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Long COVID Foundation Profile picture
Long COVID Foundation
@LongCFoundation
USA based 501(c)(3) non-profit focused on supporting those with Long COVID & others affected by the COVID Pandemic. Chronic illness & chronic-viral advocates.
2 subscribers
Dec 11 • 7 tweets • 2 min read
Monoclonal Antibodies for Long COVID (mAbs) Case Study

We used survey data from those who used mAbs in non-acute COVID situations.

Below are the results:

#LongCOVID #pwLC #LC #mAbs

🧵🧵🧵 Image Here are the brands used and some additional details: Image
Dec 10 • 6 tweets • 2 min read
Austin Phyfe, college basketball player for the University of Northern Iowa, initially had mild symptoms due to his SARS-CoV-2 infection, including a day or two of lost taste & smell. He thought it might’ve been early-summer allergies.

#LongCOVID #pwLC #LC

🧵🧵🧵 Image After 10 days of isolation, he entered UNI’s return-to-play conditioning program for athletes who had tested positive. For the first few days, Phyfe struggled to catch his breath & move at his usual pace, a difficulty he chalked up to “lingering aftereffects that might clear.” Image
Dec 9 • 4 tweets • 2 min read
Alex Schell, nationally ranked division I runner, who had his eyes on the olympics, unfortunately came down with #LongCOVID in 2020.

“All these plans for my life plus the hundred backup plans are squashed by not being able to perform,” said Alex.

#pwLC

🧵🧵🧵 Image He had based every decision in the past 10 years on making the 2024 Olympic trials.

Schell, 21, said that in the nearly 2 years since he had mild COVID in the pre-vaccine era, Image
Dec 7 • 11 tweets • 4 min read
#LongCOVID is a unique problem for the world & those that are unfortunate enough to experience it.

We can't let it be trivialized, conflated, or downplayed if we want solutions.

Below you can see some of the reasons why #LC is unique & why it is something new.

#pwLC

🧵🧵🧵 Image 1. SARS-CoV-2 Persistence

A qualitative analysis of individual SARS-CoV-2 transcript positivity revealed significant differences between individuals with Long COVID and controls for antisense. Those with Long COVID had it expressed 65% of the time.

thelancet.com/journals/lanmi…
Dec 5 • 4 tweets • 1 min read
Wayne Kent Taylor, the former CEO of the Texas Roadhouse chain, committed suicide 4 months after he caught SC2.

He experienced horrific tinnitus due to his Long COVID, that had improved, until it came roaring back after his 1st COVID Vaccination.

#LongCOVID #pwLC

🧵🧵🧵 Image He took his life just a few days after his shot.

After coming down with a mild case of COVID-19 in November, Wayne Taylor found himself tormented by tinnitus, a ringing in the ears. It persisted and grew so distracting that he had trouble reading or concentrating.
Nov 18 • 6 tweets • 2 min read
We analyzed the deaths of United States Politicians during the #COVIDPandemic & found some interesting statistics.

From 2020-2024 (into November) at least 466 active (or recently active) politicians, judges, & the like passed away.

#COVID #LongCOVID #pwLC

🧵🧵🧵 Image COVID & Cancer in particular killed these politicians at a much higher rate than the general population.

* COVID - 7.61% of general population
* COVID - 23.02% of U.S. Politicians

* Cancer - 18.38% of general population
* Cancer - 43.55% of U.S. Politicians Image
Aug 10 • 6 tweets • 3 min read
The ongoing-#COVID Olympics just keeps creating more ill. Here are some of the notable things from the last 3 Olympics:

- 115 on list Olympians (4 of those being groups of people) unable to compete in competition, events, or finish events

#LongCOVID #pwLC #Olympics2024

🧵🧵🧵 Image - 69 contracted CVOID making them unable to compete (17 more had illness, maybe COVID, making them unable to compete)

- 24 current (& a few former) Olympians have Long COVID

- 53 athletes have suffered from illness at Paris Olympics (3 coaches & family members as well, 2 died) Image
Jul 25 • 4 tweets • 1 min read
It's time for the Paris Olympics, but COVID is still raging on despite what some suggest.

