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Victoria Scott Profile picture
Victoria Scott
@Toryscott
University lecturer, bestselling author of PATIENCE (Bookseller's Assoc Book of the Month) GRACE & THE WOMEN WHO WOULDN'T LEAVE https://t.co/cRQ5yB1pph
May 23, 2024 • 13 tweets • 3 min read
I had hoped I wouldn't need to post this. I don't invade my sister's privacy lightly, but I have no choice.
This is the only thing I can do to help her.
A 🧵
Clare has Rett syndrome.
She can't communicate and needs 24-hour care.
Her disability means her breathing's compromised. Image She's in hospital in Redditch at the moment, recovering from pneumonia. Amazingly, she has fought the infection off. Go Clare. However, she's been left with all sorts of gunk on her lungs and she needs regular help clearing it so she can breathe.
Here's the thing...
Aug 20, 2023 • 14 tweets • 4 min read
Something big happened in my life this week.
Some of you know about my sister Clare. She's a kickass human with Rett syndrome.
Rett stole her ability to talk & use her hands as a toddler. Now 43, she can't stand & can't communicate.
BUT - science has just played a blinder.
A 🧵 Image All the way back in 2007, I read a paper () that shook my world. Scientists had given Rett to mice in a lab and had managed to apparently reverse the condition using gene therapy.pubmed.ncbi.nlm.nih.gov/17289941/