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Dana Parish Profile picture
Dana Parish
@danaparish
Best-selling Author: CHRONIC/ Medical truth-teller #Lyme #Covid #GoF 📖: https://t.co/mSsjINOx7t 📰: https://t.co/Oi3iDXQdkd Podcast: https://t.co/Sp3lS8AmS7
🥥🌴🌊☕️Coffee&Robots🤖🌊🥥🌴🇺🇦 Profile picture phal Profile picture R0Y Profile picture ARP Profile picture james.pamela Profile picture 8 subscribed
Sep 29 • 6 tweets • 3 min read
I am so sorry to learn of Kris’s death. He was a brilliant talent & human.

I documented his stunning recovery from chronic Lyme-induced Alzheimer’s in HuffPo in this in-depth interview.

His story opened the eyes of many MDs & researchers who reached out after this was published. His contribution to the world of chronic illness can’t be overstated.

RIP, Kris, & thanks for everything 🙏A Slow Slipping Away - Kris Kristofferson’s Long-Undiagnosed battle w Lyme led to Alzheimer’s His Lyme began with severe fibromyalgia 12 years prior to diagnosis. It progressed to cardiac arrhythmias, joint pain, depression, anxiety, muscle twitching, and then Alzheimer’s. He was sent home (from touring, his love) to die but his wife, Lisa, was determined to find root cause.

huffpost.com/entry/a-slow-s…
Sep 26 • 5 tweets • 2 min read
💊This is a biased piece, which is what I'd expect given that rapamycin is cheap, generic, and promising.

We put our dog, Lucy, in a rapa trial when she was 14 and it reversed her arthritis and heart murmur. She went from hobbling around the block to racing full-speed down our street and hurdling curbs after a few weeks. We were amazed. There are many similar reports from pet owners.

We need human trials and more data, but this article was blatantly skewed & should not dissuade researchers from studying it or the public's interest in exploring its potential. This was Lucy after a few weeks on Rapamycin at age 14.5. She had arthritis in her hip and was unable to hobble more than a block before this.
Sep 25 • 4 tweets • 2 min read
🔥 New, promising data on Profi Nasal Spray (aka PCANS) as prophylaxis for respiratory viruses:

“The researchers developed the formulation and studied its ability to capture respiratory droplets in a 3D-printed replica of a human nose. They showed that when sprayed in the nasal cavity replica, PCANS captured twice as many droplets as mucus alone. 

“PCANS forms a gel, increasing its mechanical strength by a hundred times, forming a solid barrier,” said primary author John Joseph, PhD, a former postdoctoral fellow at Brigham and Women’s Hospital. “It blocked and neutralized almost 100% of all viruses and bacteria we tested, including Influenza, SARS-CoV-2, RSV, adenovirus, K Pneumonia and more.”

Experiments in mice showed that a single dose of the PCANS nasal spray could effectively block infection from an influenza virus (PR8) at 25 times the lethal dose. Virus levels in the lungs were reduced by >99.99%, and the inflammatory cells and cytokines in the lungs of PCANS-treated animals were normal.”Preclinical studies suggest a drug-free nasal spray could ward off resp infections I keep Profi in my arsenal of nasal sprays as I keep in mind that ID doc told me “washing” the site of viral entry can potentially clear or reduce pathogen amount. Makes sense. Me holding Profi bottle
Sep 18 • 6 tweets • 2 min read
My friend got COVID for 1st time (she knows of) 3 weeks ago. Felt awful.

So did her 21 y/o son.

She treated w 10 days of Pax & metformin.

His MD reluctantly Rx’d 5d pax.

He rebounded & is now sicker than in before.

She feels “great” & no rebound.

How much more evidence do we need to fix the PATHETIC standard of care?? How to treat? Some ideas.
Aug 30 • 5 tweets • 1 min read
Let me give you a perfect example of how collusion & propaganda work & spread.

Lies repeated over and over are still lies.
JHA repeating what he’s told to say: Literally no one who understands the basics of immunology and public health believes this
Marc Veldhoen repeating what he’s told to say Tactics:

✅shame (“only stupid people would question authority on this so shut up”)

✅give the illusion of consensus (“ALL experts feel this way and you’re not an expert so shut up.”).

