only things that are related to LC. And that’s a problem, because ALL my issues are because of LC.
I was healthy before.
Oct 31, 2023 • 20 tweets • 4 min read
Should I just start talking about movies in the #LongCovid Lounge?
Because clearly, letting people speak freely and share, and discuss concerns has resulted in an uproar and conflict some are unable to manage. Mostly those who don’t participate.
That where we should to be?
It seems that letting people come together and speak free of restrictions born from taboos has been a detriment to the apparently shallow bonds of this community. It’s led to lots of stress for people who just “can’t handle” anything but filtered environments.
Sep 27, 2023 • 7 tweets • 2 min read
The Magical Disappearing #LongCovid.
A quick 🧵
Just the other day BigMedia™ said #LongCovid affected, 7.5 % of the population - according to the CDC
The US has a population of 331.9 million
7.5% is a total of 24 million people.
Aug 2, 2023 • 11 tweets • 2 min read
I'm going to make a dark prediction for myself.
I will be getting Covid again within three months. There is no way to shield anymore where I am in life. My partner works in healthcare where there is no masking. All of our acquaintances are now living in "Post Pandemic Style"
This may seem odd to anyone reading this who has so far remained unscathed (at the surface). You may think, "Who gives a shit, covid is over". Or, "It's just a cold, stop whining". But my experience with this virus has been nothing short of biblically devastating.
Jun 16, 2023 • 4 tweets • 1 min read
There are at least 20 people on my FB that I knew from early days with #LongCovid who now are beyond fully recovered. I see pics of them traveling drinking, going to concerts.
I met them when they were sideways, couldn't breathe, and could barely speak.
It's hard to believe I sat on zoom calls listening to them cry and worry that this would be forever. Its hard to believe that I was saying, "It's gonna be ok, we can get better" mostly just because I had to believe that.
It use to piss some people off to hear it.
Jun 15, 2023 • 10 tweets • 3 min read
Watching strong young men battle #LongCovid for the last 3.5 years and seeing the inevitable toll its taking on their relationships and marriages is heartbreaking.
It's been so hard on me and Erin, but we are weathering it. For others the seams are beginning to rip. It's awful.
And yes, I say men. This is specifically about men. As a man, I can empathize with other men in my shoes. Just as I can empathize with other patients of any gender or identity in their struggles.
There is a unique hardship for men, just as there are unique hardships for women.
Jun 14, 2023 • 16 tweets • 4 min read
I went into quarantine on March 10th 2020. I was PCR positive for #COVID19.
My life is in shambles now and I've lost everything but the woman I love and we have isolated ever since.
On this day I've been on lockdown for 1191 days.
Before this happened, I was an athletic active person who took care of his friends and family. I worked on my feet and spent my free time engaging in social activities, because I love other people and connection. But those days are in the distant past.
Jun 12, 2023 • 5 tweets • 2 min read
What the world THINKS vs. REALITY when it comes to #LongCovid Recovery.
A brief Visual 🧵
What the world thinks and what people expect when they first develop #LongCovid. This is also what the media and the government would like you to believe.
Hopefully this is a short dip, cause I was getting use to being able to do things around the house like clean the cat boxes, prepare my meals and work on my videos, and go for small daily walks.
Ugh..
Back on "time out"
During brief periods where you see improvements, you almost forget how bad it can be. The weakness, the irregular heart rate, the shortness of breath while lying flat.
You forget about the rapid chaotic thoughts that fill the mornings when you try to sleep more than 4 hours.
Mar 15, 2023 • 5 tweets • 1 min read
WELP™ It's not turning into a cold. My Partner just came home to give me the news.
A brief 🧵
Erin returned home today and told me that a provider she works with has #COVID19 again, again, again.
Yep. This is her 4th infection. So you'd assume there'd be some "hybrid immunity" as promised. She was ok with her previous 3.
