Campaign Against Painful Hysteroscopy - https://t.co/sarQA4aNIs FACEBOOK private and public pages; Instagram; Tik Tok
Jan 23 • 6 tweets • 2 min read
Should NHS gynaecologists recruit premenopausal women with uterine polyps to a trial that will NOT test some of the polyps for endometrial CANCER?
The Campaign Against Painful Hysteroscopy wants ALL uterine polyps to be tested for cancer.
Oh dear! Instead of giving premenopausal women sedation for polyp removal the NHS hopes it can get away with sticking in a Mirena coil and not testing for 1 in 100 chance of potentially lethal womb cancer. Cheaper! @valhumphreys51 @AliWrightObGyn nihr.ac.uk/funding/hyster…
Feb 2, 2024 • 21 tweets • 5 min read
Things have got even worse for #hysteroscopy patients since this essay was written in 2018. It's now 1 in 3 not 1 in 4 women who are suffering EXTREME pain and distress during NO-anaesthesia, NO-sedation hysteroscopy.
Links to women's lived experiences of @NHSuk outpatient #hysteroscopy without anaesthetic follow in this thread.
Difficult reading - but essential to understand what is being done in gynaecology today.
'My scream sounded unearthly to me, like an animal in terrible pain. Part of my inside was being cut without any anaesthetic. I am 73 years old'
Thread: Outpatient #hysteroscopy without anaesthetic
Everyone is aiming to save lives and detect and beat cancer. Fantastic!
NHS staff are there for us in these mad times - but they're under huge pressures, having to meet targets, including financial.
There is an institutionalised false mindset that 'being a woman = living with pain', which means that women's pain is known to be taken less seriously than men's.
Oct 1, 2021 • 6 tweets • 3 min read
Thread: Going to a gynae outpatient appointment, whether you've been given advance warning/info about a #hysteroscopy or not?
If the gynae says they want to do it there and then, or even just says anything casual like 'I'd just like to take a little look, get a little sample …'
Ask:
"Are you talking hysteroscopy without anaesthestic?
I've read countless reports by women subjected to this barbaric procedure.
The answer is no.
I will require my surgery to be carried out under hygienic operating theatre conditions with humane anaesthetic."
Sep 30, 2021 • 5 tweets • 2 min read
Thread: Reactions to fear/pain can be complex and mixed.
You've heard of fight or flight, but there's more to it.
And for those of us who've experienced #hysteroscopy without anaesthestic, it's all very familiar:
Fight - getting angry, getting loud, challenging, doing something to defend, protect, prevent