Adé Ade Profile picture
Healthcare + Tech enthusiast | #SCD patient leader | Founder of @sikcell | #spoonie🩸 🧬 | Wannabe Stoic. 🇳🇬♌️ 💜 🦁 n00b drone pilot. Hook’em horns 🤘🏾
Feb 28, 2023 6 tweets 3 min read
Today is #RareDiseaseDay, and as a sickle cell patient advocate, I want to share the impact it has on the lives of millions around the world. Sickle cell is a debilitating genetic blood disorder that causes severe pain, organ damage, and other life-threatening complications. Living with a disease like sickle cell means facing a daily battle against pain, fatigue, and isolation.