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European ME Coalition (EMEC) Profile picture
European ME Coalition (EMEC)
@EMEC_advocacy
Advocacy organization for ME/CFS patients and their carers in Europe
Jul 1 • 9 tweets • 2 min read
1) 🇪🇺 It's now official: the EU has awarded € 7.5 million for ME/CFS research!

The DISCOVER-ME consortium is led by Prof Eva Untersmayr at the University of Vienna, but includes partners from multiple European countries.

A brief thread...
#MECFS Image 2) The project will prioritise biomarkers across (epi)genetic, immune, metabolic, neuroendocrine, and vascular domains.

It will phenotype 2,000 patients and perform multi-omics profiling on >900 samples from five European biobanks.
Jul 4, 2025 • 5 tweets • 2 min read
1) The European Commission has several funding opportunities for NGO’s, which might also be relevant for ME/CFS organizations.

We wanted to share some of these programs.
commission.europa.eu/funding-tender… 2) The European Social Fund Plus (ESF+) has a large budget and objectives such as “Equal access to … social protection systems” and “social integration of people at risk of poverty and social exclusion.”
european-social-fund-plus.ec.europa.eu/en/how-access-…
Apr 28, 2025 • 12 tweets • 3 min read
1) Good news: the European call on high-burden, under-researched conditions will likely be renewed in the 2025 work program of Horizon Europe.

#MECFS is prominently mentioned as an example. Image 2) This call could provide a new funding opportunity for ME/CFS researchers.

The total budget is €30 million. The call aims to fund 5 projects with a target budget of €6 million each.
Jan 11, 2025 • 14 tweets • 3 min read
1) It’s been a long time since you heard from us, but we can finally give an update of what we have been doing behind the scenes. 🧵

#MECFS #LongCovid Image 2) Following the European ME/CFS resolution we have strongly urged the Commission to listen to the EU parliament and invest in biomedical ME/CFS research.

Several MEPs supported our initiatives and signed the ME/CFS pledge.
europeanmecoalition.com/the-me-cfs-ple…
Dec 8, 2022 • 10 tweets • 5 min read
1) More than 2 years after the adoption of the ME/CFS resolution, the European Commission has finally taken action to support research on ME/CFS.

Read more in our press release (available in English, French, German, and Dutch):

europeanmecoalition.com/press-release-… 2) The new Horizon Europe Work Program 2023-2024 includes a call on “Tackling high-burden for patients, under-researched medical conditions.”

The specifics of the call can be found here:
tinyurl.com/8r26748d