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María Richardson Profile picture
María Richardson
@_diatoma
ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #Renegade50 with #RemissionBiome. Ella/she/her.
Jul 5 • 16 tweets • 7 min read
I made a short mixtape of some commonly-highlighted moments in #ME #MECFS #GreatestMEdicalScandal history. What other moments and songs would you add? #PAIS #IACC #LongCovid #JohnVsJonVsME The history of IACCs likely starts earlier, but #GreatestMEdicalScandal often begins at the LA County Hospital 1934 outbreak, same year as Ellington's 'Solitude' ("You taunt me/With memories")


me-pedia.org/wiki/1934_Los_…
May 29 • 13 tweets • 4 min read
Beautiful people, we want to close out this #MEAwarenessMonth with something fun & lighthearted that will both help highlight the #GreatestMEdicalScandal and allow you all to show off your humor, wit, and creativity. 🧵#ME #MECFS #LongCovid #ExposeMENow #MyalgicEncephalomyelitis Image from 'Singing in the Rain' poster with John Oliver and Jon Stewart's faces superimposed on two characters. Below them the hashtag #JohnVsJonVsME and the description 'social media storm May 31'. Then times and locations: 12 pm NYC, 9 am SF, 5 pm London, 10 am CDMX. At the bottom the hashtag #GreatestMEdicalScandal. Last week we asked you to tag succinct & poignant clips & images outlining the history of #ME—the good, the bad, and the ugly—so journalists might find these more easily. Thank you to everyone using #GreatestMEdicalScandal, and please continue to share!
May 27 • 33 tweets • 17 min read
I wish everybody covering or working on #ME #LongCovid #IACC watched 'The Tangled Story of #MECFS' (2021) by @DialoguesMECFS. It's a great introduction with a wide range of featurable clips on #GreatestMEdicalScandal. Here are some moments/examples (1/x):
dialogues-mecfs.co.uk/films/the-tang… The film starts with a 2018 debate in the House of Commons in the UK. A reminder that many of our authorities can't claim "We didn't know any better" in relation to #LongCovid and other #IACC. #GreatestMEdicalScandal #ME #MyalgicEncephalomyelitis 2/x Still of the film that shows different MPs in the House of Commons. A speaker says "I think the disability of ME is one which doubly disadvantages people."
May 20 • 5 tweets • 2 min read
#pwME #pwLC #NEISVoid WE NEED YOUR HELP!
It’s far past time more media shone a light on what @GeorgeMonbiot called "the #GreatestMedicalScandal of the 21st century." We want to show TV producers that #MyalgicEncephalomyelitis #ME #MECFS deserves a primetime spot. (1/5) Old-timey cinema poster in red, sepia, and black that reads at the top "A grand crowdsourcing feat." Below, in its own band, the hashtag #GreatestMEdicalScandal". In the light of an old camera, there's the invitation "Tag videos/clips on ME, past & present, that every journalist should see." At the bottom of the image, it says the time and place: "May 2024", and "All around the world" To make it extra easy for them to find a wide range of poignant footage, we invite you to add the hashtag #GreatestMEdicalScandal to video clips, images, and audio that should be on everyone’s radar. The best succinct poignant pieces. (2/5) Old-timey cinema poster in red, sepia, and black that reads at the top "A grand crowdsourcing feat." Below, in its own band, the hashtag #GreatestMEdicalScandal". In the light of an old camera, there's the invitation "Tag videos/clips on ME, past & present, that every journalist should see." At the bottom of the image, it says the time and place: "May 2024", and "All around the world"
Jul 14, 2023 • 14 tweets • 2 min read
My sister had cancer for about six years (age 14 to 21). She was treated in top hospitals in Monterrey and Houston as well as integrative places in Tijuana and Hamburg. She ate vegan, no sugar, daily green tea, etc and later had bone broth and local shamanic potions. (1/x) Family members brought over statuettes of saints and a traveling 'virgen de los remedios'. She had Reiki and other forms of energy healing. She was always gracious about those things, though we did have instructions... (2/x)
Jun 7, 2023 • 15 tweets • 6 min read
So many people are so attached to the malingerer narrative. In a BBC 2013 “Great Lives” podcast on Florence Nightingale the museum professional who chose her describes the statistician and sanitary reformer as “someone who it seems to me almost revels in her suffering’ (1/x) Mark Bostridge, who wrote the 2008 Nightingale biography responds (bless him), “I think that’s unfair, because she was seriously ill and for decades historians and biographers portrayed Nightingale as a malingerer…” (2/x)