RN, reader & writer of words, mama to a medically complex son w/ heterotaxy and a spirited daughter with a bouffant. Look for us in the forest. #HikeWithEthan
Nov 13, 2020 • 8 tweets • 2 min read
After eight months of being scrupulously cautious, pulling the kids out of school, not attending church or eating in restaurants or doing anything with anyone, my husband has covid. Because he had to go back to work and the people around him weren’t as careful as we’ve been.
I am alternating between terror and incandescent rage. We’re doing everything we can to keep the rest of us, especially Ethan, safe. But what does it matter when everyone else acts like this isn’t a big deal?
Nov 10, 2020 • 17 tweets • 7 min read
It was nice to feel relief and hope for a couple of days, but the future of kids like my son, Ethan, is being argued in front of the Supreme Court today, so it’s back to fight mode. #SaveTheACA
I’ve never really known an America without the ACA. I was covered on my parents’ insurance before I headed overseas, and while I was in West Africa, Obama was elected and his signature legislation passed.
Mar 13, 2020 • 27 tweets • 17 min read
Got kids at home suddenly and need some screen-free entertainment? Here's a list of some of our favorite podcasts:
We have to start with our all-time fave: @storypirates. Kids write stories and they turn them into amazing sketch comedy and songs. Their website (storypirates.com/podcast) has bonus content and you can get your kid writing stories to send in!
Mar 26, 2019 • 7 tweets • 3 min read
What’s hard for me is the sheer number of people who believe that this is no big deal and that life for families like mine will just go on as usual. Because surely insurance companies didn’t REALLY deny based on pre-ex conditions before the ACA, right?
I don’t know how to convince people of what is true. I don’t know how to make people care, how to convince them that there’s enough to go around in this ridiculously wealthy country.