✅using unified, coordinated language so the public starts parroting it in face of dissenting views
Aug 28 • 9 tweets • 2 min read
I’m gonna keep talking about early treatment since it’s so damn important and continues to be crazily under-valued & ignored.

I check in w clinicians regularly on how they’re treating acute COVID. They all say: 5d Paxlovid not enough!

Consider 10d pax + metformin + doxy. Ref for doxy
Aug 5 • 4 tweets • 1 min read
🦠 A music mgr just told me she came home early from tour as she was “so, so sick” & “everyone is sick” “& keeps getting sick” & “this never used to happen in summer” & “the weird thing is no one wants to admit what it is” & “WTF that it’s not getting fixed or better.” Also talked about how much 💰 her artist & crew lost in canceled shows, how much the industry is losing bc of “unprecedented illness,” how many artists are “totally f*cked up bc of it already” etc.

“Their voices are f*cked. They’ll all be lip-syncing or quitting.”
Jul 31 • 12 tweets • 6 min read
🚩 Stunning that two (potentially treatable!) common drivers of dementia weren’t mentioned:

1. Neuro infections
2. Mold/ toxic mold (mycotoxins)

🧵 Leading Alzheimer’s researcher Dr. Dale Bredesen’s paper on toxic mold causing Alz:

“Inhalation Alzheimer’s: an unrecognized- AND TREATABLE- epidemic”

👀 ncbi.nlm.nih.gov/pmc/articles/P…

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Jul 25 • 9 tweets • 4 min read
🚨 The misinfo in this article abt Lyme needs immediate correction:

1. Single-dose doxy DOES NOT PREVENT LYME & is not recommended. It may prevent a Lyme rash, making it more impossible to get proper diagnosis if you become infected (since the rash IS DIAGNOSTIC).

2. No. You’re not necessarily in the clear if you don’t have symptoms for a month after a bite. Steere published long ago that there can be a latency period of weeks to months to years before symptoms set in. (Sound familiar?) And they can range from neurologic to cardiac, rheumatic to psychiatric to fibro to MS etc etc.

So you wanna TREAT TICK BITES w a real course of abx immediately. Before rash. Before other sxs. Your best chance to avoid disseminated Lyme is to treat the bite properly. Many people fail the ridiculous IDSA Rec’d short course of doxy at rash stage and it destroys their health. See next tweet for ref. True experts treat longer upfront and often use more than one antibiotic (doxy and zith is my pref. Prevention is king.

Waiting for symptoms is a dangerous game bc once you have them, you may never be free of them. We call it the torture disease for a reason. Don’t let it happen to you.

3. I didn’t see permethrin mentioned as the best repellent for ticks. It’s actually an insecticide and will kill them on contact. DEET etc works poorly to repel ticks. They climb over it and bite you elsewhere. Treating shoes w permethrin is best. It can’t be put directly on skin. Read the bottle before applying. If you wanna use other repellents beyond that, great. But understand they’re limited.

Lyme is a highly complex infection likened to cancer by famed Duke oncologist @drneilspector. It can ruin your life. It’s neither easy to diagnose or cure. It can most certainly become chronic. We have no good tests for it. Diagnosis is usually missed and docs fail to use clinical judgment too often, in spite of clinical diagnosis being rec’d.

If you want accurate info for Lyme and other TBDs, my best recs are to listen to @Lymenews @BayAreaLyme @StevePhillipsMD @LymeChallenge @liv_lyme @dr_todd @drschweig @krisnewby @marybethpf @ilads_lyme and me. Strongly advise against trusting info from @IDSAInfo @CDCgov @NIH pediatricians, internists, @ACRheum & anyone outside the field. They are ALL FOLLOWING bad guidelines that are in place for political and financial reasons too complex for a tweet. Books (incl mine, written w @StevePhillipsMD) have been written abt this, films have been made, articles written. Trust me. There is way more to the story than what’s in the mainstream. ✌️ 100% failed doxy at rash stage!!
Jul 14 • 4 tweets • 1 min read
🚨 Today, he told me COVID reminds him of early days of HIV, how rebound on Paxlovid is like seeing HIV pts rebound after going off antivirals, how single-agent antivirals don’t/ won’t work well for COVID, how 5d is paltry “& whole ID community knows it’s ridiculous” etc etc etc Expressed disgust that we STILL have no prophylaxis, or good outpatient tx protocol (is not a fan of under-treating w 5d Paxlovid), treats w 10d pax and bromhexine, doxy, sometimes metformin, does nasal sprays & gargling & says they help as “you wanna wash the site of entry” etc
Jul 10 • 5 tweets • 3 min read
This is malpractice. A Lyme rash IS DIAGNOSTIC & requires immediate antibiotics. My pref is for an extended course & combo of abx (doxy/ zith, for ex) at rash stage because of high failure rate of 2 weeks of doxy, which is usually what’s Rx’d.

