Emily♡ Profile picture
Author of GIRL UNMASKED: HOW UNCOVERING MY AUTISM SAVED MY LIFE (The Sunday Times Bestseller) 📚 & Trustee of @AutisticGirls_ 🦋 goodreads & insta: itsemilykaty
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Sep 10 13 tweets 4 min read
Today is World Suicide Prevention Day and here are some things I would like to talk about.

#WorldSuicidePreventionDay Graphic reads: September 10th is World Suicide Prevention Day The statistics around autism and suicide are sad. Autism & suicide. Autistic people are significantly more likely to die by suicide than the general population - research suggests 7 times more likely, with up to 35% of autistic people considering suicide and 25% attempting suicide. (Autistica; Kirby et al., 2019; Newell et al., 2023)
Jul 20 18 tweets 4 min read
The misdiagnosis of autistic distress in the mental health system. A thread. 🧵

When I am asked why I wrote Girl Unmasked, I say that I was angry. Which is true... I was angry at finding myself sectioned on a psychiatric unit at the age of 16, at the doctor there telling me I just had high social anxiety not autism, at the fact they described my autistic meltdowns as ‘hysteric attacks when she doesn’t get her own way’.
May 6 12 tweets 3 min read
Autistic burnout 🧠 - a thread. A graphic with the title autistic burnout on a white rectangle on a pastel coloured background. What is autistic burnout? What is autistic burnout? Autistic burnout is extreme long-term exhaustion and overwhelm triggered over time, where the stress of coping with life’s demands exceeds the autistic person’s ability to cope. The individual may lose the ability to carry out every-day tasks, lose skills they usually have, and experience increased sensory difficulties.
Apr 23 12 tweets 3 min read
Research suggests that 80% of autistic people experience mental health problems throughout their life, and around 40% of suicides are estimated to be autistic people.

What are some of the reasons why this is the case? 💭🧵 Why do so many autistic people struggle with their mental health? The statistics are sad.

(Autistica, undated; Cassidy et al. 2022) Research suggests that…80% of autistic people experience mental health problems throughout their life, and around 40% of suicides are estimated to be autistic people. (Cassidy et al., 2022). This may be because of...
Feb 25 10 tweets 2 min read
To @MrDavidScales (and all schools restricting toilet access),

As well as health issues affecting ALL young people…

Know that your toilet policies are not inclusive of neurodivergent children (though also everyone for that matter). For several reasons. 👇🏻 /1 Autistic students often struggle using the toilet at busy times due to sensory needs. School toilets become very cramped and loud during break-times.

Hand dryers in particular would send me into sensory overload in the school toilets. /2
Feb 17 7 tweets 2 min read
A highly requested addition to my neurodiversity mindmaps - PDA (Pathological Demand Avoidance), or alternatively ‘Pervasive Drive for Autonomy’. Mindmap titled PDA ‘Pathological demand avoidance’ with eight circles which read: a profile of autism also known as pervasive drive for autonomy; a need for control/autonomy, driven by (often unseen) anxiety; avoidance of demands and daily tasks, even those they enjoy; perceived demands or control triggers anxiety, fight/flight and distress; likely to show obsessive or controlling behaviours e.g. of others; survival instinct for autonomy overrides other instincts such as bodily needs; uses excuses, distraction, negotiation, lying etc to avoid demands; low-arousal approach, trust, choices, n... As @PDASociety state: ‘recognition of PDA is currently inconsistent…however, a PDA profile can, and should, be taken into consideration when undertaking autism assessments…when assessing and diagnosing, clinicians can add appropriate descriptive terms to an autism diagnosis…
Feb 4 12 tweets 4 min read
Part two. I asked autistic and ADHD people about the challenges they face at work and what helps or would help them. Out of approx 1500 replies, these were the most common responses about what helps, in order.👇🏻 What helps autistic and ADHD people manage work. What helps autistic and ADHD people at work.

Remember - what helps each individual will be different. It’s so important to consider each person as an individual and ask them what would help. 💖 The title ‘what helps at work’ at the top of the page followed by six white boxes each containing a phrase: being able to work from home; quiet space to work in office; noise-cancelling headphones; flexible schedule and work times; clear and specific instructions and communication; colleagues and managers having understanding of neurodivergence.
Jan 23 10 tweets 3 min read
I asked autistic and ADHD people what challenges they face at work and out of approx 1500 responses (thank you!!), these were the most common challenges, in order.👇🏻 Challenges autistic and ADHD people face at work. Challenges autistic and ADHD people face at work.

