making #rarediseases an everyday conversation https://t.co/kZWskP9Ojj
Mar 17, 2022 • 10 tweets • 7 min read
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Through 2021 young people living with #RareDiseases share their experience of transitioning from paediatric to adult care in this new report created by Costello Medical in collaboration with @camraredisease & @RareBeacon
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Transition has been described as “the purposeful and planned movement of adolescents and young adults with chronic physical and medical conditions from child-centred to adult orientated healthcare systems”.
Young people living with #RareDiseases share their experience of transitioning from paediatric to adult care in this new report created by Costello Medical in collaboration with @camraredisease & @RareBeacon
Download & share lnkd.in/e4zc5WZ6
“There is a difference between transition, which is a process and should start early, and transfer of care which is when someone becomes the responsibility of adult services.”
Liz Morris Lead Specialist Nurse in Lysosomal Storage Disorders, Addenbrooke’s Hospital