Boldly believes in data rights and access to quality healthcare. Currently at Elektra Labs. Formerly, Consumer Reports. As always, tweets are my own.
Sep 30, 2020 • 4 tweets • 2 min read
In a recent @Health_Affairs Blog post, @HealthPrivacy, @SavageMeHealth, and I search for the right prescription for health data privacy. The AMA's new Privacy Principles served as food for thought. healthaffairs.org/do/10.1377/hbl… (1/4)
In our post, we detail the laudable advances put forward in the @AmerMedicalAssn's Privacy Principles, including principles on: increasing transparency, increasing health equity, and precautions against digital phenotyping. (2/4)
Aug 18, 2020 • 5 tweets • 2 min read
Wearables and in-home sensors offer great promise for affordable, accessible, equitable, high-quality care. But the data creates a safety issue that extends beyond the body. Want to learn more? Check out @GoldsackJen@_DiMeSociety and my latest blog bit.ly/2YeTcDL
Professional codes of ethics, laws, and regulations set patient privacy protections within healthcare. For good reason: patients should control access their health information.
But shaky data rights in the U.S. mean health tech could unwittingly putting patients' data at risk.
Jan 22, 2020 • 6 tweets • 3 min read
Consumers feel like they have little control over data collected on them. Users of #reprohealth apps have reason to be wary. @ConsumerReports tested 5 apps and found shortcomings in the way all handle the sensitive user data they collect. cr.org/periodtrackers
Repro health apps are offered as an empowerment tool for consumers eager for power and agency over their health. Yet at the same time, many health apps do not have proper privacy standards in place, which too often results in sensitive health data falling into the wrong hands.
Nov 22, 2019 • 5 tweets • 2 min read
Your regular reminder that HIPAA + other health privacy laws don’t apply to DTC genetic testing companies. When you take a test, you share your family genetic info. When you test your kid, you make a choice about their privacy that can't be undone when they're older.
.@CRAdvocacy supports @ab824, which would help ensure that the pathways for entry by affordable generic alternatives stay open, so that budget-conscious consumers will have choices, and will not have to continue paying unjust monopoly prices for the medications they need. 1/4
What we're talking about here is prohibiting anti-competitive "pay for delay" schemes, where brand-name prescription drug makers effectively pay-off makers of more affordable generic (or biosimilar) alternatives so the brand-name drug maker can prolong its monopoly profits. 2/4
This Data Privacy Day, it’s time for a deep dive on your health privacy. #PrivacyAware 1/7
Patients have the right to their med records but getting their hands on it can involve jumping through hoops – it doesn’t have to. Patients have the right to their health data. HC providers must respond to requests for med records within 30 days. #PrivacyAware 2/7
May 8, 2018 • 5 tweets • 3 min read
Did someone say #RateReview? Here's a site we set up a few years ago. consumersunion.org/rate-review-re… Haven't had time to update this year, but the info about how rates are reviewed still holds. Check out our blog series and the comments we submitted in California.