In response to my question 'What do you see as the most promising medications for neuro-inflammation in ME'? @drclairetaylor wrote a brilliant thread

Unfortunately the order was all scrambled, so with the help of ChatGPT have tried to put it in the correct order!

🧵1/n Introduction 🧵 2/n

The case for ramping up ME/CFS research, through both public and private funding, is absolutely compelling 📈

Especially in light of the COVID-19 pandemic, which has significantly worsened this humanitarian crisis happening under our noses

A visual thread 🧵

Update on @wecrunchme 👀

From early next year, I am going to be taking CrunchME forwards with all my energy, with the primary goal of helping to accelerate funding into #MECFS, #LongCovid & IACCs more broadly 📈

(Short 🧵) I've had an amazing time as part of the @visible_health team, and am hugely grateful to have been a part of that journey.

It's a stellar group of people: each person in their role is doing incredible work there, and I fully expect it to keep going from strength to strength

2/n

Some thoughts after 6 months with a @ParasymHealth - a tVNS device (transcutaneous vagus nerve stimulation) ⚡

1/n🧵 The idea is that it stimulates your Vagus Nerve, helping to trigger the parasympathetic nervous system, and so get your body into a 'rest and digest' state

I will say first off, it definitely *does something* - unlike with some supplements, no wondering if it's doing anything at all!

2/n

I think there is far greater potential for collaborative research between #MECFS and #LongCovid - indeed between all IACCs!

Whilst improving, this chart shows that only 2.6% of research papers mentioning LC also mention ME/CFS

1/ 🧵 Given the current evidence suggests around 20-50% of Long Covid cases meet the diagnostic criteria for the 'ME/CFS subtype' - this number seems *far* too low

Like 10x too low...

2/

The UK Government's Interim Delivery Plan for ME/CFS is out 👀

It's long, but the key thing is *next-step actions* - so here are a thread of tweets with what it says 🧵

Note: Chat-GPT4 used here to help condense into tweet length bites

1/

#MECFS #pwME 📢 Agreed Actions on ME/CFS:

The UK Clinical Research Collaboration (UKCRC) - Research Working Group commits to foundational research by spring 2024 to guide future sustainable actions on ME/CFS.

2/