formerly assistant prof in philosophy @wijsbegeerte • now bedbound w myalgic encephalomyelitis/long covid
Apr 1 • 12 tweets • 2 min read
Many Long COVID scientists fail to meaningfully draw on the insights of patient-researchers. In our Comment for
@TheLancetInfDis, we propose a solution: make all Long COVID papers undergo pre-publication patient review. 1/
Patient expertise is always essential to research on a disease, and especially so when the disease at hand primarily affects women and/or marginalised populations, is stigmatised, and is underfunded and thus insufficiently understood. 2/