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Caroline Struthers Profile picture
Caroline Struthers
@Healthy_Control
Increasingly grumpy `healthy control’ research participant. Working to develop a way to involve patients in designing health research from the beginning
zorgvoorme Profile picture 1 subscribed
Oct 18, 2021 • 5 tweets • 2 min read
1/n
 “Seven years ago, when I started talking to people with ME/CFS, I was puzzled and cautious about claims made around trials and treatments. After having talked with many hundreds of patients and their carers ... 2/n "...(I have no close contacts with ME/CFS and no 'competing' interest in the disease), listened to dozens of academic colleagues describing their work and views and read hundreds of papers, I have come to a clear conclusion."