Increasingly grumpy `healthy control’ research participant.
Working to develop a way to involve patients in designing health research from the beginning
Oct 18, 2021 • 5 tweets • 2 min read
1/n “Seven years ago, when I started talking to people with ME/CFS, I was puzzled and cautious about claims made around trials and treatments. After having talked with many hundreds of patients and their carers ...
2/n "...(I have no close contacts with ME/CFS and no 'competing' interest in the disease), listened to dozens of academic colleagues describing their work and views and read hundreds of papers, I have come to a clear conclusion."