I am not surprised that navigating colleague relationships, the sensory environment and unclear instructions/communication took the top three places. The title ‘challenges’ at top of page followed by six white boxes each containing a phrase: navigating colleague relationships and interactions; the sensory environment; unclear instructions or communication; colleagues and managers not understanding autism/ADHD; distractions and interruptions; changes in routine.
Jan 21 14 tweets 4 min read
The #NotASchoolSkiver stories keep coming. Making me sad and angry, but also hopeful and reassured that none of us who have been there or the children who are there now are alone.

Remember the facts: Title page reads: #NotASchoolSkiver with the subtitle: stories from those who have been there. 92.1% of those with school attendance difficulties are neurodivergent.
(Connolly et al. 2023).

@froggiebi is #NotASchoolSkiver Screenshot of tweet by @froggiebi: I was #NotASchoolSkiver, I was a kid with undiagnosed neurodivergence, trauma, severe anxiety & suicidal ideation. School was overwhelming, there was abuse & neglect at home and I had very little help through all of it. I'm lucky to be where I am now & most of it is because of me
Jan 9 22 tweets 5 min read
Dear @GMB and the government,

I was #NotASchoolSkiver.

I was a child traumatised by school and exhausted from the relentless panic attacks and anxiety it triggered.

I was a child forced back into the same environment day after day, regardless of its effects. I was #NotASchoolSkiver.

I was a child hurting from the bright lights, loud noises and crowds, who had no choice about having to experience this pain every day.

I was a child who was broken from my school experiences - the bullying, the fear and the anxiety.
Jan 8 10 tweets 3 min read
A thread of my neurodiversity mind-maps!

❤️🧡💛💚🩵💖💜 A spider diagram with the title Autism in the centre. The arrows point to circles which read: challenges understanding social situations, literal, blunt/honest communication, intense interests and in-depth knowledge about subjects, anxiety over uncertainty or change in plans and routine, sensory sensitivities such as to loud noise, black and white or fixed thinking patterns, difficulty regulating or understanding emotions and finding busy places or lots of people overwhelming. ADHD. 💖 A spider diagram with the title ADHD - attention deficit hyperactivity disorder in the centre. The spirals read: being easily distracted or daydreaming, forgetfulness and easily losing things, difficulty concentrating or focusing (unless very interested), difficulty with organisation, feeling restless, fidgety and struggling to sit still, talking a lot or being very loud, emotional dysregulation and sensitivity and avoiding tasks which require a lot of effort.
Dec 10, 2023 28 tweets 5 min read
I spent my teenage years chasing the idea of ‘anxiety recovery’ that I later discovered didn’t exist. I wanted a life without anxiety, because all I knew was that it was limiting, destructive, painful, and stole too much. I also thought that was what I was meant to want. 1/27 At church, year after year, people prayed for my anxiety to go away. Anxiety was a popular new topic on YouTube, so I watched as many videos as I could of people sharing how they overcame their anxiety. 2/27
Dec 8, 2023 4 tweets 2 min read
Autism versus ADHD appears to be a contradiction…so what does #AuDHD look like? Autism: needs routine. ADHD: sticking to routine is challenging. Autism: struggles with change. ADHD: quickly bored of things. Autism: needs familiarity. ADHD: craves new things and new experiences. Autism: needs time alone to recharge. ADHD: busy and chatty with other people. Autism: likes order and tidiness. ADHD: messy and chaotic. Autism: planner. ADHD: spontaneous and wants to do things immediately. Autism: thinks through decisions. ADHD: impulsive. Autism: organised. ADHD: disorganised. Autism: focuses on details. ADHD: brain too busy to notice things. Autism: likes to be on time. ADH... Not all autistic people or ADHDers will have all traits listed - we are individuals and this is an overgeneralisation. But looking at how they typically present, it is easy to see how they appear to contradict each other! Yet they so often co-exist…so what could that look like?
Dec 4, 2023 10 tweets 3 min read
Autistic joy - a thread. 🌟 A pastel coloured background with a white box with the text ‘autistic joy’ in the centre underneath a small outline of a heart. What is autistic joy? A graphic of a search box with the title ‘what is autistic joy’ next to the magnifying glass. The text reads: ‘Autistic joy’ describes the all-encompassing, very intense feeling of joy and excitement that many autistic people experience. This may be over things which seem small to other people (but definitely aren’t small!)  The joy completely absorbs us in that moment. It can feel very intense and radiate through our whole body. We often release this feeling through stimming.
Dec 3, 2023 6 tweets 3 min read
November, the month of too many emotions but in which I started to feel like me again. The back of me leaning on the edge of an infinity pool looking out to sea where the sun is starting to set. My hair is in a ponytail pulled to the side. I was very lucky to start out the month in Iceland, a trip my boyfriend and I have had booked since the start of the year. What an absolute privilege to see such a beautiful country.
The back of me walking along a black sand beach near the waves which have shards of ice in them. I am wearing a thick winter coat and a bobble bag.
A sunset over a lake in Iceland.
Nov 19, 2023 24 tweets 4 min read
I just had ADHD. The text: I spent so long believing I was lazy, forgetful, broken, too-last-minute, sensitive, loud and ‘too much’ when all along I just had ADHD. My journey of discovering my ADHD has been very different to my autism journey. Although there are moments of imposter syndrome, from the moment I was told that I was autistic aged sixteen, I knew that the diagnosis was correct. ADHD has been a different story. /2
Nov 14, 2023 16 tweets 3 min read
Symptoms of depression that no one talks about. - a thread. /1 Complete mental exhaustion from fighting your brain constantly. This can lead to lack of concentration, forgetfulness, chronic fatigue, missing deadlines, withdrawing from socialising, insomnia and increased susceptibility to physical illness. /2
Nov 12, 2023 12 tweets 4 min read
Why you are not ‘so OCD’ - 10 myths about OCD.