See next tweet for more context: As I’ve mentioned (!), I took 3 weeks doxy within 5d of my tick bite as soon as I saw bite/ rash YET WENT ON TO HAVE LYME-INDUCED HEART FAILURE & multi systemic illness, including fibro, tremor, severe neuropsych, light/ sound sensitivity, joint pain / swelling.

Why?👇🏼👇🏼👇🏼
Jun 18 • 4 tweets • 1 min read
Vaccine didn’t decrease Longcovid 😬 🤥 🤡 ☠️ Image
Jun 14 • 8 tweets • 2 min read
I’ve had these in my possession for a while & can’t reconcile how DEEPLY troubled I am that gov paid SO MANY PPL SO MUCH 💰 to promote COVID vax (etc) & it wasn’t disclosed to the public.

A cool 😎 $17k to a bunch of randos for posting gov-sponsored propaganda:
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Image I have so many questions…
Jun 11 • 9 tweets • 3 min read
🤥Rapid-fire lies from Ashish Jha. Can you spot them?

He’s dangerous bc he seems so reasonable, but it’s an act.

He has no spine, no conscience, & is the last person on earth I’d take medical advice from. A 🧵 of lies - @ChrisCuomo fyi
Jun 4 • 13 tweets • 5 min read
🚨🚨Seems like a good day to remind people that Tony Fauci is an indefensible, pathological liar, sociopath, & one of the most dangerous people alive.

Here’s a thread on a just few of his crimes: Fauci, often referred to as “the nation’s top infectious disease expert,” told ABC NEWS he “didn’t pay the much attention” to the early, serious warnings of top pandemic experts that we were about to be engulfed in SARS2. abcnews.go.com/Health/coronav…

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May 30 • 4 tweets • 2 min read
As I’ve said many times over the years, 👏🏻 LATENCY 👏🏻 IS THE 🔑 to understanding why a “mild” case of COVID (& many other infections!) is the biggest concern (for most).

As w HIV, Lyme etc it’s not abt the acute infection!

COVID is chronic & can strike at anytime.
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May 25 • 5 tweets • 3 min read
And now @WHO is “certain” high-mortality bird flu will go H2H.

Why are they telling us this? And why NOW? Isn’t it their job to STOP IT?

What action are they asking from the public?

To be afraid?

And what do they get out of that?

Ask q’s. Fascinating how when SARS2 was KNOWN to be on verge engulfing the world, we were told risk was “minuscule,” & “eat out to help out,” & “GET YOUR FLU SHOT & DON’T WORRY!”

In other words, don’t panic the public! Lie to them to influence behavior! usatoday.com/story/news/hea…
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Apr 22 • 4 tweets • 2 min read
Wow. Well, as I’ve mentioned a few times here, one anti-COVID measure I’ve been taking for 4 years is application of neosporin to my nose (in high-risk situations like MD appts etc).

Thrilled to see @VirusesImmunity & team confirm this as being effective against COVID etc
Image Actually, quite safe & effective.

I apply to the inside of my nostrils w q-tip or tissue (not too high up). Neosporin
Apr 16 • 4 tweets • 3 min read
📣 🐶 What a THRILL to speak to biologist / co-founder of @DogAgingProject, Dr. @mkaeberlein abt the incredible promise of Rapamycin, which turned my 15.5 y/o 🐶 back into a puppy a year ago!

‼️Could be important for #LONGCOVID! ‼️

In animal studies it:
✅ increased lifespan & immune function
✅reduced arthritis & other inflammation
✅ has activity against some cancers & helps cognitive function
✅improves ❤️ & oral health etc!

bayarealyme.org/blog/ticktecti… 🚨 “In that (small study), there was statistically significant decrease in ppl taking rapamycin in severity of COVID infection and…Longcovid”

“I’ve been saying for a long time that there’s a lot of potential in rapamycin for ppl suffering w Longcovid.” rb.gy/1ji4cz
Mar 10 • 4 tweets • 2 min read
Doxycycline is an important drug to consider as part of treatment for COVID & using it confers better outcomes. I made the case to hospital doc to give it to my dad, along w Paxlovid, & he did.

