As time goes on, I realize that either I’m a bad example of what LongCOVID can be, or advocacy is and I do feel a need to eventually back away. For example;

I specifically use the word “flare” which is NOT interchangeable with “crash,” but unfortunately people assume they are…

https://twitter.com/acrossthemersey/status/1980433616091148588

The way I’d describe flare ups would be like an extreme, sudden immune response. It’s like an engine going from dormant to 100Mph. I’ll feel a deep bruising in my thighs, down to the bone, my eyes get glassy and watery and I feel like I’m sort of inflamed and hyper stimulated..

I know most of you don’t have LongCOVID and are avoiding it like the plague it is. Trust me, you’re right, the deniers are wrong.

Just had a flare up from hell the past 2 days and NOTHING touched it. Out of nowhere, it just stopped like I’m back in 2020. It’s so bizarre… To go from one extreme to the other, plays harsh tricks with your mind and thought process. I’m built for it and certainly not complaining because I know a lot of people don’t even get 5 mins of remission, but it’s surreal. I’d say I wouldn’t wish it on my worst enemy but…

In 2022, an economic researcher for the Federal Reserve Bank of New York wrote an article about LongCOVID causing a surge in disability and becoming a workplace fixture. Citing Census Bureau data, the CDC and NIH, he suggested future COVID waves could continue disabling workers. His data and suggestion back in 2022, continues to correlate with what is seen today.

This is the US Department of Labor Statistics via FRED, disabled workers, 16 years and older.

New study in The Lancet Infectious Disease analyzing 460,000 patients across 40 US hospitals found that children’s risk of developing LongCOVID more than doubled upon reinfection, with no significant variation by vaccination status. “From a public health perspective, these findings are critical. They reinforce the imperative to maintain & strengthen vaccinations tailored to children & adolescents, as well as advocate for continued adherence to protective practices including masking.”
bioengineer.org/new-study-indi…

Anecdotally, the LongCOVID patients who seem to be making the most gains or close to recovery, are the ones taking antivirals, mAbs and maybe even Ivig.

I’ve been reluctant to discuss my antiviral trial because I wanted to give it time and not get my or anyone else’s hopes’ up. But with that being said, I figured I’d share a little in that we decided to continue on my 4th month and that I’ll stay on this combo indefinitely.

Unfortunately, since we don’t have any validated, available biomarkers or a viral load test, there aren’t any ways to measure…

Moroccan researchers landmark study tracking SARS2 mutations through 2021-2024, found Omicron carries up to 89 mutations helping adapt to escape immune response, more transmissible, with nearly 8 in 10 patients developing significant symptoms particularly in the 20-40 age group. “This shows how remarkably the virus adapts to escape immune defenses.”

“Although Delta was more likely to cause severe illness, Omicron proved more transmissible.”
moroccoworldnews.com/2025/08/252140…

New study in Nature shows increased incidence of shingles reactivations from COVID, driven by immune dysregulation and those individuals are at a significantly higher risk of heart attack and stroke, acute kidney injury, decline in renal function within a year of COVID infection Study: nature.com/articles/s4159…

Article: boingboing.net/2025/08/21/peo…

South Carolina Republican Senator Roger Nutt announced his resignation after seeking medical care for LongCOVID and then receiving a diagnosis for Alzheimer’s Disease.

People get really worked up when there’s a suggestion that pro athletes absences or performance issues *might be due to COVID or LongCOVID, but when these athletes careers’ are ruined and COVID LongCOVID were key contributing factors, those same people have nothing to say.

1/ Ryan Bertrand was a very good English Premier League player and English International. In 2021 he made a big move to Leicester and contracted COVID before the season started.

It kept him out for weeks despite the notion that athletes have superior immune systems.

New Nature study shows SARS2 significantly elevates the risk of neuropsychiatric conditions including anxiety, mood disorders, cognitive impairment and psychotic disorders for up to 6 months.

“Alarmingly, even individuals with mild or asymptomatic infections face elevated risk.” “Many risks peak within the first 30-90 days post-infection but persist markedly up to 6 months. This persistent risk underscores the necessity for continuous clinical vigilance and development of targeted surveillance strategies to identify and manage sufferers early.”

LongCOVID is disproportionately destabilizing a generation already grappling with high rent, gig-based work, and fragmented access to healthcare.

It’s not just the virus they’re fighting, but also misinformation, financial insecurity, housing instability and social invisibility. “Picture a young adult in their late twenties, formerly healthy, working full-time, and renting a small apartment in a shared house. After a bout of COVID, their symptoms never fully go away. Fatigue, brain fog, and recurring inflammation make it difficult to work consistently.”

