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Official Twitter of The Lymphie Life®, a patient-run blog that aims to educate, connect, & support the global #lymphedema community 💙 #StayElevated
Oct 28, 2019 10 tweets 4 min read
Antoine Louveau of @ClevelandClinic closing out the conference with a presentation on lymphatics of the brain: "We have to start caring about this lymphatic system."
#nln2019 Neurological disorders are extremely prevalent, extremely expensive, and there are limited therapies and treatments for what are often lifelong battles with large side effects.
#nln2019
Oct 28, 2019 10 tweets 5 min read
Carmen Recupero begins a presentation on the applications of neuro-lymphatic therpay... 🧠
#nln2019 A link between lymphatics and the brain has been suspected, but now there's research backing it up: "Treating lymphatic health in the body is not an arm and a leg."
#nln2019
Oct 28, 2019 6 tweets 3 min read
Cheryl Brunelle from @MassGeneralNews is here now to discuss prospective screening for breast cancer-related #lymphedema. Re: establishing new guidelines - "This is just the beginning of a discussion that will progress over the next year or so."
#nln2019 Screening for #lymphedema should begin at pre-operative visit, and continues every time they see their oncologist. Patient education is key so they can be vigilant of symptoms themselves: "Changes can be subtle. We want them to call as soon as their arm is 'different.'"
#nln2019
Oct 27, 2019 4 tweets 3 min read
.@DrDhruvSinghal from @BIDMChealth Lymphatic Center is on stage now: multidisciplinary approach to #lymphedema care is a necessity, not a luxury. BIDMC's center includes lymphatic therapy, lymphatic medicine, body imaging, lymphatic surgery, and nuclear medicine.
#nln2019 The center runs a patient symposium every year to get the patient perspective, helps make program more patient-centric and really makes them a part of the team. (Love to see this!)
#nln2019
Oct 26, 2019 4 tweets 2 min read
Amy Rivera of @NinjasFightLE is up!! Her presentation is titled "The Power of Positivity: Learning How to Walk Again"
#nln2019 @NinjasFightLE With a dramatic photo of her severely swollen pre-op leg behind, Amy begins: "I had a dream for 20 years that I was 'normal,'" she says. "The biggest dream I had... was to wear jeans."
#nln2019
Oct 26, 2019 4 tweets 2 min read
Erica Demarch is speaking about incorporating sensory integration and movement strategies into exercise for #lymphedema.
#nln2019 Research on balance in the #lymphedema population is expanding: "The new research that's coming out is exciting, but there's still gaps."
#nln2019
Oct 26, 2019 7 tweets 4 min read
Open discussion between panelists and audience on updating precautionary guidelines for #lymphedema.
#nln2019 "We need to get clear on what the definition of #lymphedema is, otherwise we're going to be over-treating and over-worrying [cancer] patients."
-Nigel Bundred, professor of surgical oncology, Manchester University NHS Foundation Trust
#nln2019
Oct 26, 2019 6 tweets 4 min read
Radiation oncologist Alphonse Taghian on the stage to discuss evidence for precautionary measures for #lymphedema, opens with quote from Herman Suit, MD: "We discuss science not to make a convert of one another, but to further our own understanding of the truth."
#nln2019 When precautions become harmful: oftentimes fear of #lymphedema is not innate to cancer patients, but taught via the admonishes to "avoid, avoid, avoid" in precautionary measures provided by clinicians.
#nln2019