#Mother, #Advocate for #Humanrights #ChronicPain #IntractablePain/ End #Shame #Discrimination #Prejudice #harms. Wants #Government #ethics #Accountability
Apr 30, 2023 • 7 tweets • 1 min read
When my colleague and I advocate, it’s never to put ourselves in positions or spots. We don’t want to be in any position like that. We advocate for balance and justice, transparency, accountability, equity. Thats it. We only advocate because no one else stepped up
We want to help others navigate how to advocate for themselves and for state justice & human rights. For task forces, commissions, boards, to be BALANCED. These are not jobs we want but had no choice but to use our voices.
Apr 30, 2023 • 5 tweets • 2 min read
this is a presentation done only ONE year ago in #Oregon. These individuals have played a huge part in the horrific injustices done to patients and providers over the past decade, they still hold power seats & contracts with state.
Why does the @oha cont to do biz with OPG & people who refuse to collectively change when harms have been proven? Even the CDC’s new GL admit to wrong directions & harms from past GL.
Apr 29, 2023 • 10 tweets • 3 min read
Regardless of what party she is, something needs to be looked at deeply. Why the SOS has been so hell bent on going after pain doctors providers and pain patients. Giving disinformation on data on prescription abuse in Oregon, when we have a literal crisis of under treating pain
She has family experience with addiction she admits, that is not a pass to wage a war on pain providers in Oregon! and patient private medical info! To use them as scapegoats when data proves otherwise. She digs her heels in hard to go after pain providers. Why? She obviously
We have been asking for ethics help for months on concerns about the SOS PDMP audit data and her subsequent pdmp bills this session! Literal falsehood in Ian Green’s presentation on bill SB559. He stated false info! Which was punished in Oregon media to make matters worse.
How can an audit dept just get away with lying? Stating inaccurate data as fact? This should have been a red flag! To investigate! But crickets. Crickets from @OPB even. Even the small voices deserve to be heard! @TinaKotek
May 1, 2022 • 8 tweets • 2 min read
We are hearing something disturbing happening, again in Oregon. OHP/medicaid program, we hear (not confirmed) are telling provides with patients with incurable conditions to stop utilizing so many services, tests, treatments, referrals on them. To focus on the curable patient -
The ones who have a chance to get better and return to work (get off medicaid). In Oregon we have a crisis where medicaid patients with chronic conditions (esp with pain) can not find primary care provider to take them. Well? If this is happening that would add disincentive to -
Nov 8, 2021 • 5 tweets • 3 min read
Not sure if shared yet? This is OPG’s website manager’s presentation in 2019. Please note the names on the taper workgroup. Including Chou, Ballantyne, Lembke, Coelho (lotus eater comment & PROP board member) and more. See link to presentation in thread.
Members: qualityhealth.org/bree/wp-conten…
Nov 8, 2021 • 15 tweets • 4 min read
That is a lot of $. Keep in mind in Oregon Jeffrey Rhodes was given the position of leader in the Governors opioid epidemic task force. Members included some big anti opioid names as well. mjbizdaily.com/oregon-marijua…
When my colleague and I had our one and only mtg with the Governor, she said that she knew it would be a challenge to transfer all pain patients to cannabis. Which was a shock in of itself to hear, this was her thinking. That there was even an expectation of this.
Sep 17, 2021 • 12 tweets • 3 min read
Shared before, but feel in my intuition she is up to more- than we can see on surface currently. Safina Koreishi, MD, was my 1st experience with mass force tapering in a clinic setting, and my initiation (not knowing at time) of starting in advocating for patient rights.
Recent article glamorizing her, via one of our medicaid CCO’s (coordinated care organizations). She became the director of a community health pain clinic / that was doing great things for medicaid patients before she arrived. Like medication, chiropractic, PT (not covered yet)
Mar 4, 2021 • 11 tweets • 2 min read
Question? With historic patient/ advocate/ expert feedback to Oregon’s HERC, regarding the Chronic Pain Task Force proposal, that did not pass (highest number of letters/ testimony on any one topic per HERC) why is Oregon pain care overall ~ NOT improving? but worsening?
areas of concern that we see are;
(Specific to Oregon Not including CDC)
1) A group named Oregon Pain Guidance. Is not part of state or government. So does not have this oversight/ accountability. Yet they seem to have unmatched power infiltrating state/ Gov areas ie direction
Mar 4, 2021 • 14 tweets • 3 min read
To clarify, as Oregon can and is confusing.