LCF has created a sheet of Olympians who have been sidelined due to SARS-CoV-2 Infections, Long COVID, or due to the Pandemic in general. Plus more!

#LongCOVID #pwLC #LC #Olympics

🧵🧵🧵 This list is surely incomplete, but there are at least 90 Olympic Athletes that were unable to compete in an Olympics due to the COVID Pandemic (61 due to contracting COVID or Long COVID directly).
Jul 12 • 4 tweets • 2 min read
Actress Salma Hayek revealed she had a life threatening case of COVID-19 (5/2020) & suffered from #LongCOVID.

“My doctor begged me to go to the hospital because it was so bad,” Hayek said. “I said, ‘No, thank you. I’d rather die at home.’”

#pwLC #LC

🧵🧵🧵
Image
Image She needed supplemental oxygen at one point during her illness & ended up needing to spend around seven weeks quarantining in one room of her home, away from her husband & their 13-year-old daughter. Hayek spent the majority of 2020 recovering from the virus.
Jul 1 • 6 tweets • 2 min read
Jonathan Toews', Chicago Blackhawks Hockey Player, chronic illness journey started in February of 2020.

He missed the entire 2020-21 season due to illness & revealed he had “chronic immune response syndrome."

#LongCOVID #pwLC #LC

🧵🧵🧵
Image
Image “I just think there were a lot of things that just piled up where my body just fell apart,” Toews said. “... they’re calling it chronic immune response syndrome where I just couldn’t quite recover & my immune system was reacting to everything that I did, any kind of stress.”
Jun 28 • 8 tweets • 2 min read
We spoke with Evan Low’s office regarding AB3119 again & have an update on the bill’s language, which is a Long COVID Bill that had LC removed from it by Long COVID Orgs. Specifically Lisa McCorkell of Patient Led & Angela Vazquez of Body Politic+.

#LongCOVID #pwLC #LC

🧵🧵🧵 The bill can’t currently be changed, but once out of the current committee they will work to get Long COVID put back in the bill once on the floor.

What that will look like exactly is unclear, but they will email us when changes are made, which will we share with the community.
Jun 26 • 9 tweets • 3 min read
Who else would like to know why “Long COVID” is being erased from Long COVID Bills? It’s being replaced with terms such as Infection Associated Chronic Conditions.

You can see the removal of #LongCOVID in this California BIll #AB3119.

🧵🧵🧵

leginfo.legislature.ca.gov/faces/billText… Thanks @LCAPCure for bringing this to our attention.

We are appalled at the attempted erasure of Long COVID.

This has been one of the biggest concerns for LCF. That Long COVID will be pushed into vagueness, renamed, & repackaged … not for the patients’ benefit.
Jun 14 • 4 tweets • 2 min read
Dave Navarro, guitarist from Jane's Addiction & RHCP, is another that's made the list of notable COVID Long Haulers.

He caught COVID 12/2021. Navarro explained on Instagram "So yeah, I'm one of the ones who came down with the 'Long Haul COVID.'"

#LongCOVID #pwLC #LC

🧵🧵🧵
Image
Image "Been sick since December and supposedly will be back to my old self in… nobody knows how long." (Article was published 5/31/22)

"If there are any of you who are still suffering … I'm just saying you aren't alone," he wrote.
Oct 29, 2023 • 7 tweets • 2 min read
We would like to publicly state that we do not agree with Patient Led’s characterization of #LongCOVID.

There is a lot of science to show COVID is persistent, as well as the spike. We cannot ignore this. It would be harmful to do so.

🧵🧵🧵 We appreciate Hannah taking the time to clarify the first part of her video.

It takes a lot of energy, as we know, to talk to the public and clarify things while we have LC, but it’s incredibly important to do so. We hope this continues in the future for more community clarity.