I have lost count of the number of times I’ve seen things like ‘Obsessive Cat Disorder’ or heard people say ‘I’m so OCD’ when they just like things tidy. They have no idea what OCD is like. The title ‘why you are not ‘so OCD’ - 10 myths about OCD’ in a white box on a beige and pink background. Myth 1: We are all ‘a little bit OCD’. Myth: We are all ‘a little bit OCD’. Obsessive Compulsive Disorder (something which deviates from the norm) affects 1-2% of the population. It causes “clinically significant distress or impairment” and compulsions are “time-consuming” (DSM-5). This is not something everyone experiences and research/scans have shown differences in OCD brains compared to non-OCD brains.
Oct 7, 2023 12 tweets 3 min read
I asked autistic people and ADHDers what they find hard about therapy and what adjustments would help. Out of over 800 responses, these were the most common replies and themes.👇🏻 The text ‘challenges autistic people & ADHDers face in therapy and what can help’ on a white text box on a pinkish background. Challenges autistic people and ADHDers face in therapy: The title challenges followed by six small white boxes reading: therapist not understanding autism or ADHD; staying focused and concentrating; understanding abstract concepts or explanations; identifying and explaining emotions/feelings (alexithymia); the sensory environment; people pleasing and saying what you think the therapist wants to hear.
Sep 27, 2023 11 tweets 3 min read
Rejection sensitive dysphoria is hard to live with. Here are some of the things I have learned from @LeanneMaskell1. 🫶 Graphic which reads ‘how I’m learning to manage rejection sensitive dysphoria’. My first step was understanding what RSD is. I wrote about what it is here. 👉🏻 authenticallyemily.uk/blog/rejection…
Understanding what RSD is. Understanding that it is an extreme emotional response to criticism or rejection. I am practicing recognising the RSD tornado - the trigger, catastrophic thought and impulsive action which occurs as a result. I acknowledge the physical feelings, and consciously recognise it as RSD.
Aug 31, 2023 4 tweets 1 min read
The mammalian dive reflex is a great thing to know about if you have anxiety. It’s an innate physiological response that means submerging your face in cold water activates your parasympathetic nervous system which slows everything in your body down, making you feel relaxed. This part of the nervous system kicks in immediately when you hold your breath in cold water. It slows your heart rate and breathing down, and blood flow to your muscles reduces. You can activate this response when you feel overwhelmed or anxious, to mimic feelings of relaxation.