Patients with Power Profile picture
Rogue neuroscientist fighting for healthcare based on science; not bias. Health scams & dodgy science 🧐 Patient rights & power dynamics⚡️I like solving puzzles
Apr 29 12 tweets 2 min read
I wrote an explanation of why people with Ehlers-Danlos syndrome can have so many other conditions, using a car analogy. I'm posting it here in case anyone else wants to use it to help someone in your life understand 🧵 #EDS #hEDS "I have a genetic connective tissue disorder called Ehlers-Danlos syndrome. It’s a problem with the body's collagen (and some other connective tissue components). Collagens are found all throughout in the human body so faulty collagen can cause problems in lots of bodily systems.
May 12, 2023 12 tweets 4 min read
You'd never guess - from the name - what Chronic Fatigue Syndrome 𝘳𝘦𝘢𝘭𝘭𝘺 is.
A lot of doctors don't know either.
🧵 According to current research, #MyalgicEncephalomyelitis (ME/CFS), otherwise known as "Chronic Fatigue Syndrome," is a neuro-immune condition with fluctuating physical and cognitive symptoms. The gloved hands of a scien...