In 2011 Oregon’s legislature created the Health Evidence Review Commission or HERC. To decide what services and medications would be covered under the states medicaid program, the Oregon Health Plan (OHP).
2) in 2015 HERC had a task force called the back reorganization task force. There are hardly any meeting materials avail online. Under a year- this TF presented its plan to HERC to vote on. Two major notes or areas were part of this plan for back/ spine pain. Note 56, and 60.
Sep 21, 2020 • 4 tweets • 1 min read
No one woke up one day and expected a life challenged with severe intractible pain, plus the comlexities of the conditions that cause the pain. Navigating the medical system, and life - with a desire to live. Yet, I do not think anyone in this place or island -
Could fathom that NOW at this moment- a war would be allowed to take place against pain and medication that can really help- pain- and bleed into shaming, profiling, money grabs, take overs of human rights disability rights to this degree.
Aug 12, 2020 • 5 tweets • 1 min read
This is not good nam.edu/best-practices…
What are these people’s end game? Issue? Set a path of fire for life to any and all people who live with incurable pain conditions?
Jul 25, 2020 • 4 tweets • 3 min read
Such a powerful piece of music. If.. each person harming the chronically ill,RIGHT NOW (knowingly or unknowingly) could take a moment a breath-reflect, even a little. People want to LIVE & experience life. Do not take that away.
Every individual has a right to engage & experience a full life. Artist, scientists, philosophers, mothers, fathers. Some have bodies that are like war zones. So, we have good doctors and medications that should help these amazing people thrive as best they can - and
Jul 20, 2020 • 4 tweets • 1 min read
Did you know Oregon’s HERC refused to allow over the phone testimony during the Chronic Pain Task Force meetings? But now because of pandemic they are?.. instagram.com/p/CC1lkJ4gfiS/…
Jul 18, 2020 • 5 tweets • 1 min read
Just to clarify so no one gets confused (easy with Oregon) HERC’s Chronic Pain Task Force proposal was handled. HERC’s back/spine passed years before in 2016 and was precursor to the CPTF.
That... is what is up for review. When we helped halt the CPTF horrible proposal in Oregon we also ASKED to have a review of previously passed prohibitory back spine note 60.
Kolodny blocked me on twitter, and I had never even mentioned his name (many months ago). I found this very telling how juvenile and strange this person is. Now, I know much more, and what his involvement truly is behind the assault on the chronically ill.
A mother? An advocate? A person who is disabled from an intractable pain condition? Fighting for human rights? Equity? Apparently one of these profile attributes offended him enough to block me. That is really not professional conduct, well- nothing he has done is.
Jul 12, 2020 • 9 tweets • 2 min read
May 23, 2020 • 8 tweets • 2 min read
It is a suprise this is still on an active CCO website, when the forced taper portion of the back policy (note 60) was paused in Oct. until a review. The HERC created the back policy. Pre-chronic pain task force. eocco.com/news/2017/tape…
In actuality, the forced tapers policy was started in 2016, and tried many times to get off the ground. So they started staggering it with “implementation” dates. I can not even describe the horror these date announcements gave patients. On medicaid, with no way out.
May 18, 2020 • 5 tweets • 2 min read
The New AHRQ Report will 1st be used here in Oregon. To review HERC’s previously passed back pain policy on medicaid patients, ie note 60 prohibition of analgesics and forced tapers, that began in 2016. The meeting is this Thursday the 21st. Short warning window.
It will be a full teleconference mtg. And allow phone testimony and written comment, but.. deadline for verbal is today at noon to sign up PST. Written, Tuesday noon.
