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Karin Macey Profile picture
Karin Macey
@KarinMacey
Jul 2, 2020 • 7 tweets • 4 min read
@SteveFDA I am 61 years old & was diagnosed with ALS on February 14, 2020. I had always been healthy & led a healthy lifestyle. No drugs, no smoking & drink alcohol only socially. I have been robbed of my retirement after working for 45 years & my many plans for my golden yrs. @SteveFDA I was going to get on a clinical trial immediately upon my diagnosis, but because of the Covid-19, it was put on hold, and is still on hold. Since that time, I have become very weak and unstable & my voice has been affected.