I often get upset because it feels like there must be SOMETHING I could do to recover from #LongCovid. But the reality is: I’ve actually tried a lot, and nothing has helped.

My future is largely in the hands of a few bright scientists and a government that doesn’t care.

🧵 I have to remind myself that the burden doesn’t fall on me to cure this disease—I wouldn’t expect a cancer patient to find a groundbreaking, novel therapeutic.

So why do I feel this pressure to find all the answers on my own, especially when I'm barely surviving?

Growing up as a queer person in a conservative state, I thought I knew how it felt to be ostracized & abused.

But NOTHING prepared me for how awful society would treat me after COVID left me chronically ill & disabled.

Living with a highly politicized disease is a nightmare

🧵 The healthcare system has completely abandoned us. Doctors have no answers, and research is heavily underfunded. Instead of treatments, we are offered neglect and gaslighting.

There is zero sense of urgency, and very little in the way of curiosity.

"Each reinfection increases the risk of developing Long COVID. If you are under the impression that once you've gotten COVID you never need to worry about it again, you are mistaken." - @BernieSanders @BernieSanders I cannot tell you how fucking HUGE it is to hear a high ranking senator acknowledge this.