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calbeargirl.bsky.social Profile picture
calbeargirl.bsky.social
@cb_grl
Long Covid 2022. When I am able, I enjoy playing trivia w/ #pwlc. snoopy memes cheer me up. hetereodox in forming my opinions. I advocate and support #pwlc
Nov 27 • 7 tweets • 1 min read
I found this today in my memory box. Did I write this or just keep it? I don't remember a lot of things anymore.

Through the Kaleidoscope of Change:

I look for the meaning
And the meaning I find is this: For every season of my life,
God has a purpose,
And if God has a reason
Then I am free to go ahead and love
Oct 4, 2024 • 4 tweets • 1 min read
I donated to in good faith. I still absolutely believe in biomarkers. I will still support it. celebrate @polybioRF funding this. I believe in @johanvawe's work.

I do not support LCAP or LCF's handling of this GFM campaign.

I apologize for my part in it.
threadreaderapp.com/thread/1842181… @polybioRF @johanvawe There is no scenario where it is appropriate to take donations from a sick patient community when it was not the only option on the table.

Failure to understand & recognize this is the key issue for the donors who represent the majority of the funds raised. Given them a choice.
Oct 4, 2024 • 16 tweets • 3 min read
I specialize in NPOs. I did this day in & day out for decades. I know what is legal & what is not.

I asked:

1. Is this the highest & best use of patient time & resources?

NO

2. Was there complete transparency with patients?

NO

3. Were patients centered throughout?

NO Image Keeping $ after the project was fully funded for > a month & not informing patients is not ok.

A Story: A college student loses both parents in a wildfire & needs tuition & housing to finish school to be able to support his minor siblings.

A GFM to raise 50k is created.
May 24, 2024 • 7 tweets • 2 min read
When I get too concerned about the Lady Gaga’s and long Covid influencers.

I go back to Charles Schultz. I copied this because it’s important.

Possibly the Most important thing you'll read this Year... The following is the philosophy of Charles Schulz, the creator of the 'Peanuts' comic strip.
You don't have to actually answer the questions. Just ponder on them. Just read it straight through, and you'll get the point.
1. Name the five wealthiest people in the world.