#LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
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May 1 • 4 tweets • 1 min read
New study links a range of proteins identified in the blood of Covid survivors with cell death and lung damage in #LongCovid patients affected by severe respiratory symptoms (pre-vaccine cohort) news.ki.se/long-covid-bio…
"The proteins were mainly found in patients with LC and severe respiratory problems. This is a biomarker pattern [known] to be linked to inflammatory signal pathways involved in cell death and lung damage..also..observed in other patient groups with severe pulmonary disorders”
Apr 11 • 5 tweets • 1 min read
When you talk about Long Covid, please always be crystal clear that there is a wide range of tests and biomarkers which show, beyond any doubt, multi-system pathology, sometimes captured down to the cellular level. Long Covid isn't just a bunch of symptoms
Presenting Long Covid as a "mystery" illness, a disorder with "no tests", some fatigue, or a "syndrome" characterized by "brain fog" and "sleep problems" helped no one. For sure, symptoms such as fatigue are common in Long Covid (I have it myself).
Apr 3 • 5 tweets • 1 min read
The science is actually crystal clear. The Covid conscious are right. SARS-CoV-2 is airborne and high quality masks/respirators protect from infection. Excess mortality data also suggest this SARS virus has killed ~30 million people. An estimated 400 millions have/had Long Covid
We must interrogate ourselves about how many millions could have been spared from death and disability if safety protocols, such as masking, top-notch surveillance, and "clean air", had been implemented. Children are among those killed or disabled by SARS-CoV-2 infection
Mar 14 • 41 tweets • 9 min read
This is #LongCOVIDAwarenessWeek. People living with Long Covid and allies across the world are coming together to raise awareness about Long Covid. Advocacy efforts will culminate on 15 March, the Awareness Day. Here some advocacy initiatives I spotted online 🔥
🇪🇸 Bilbao @covideuskal
In a sample of SARS-CoV-2-infected children with MISC, TGFβ overproduction is shown to trigger impaired T cell cytotoxicity (facet of immune dysfunction). This led to reactivation of Epstein Barr virus (EBV) and subsequent hyperinflammation
#LongCovid
nature.com/articles/s4158…
"The immune molecule TGFβ has been found to weaken immune defences against latent viruses". In MISC, the multi-system inflammatory syndrome seen in children post SARS-CoV-2 infection, TGFβ could trigger EBV reactivation and contribute to hyperinflammation
People still don't understand, or pretend to not understand, what Long Covid means, and how Covid works as a disease entity.
Re-writing and erasing history is dangerous, as it facilitates patient neglect and mass infection policies: why to stop SARS-CoV-2 if the sequelae are just some "brain fog" and "fatigue". Why to treat patients with urgency, if they're just somewhat "tired" and "foggy"?
Feb 20 • 8 tweets • 2 min read
Long Covid never meant to be just some "fatigue". Honestly. It's obvious. It's called Long Covid. Not "Long Fatigue". It's in the name. Is Covid just fatigue? No. The multi-system nature of Covid and LC is in the testimonials of first wavers who risked to die, it's in the science
Is fatigue a common symptom of acute and Long Covid? Yes. Did I myself have/had fatigue in acute and Long Covid? Yes. Is fatigue the only symptom of Long Covid and what the disease entity should be reduced to? No. Is scientifically proven Covid and LC affects all body? Yes
Feb 18 • 13 tweets • 4 min read
"The situation continues to be complex"
Pope Francis has been confirmed to have bilateral pneumonia, following lab tests, physical examination, and scan. He suffers from a condition triggered by multiple pathogens, building upon bronchiectasis and asthmatic bronchitis /
Bronchiectasis, which the Pope would have in addition to pneumonia and asthmatic bronchitis, is a disease where there is permanent enlargement of parts of the lung airways. Triggers include infectious diseases, immune system disorders and genetic factors
"He has an infection from multiple pathogens. The clinical picture is complex. The therapy has been charged. His stay in hospital will not be short."
Pope Francis remains hospitalized in Rome with a respiratory tract infection
[Corriere] /
The Pope's situation appears more complex than initially thought and more complex than a "bronchitis". He is reported to have been an infusion of antibiotics and cortisone for around 10 days in his residency but his ongoing health troubles led to hospitalization
Feb 14 • 8 tweets • 3 min read
"But beyond the loss, Rune’s body language and performance raised eyebrows."
Tennis star Holger Rune, 21, has suffered an unexpected early loss in Buenos Aires. He has now confirmed lingering illness from the flu, which affected him badly in Rotterdam, and a possible injury
According to some press, Rune "appeared disinterested, rushed points, shanked multiple shots into the stands, and recklessly approached the net. It left many wondering if he was injured or simply out of sorts."