National Bureau of Economic Research revision shows 1.4M excess deaths in US adults 25 and older due to COVID between 2020-2023, increasing Social Security by $219 Billion. (Net positive of $156B)

“These findings provide critical insights for SSA projections & policy decisions.” “The pandemic resulted in approximately 1.4 million excess deaths among individuals aged 25 and older between 2020 and 2023. These premature deaths mostly reduced future retirement benefits, which increased the Social Security fund by $219 billion.”
papers.ssrn.com/sol3/papers.cf…

A life and health actuary reviewed CDC numbers finding US mortality is 10.6% higher than in 2019.

Some may have a shorter life expectancy than they originally believed because of COVID, post-COVID health effects. It's not clear if US mortality might return to pre 2020 levels. This second part highlighted doesn’t really make a lot of sense. You are not being made stronger by whatever is causing the mortality. COVID and post-COVID, ie., LongCOVID, do not build you up. Cumulative infections do the very opposite.

One day we’ll get there.

There was a post early stating that curcumin is a treatment for LongCOVID, which was totally ridiculous and ignorant to the fact that Turmeric-curcumin is the most commonly found supplement behind the significant rise in liver toxicity cases (hepatotoxicity) being reported. Posts like that are reckless because people with LongCOVID, whether they admit to it or not, are desperate to try anything that might help.

Further, it can interact with medications and was singled out by my Dr. as one to avoid before starting Maraviroc.
jamanetwork.com/journals/jaman…

Two new studies and the American Brain Foundation find that brain damage (brain fog) caused by SARS2 may be permanent and a link to Alzheimer’s by invading the central nervous system, damaging healthy brain cells via excess inflammation and increased amyloid plaque buildup. Article:
bestlifeonline.com/covid-alzheime…

Study in Frontiers:
frontiersin.org/journals/aging…

Study 2 in Science Advances:
science.org/doi/10.1126/sc…

So anyway, good luck living with it and the August flu or whatever.

National Bureau of Economic Research finds approx 1.4M excess deaths among Americans 25 and older between 2020-2023 due to COVID, saving Social Security over $200 Billion.

‘Social Security financial health improved due to excess deaths, driven primarily by the premature death.’ The data also notes “as of 2023” when this was revised in March 2025.

Americans are literally dying for their government and putting money back in its pockets.
nber.org/system/files/w…

OSHA released a proposal to remove remaining temporary standards for occupational exposure to COVID.

“Specifically, the proposal would remove the recordkeeping and reporting requirements imposed on covered health care employers related to health care workers with COVID-19.” Good luck out there, it’s just a cold now.
aha.org/news/headline/…

I decided to see a cardiologist recently was because I’d been getting these really weird dizzy-headaches and knowing so many people with POTS, I figured that’s what was happening to me.

During my initial exam, he said the funniest thing. “POTS is such a bullshit diagnosis.” He said it with such exasperation and I actually laughed (iykyk) and he said “don’t get me wrong, I treat it all the time but it’s a bullshit name, it doesn’t mean anything. It’s not one thing and all my patients are different. We don’t know what causes it, we know …”

A team of actuaries report that mortality due to COVID in US adults ages 22-44 is getting worse, life expectancy may drop in 2025 and could improve by 2034.

Insurers used this data to write life policies and asked the Treasury Dept and IRS to use it for pension plans. (Rejected) IRS officials started mulling the impact of COVID on mortality tables for pension plans. For life insurance policies, higher mortality rates make reserves higher & may make taxes lower. For pension plans & annuities, higher mortality rates may make reserves lower & taxes higher.

One of the worst things that happened when I got infected in Jan 2021 was the muscle pain which was so severe that couldn’t walk for a few months.

This article says muscle pain is now the most common symptom, impacting 86% of all infected across all age groups & severity levels. They even mention legs as being one of the most common areas along with the neck, which is something I see a lot of other patients on here mentioning. Head and face too.

This is really the first time I’ve seen this much detail on “myalgia.”

“The assumption that children and teens recover completely from COVID has been shattered by mounting evidence that their developing respiratory systems are uniquely vulnerable to long-term damage.”

“What’s particularly alarming is that many had mild or asymptomatic infections.” “Adolescent lungs are still developing well into the teenage years, with critical growth phases occurring during the exact age range when many students experienced COVID infections.”

Most people treat their kids like luggage, so none of this is relevant.
rollingout.com/2025/06/03/lon…