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Shah Minokadeh, M.D. Profile picture
Shah Minokadeh, M.D.
@MinoSean
Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
Jun 8, 2021 • 8 tweets • 3 min read
As a physician, I support the FDA's role in protecting patients from adverse events, ensuring safety & efficacy.

As a physician living with #ALS, I've recognized there must be different regulatory flexibility for untreatable lethal diseases.

1/ As a physician who was denied access to clinical trials for 8 yrs, I have been #DyingWaiting for some drug, any drug, with some efficacy to be approved.

I have been horrified by the FDA's regulatory rigidity & inhumanity toward the ALS community.

2/