My dad is home now & will be on all treatment for ~10–14d.

ncbi.nlm.nih.gov/pmc/articles/P…
In hospitalized patients, doxycycline reduced need for ICU admission. My MD has been using it (or other abx like zith) in most of his COVID patients for years (all outpatient) as it helps on multiple levels, including prevention of secondary bacterial infections like pneumonia.
Mar 4 • 4 tweets • 4 min read
❤️ THANK YOU ALL SOOO much for the well-wishes for my beloved dad.

You have no idea how much I appreciate it.

He is a lot better today! 🙏❤️

See next tweet for details: My dad and me Dad was started on Paxlovid last night (after ridiculously intense efforts & refusing remdesivir, which is somehow still hospital standard & which they greatly pushed, even after I said no) & they plan to send him home by tomorrow if he continues trending well. 

Some background: My dad is healthy, active, & immune-competent, & prior to COVID, none of us remember him ever even having a bad cold or the flu etc. 

So, he had a minor stuffy nose on Fri. I wanted him to test for COVID, but when he was feeling better a few hours later, he thought it was overkill.

I explained that COVID often starts with a whimper & ends with a bang. It’s deceptive. I said an important reason to test is so we can get you on treatment BEFORE it gets worse. 

Well. It is hard to overcome the barrage of gov/ media/ PH minimizing messages. He didn’t test. 

As feared, he woke up yesterday morn sounding awful. 

He went downstairs to eat something and when he got up from kitchen table, walked over to the steps and collapsed on them “like a rag doll,” according to my mom, who understandably thought he was in cardiac arrest.

He was conscious but too weak to move at all. 

Ambulance came. He was still lying on the steps when they arrived. An EMT got on phone with me after initial eval & said he didn’t think it was a heart attack.

 I said I think it’s COVID. He said, “Why? It could be anything!” I said it seems obvious given his “sniffle” turned him into a rag doll overnight. 🤦🏻‍♀️

The other EMT yelled that his o2 was 94 (normal is 95 & above) and the one I was one phone with said, “OH. Yeah. You’re prob right about COVID.” 😬

His o2 was 89 and BP was 70/40 by the time he reached the ER 15 min later. He was passing out and couldn’t stay awake. He was in shock. 

They gave him IV fluids and he started to feel better. His COVID PCR came back positive and his bloodwork showed signs of shock/ dehydration & of covid infection. 

His o2 returned to normal level (97) on room air, so internist and I called and asked for them to start him on Paxlovid right away. Virus replicates quickly & every hour counts, esp at his age and considering how quickly he deteriorated at home.

They said they don’t administer it in ER (WHY?!!) and that once he is admitted, they’ll start him on remdesivir. 

We are not in favor of remdesivir as it can be toxic to kidneys (& liver) & hasten bad outcomes. We have known ppl who died from it & there are many such reported cases (I am also not saying it never helps, but it is not my drug of choice).

For additional context, early data showed it conferred no mortality benefit and WHO & others came out against its use. 

I am happy to report he sounds good, seems stable, & is looking forward to going home.

FYI - he, like many who got very ill from COVID—never had fever! So CDC should not be using “no fever” as a marker of going back to work! He is still very contagious & will stay home until he’s not. Because that’s the right thing to do. If we can spare one other family of going through this, we will. 

We’ll keep him on Paxlovid for 10d and add metformin when he gets home tomorrow. This will be in addition to “all the supplements” you know about. 

About advocating: I ALWAYS start off being extremely nice, respectful, collaborative, & try to be unintrusive with my parents’ medical providers. I have great relationships w most of them. 

But when things don’t make sense, like not administering a life-saving antiviral quickly in a case like my dad’s, I am not going to sit quietly on the sidelines and hope for the best.

When I realized ED doc was going to “follow the hospital rules” and not do what was best for my dad, I did contact the admin. I nicely but firmly said we needed to get him on Paxlovid stat. 

In a shockingly smug tone, she said I needed a privacy code to speak to her about him “due to HIPAA.” (See next tweet)