Covid and Long Covid are scientifically linked to symptoms like chest pain, which might indicate life-threatening pathology. I will now share a thread of young/youngish people who suffered such affects, including elite athletes. Some have died, including because of misdiagnosis
US college student Bethany A. died from pulmonary embolism in her dorm at 20. She was reportedly dismissed by providers, despite having her oxygen saturation dropping to concerning levels
SARS-CoV-2 infection is scientifically proven to cause sequelae affecting basically all organs/body systems. Cardiovascular disease is a major sequel of Covid, even in young people. Chest pain can be symptom of life-threatening pathology. Please reflect before speaking of anxiety
Following SARS-CoV-2 infection, monocytes can exhibit altered gene expression and reduced responsiveness to certain immune stimuli. Clinically, this can result in more susceptibility to other infections, opportunistic infections, and EBV reactivation
#LongCovid /
Study following unvaccinated SARS-CoV-2 naïve individuals and convalescent COVID-19 participants from 2020 (mild and severe), with monocytes being studied 3 / 6 months post infection
"I beg your pardon. I am sorry. I have problems with breathing"
Pope Francis interrupted his homily in San Pietro this morning. He has been suffering from a respiratory illness, characterized as a "bronchitis", for days— his third (at least) infection in the last few months /
The Pope has been visibly unwell during this morning's celebration in San Pietro. Because of ongoing "bronchitis", he has been carrying out his schedule at "home" in Santa Marta in the last few days, rather than going to meeting outside
TV personality Kelly Osbourne, 40, has been reportedly rushed to medical care after she developed a temperature. She joins a long list of personalities struggling with pneumonias or "flus" in the last few weeks
dailymail.co.uk/tvshowbiz/arti…
EU's Ursula Von der Leyen, 66, is currently battling a severe case of pneumonia and has cancelled her external engagements. She is reportedly recovering and working from home
About poliovirus: it's not that polio was taken more seriously than Covid/LC. On the contrary (lockdowns, vaccine at warp speed, etc.). It's that more effective vaccines could be developed for polio than Covid. There is zero cure and almost no awareness for post polio syndrome
People basically could be vaccinated for polio and forget about it in most countries. Many people have taken so far 4-7 Covid vaccine doses. This could have eliminated Covid, like polio, in countries where there is such coverage. But the pathogen/vaccine features doesn't allow it
Dec 15, 2024 • 4 tweets • 1 min read
Covid-induced acute pancreatitis presenting after discharge for Covid pneumonia. A case report. SARS-CoV-2 infection can trigger pancreatitis presenting in a delayed manner from acute lung pathology
#LongCovid
pmc.ncbi.nlm.nih.gov/articles/PMC87…
Study published in 2022. Team "report a case of a 71-years-old male with multiple comorbidities that was admitted as a case of COVID-19 pneumonia for 10 days."
Dec 6, 2024 • 16 tweets • 7 min read
Ongoing examination is suggesting a link with post Covid myocarditis from 2020 for football star Edoardo Bove's cardiac arrest
Bove, 22, collapsed on the pit after an arrhythmia left him unconscious a few days ago against Inter Milan
#LongCovid
cdt.ch/sport/calcio/e…
The news has been available on Italian media for days. I have thought a lot about sharing as the information was more speculative before today. It's also sensitive news about a young person. News has been consolidating today with more concrete information
"Long Covid has dramatically changed my life”
Actor Matt McGorry developed LC after Covid infections in 2020 and 2023, with symptoms of dysautonomia, "brain fog" and debilitating" fatigue that doesn't go away even after "sleeping for 10-12 hours a night" theguardian.com/wellness/ng-in…
"Memorizing lines was becoming hard. Or doing cold reads, where you get handed the script, which requires a lot of multitasking: you’re looking at the script, engaging with the person, hitting the marks." McGorry said
Nov 15, 2024 • 4 tweets • 1 min read
Myasthenia gravis (MG) as a complication of #LongCovid. Case report of MG emerging four months after acute Covid. MG is an autoimmune neuromuscular disorder, which could be triggered in the context of immune dysregulation post SARS-CoV-2 infection pubmed.ncbi.nlm.nih.gov/39479090/
"This case illustrates the intricate link between post-viral states and autoimmune responses, particularly in geriatric patients." [The patient in the case study was 81]
Nov 13, 2024 • 9 tweets • 2 min read
"I'm getting tired a bit more quicker. 25% of my lungs weren't working after pneumonia"
Tennis star and world number 2 Alexander Zverev, 27, about not being 100% after being hospitalized with pneumonia in late September 2024
sports.yahoo.com/zverev-25-lung…
"I ended up in hospital before the Laver Cup [in September] when I had a fever of 40 degrees Celsius for three days in a row and at some point I felt like I couldn't breathe," [tennis star Zverev] said after his win in the ATP Finals opener [in Turin] on Monday.
