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Dr Elisa Perego Profile picture
Dr Elisa Perego
@elisaperego78
#LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
23 subscribers
Oct 27 • 20 tweets • 3 min read
"No further delay should be acceptable."

Proud to co-author this #LongCovid declaration to demand urgent action to fully recognise, treat and prevent Long Covid

with @LCawarenessInt @winslow_la @TogetherWeMask @longcovidaragon @TheWHN
@COVID19persist1

longcovidriseup.eu/lc-declaration/ "Long COVID is a new complex chronic condition caused by SARS-CoV-2. Born in 2020 from the lived experience of patients, the term broke the early myth that COVID-19 was either a brief mild illness or a rapidly fatal disease."
Sep 26 • 17 tweets • 5 min read
SARS-CoV-2 infection is a significant risk for cardiovascular health. Cardiovascular sequelae and manifestations are a key facet of #LongCovid. Patients deserve care
A thread with research studies

#CovidHeart
#LongCOVIDHeart
#LongCovidAwareness #LaRAGEauCoeur
@winslow_la Cardiovascular disease as part of Long COVID: a systematic review

academic.oup.com/eurjpc/article…
Jul 23 • 7 tweets • 3 min read
There are concerns about a "mysterious illness" going through the pelaton at the top cycling event Tour de France. Several racers were reported to be affected already days ago. Since then, star M. van der Poel has withdrawn with pneumonia while R. Evenepoel left feeling "empty" Image One of the most prominent racers affected by the "mysterious illness" was superstar and current Tour leader Tadej Pogačar, who lamented cold symptoms but remains in the race. Van der Poel also had cold symptoms, which has now progressed to pneumonia

rmcsport.bfmtv.com/cyclisme/tour-…
May 20 • 20 tweets • 5 min read
Five years ago today the term #LongCovid was first used as a Twitter hashtag. A single tweet by a patient linked together a growing, grassroots movement of people who weren't recovering from Covid. Across the world, we were fighting for recognition and studying our own disease Image
Image
Image I feel strange posting this again after five years of fighting, suffering, and a global, grassroot mobilization of Covid survivors, who changed how Covid was understood and communicated to the public
May 19 • 4 tweets • 2 min read
A severe surge in Covid cases is reported in Asian countries.
"In Hong Kong, weekly cases surged over 30 times in 10 weeks. Cases also surged by nearly 30 per cent in a week in Singapore. There are also reports of significant surges in China and Thailand"
indiatoday.in/diu/story/in-n… There also seems to be a raise in certain indicators about Covid in Italy, such as child hospitalizations, in Italy, where novel variants of concern have been detected
However, surveillance in the country remains low

May 11 • 5 tweets • 1 min read
Biopsies of five patients with myocarditis in #LongCovid showed disruption of mitochondrial integrity in the heart. This research was replicated in mice and shed light on the profound cardiovascular impact of SARS-CoV-2 infection on cardiovascular health
sciencedirect.com/science/articl… The team's "investigation provides histopathological and electron microscopic analyses from endomyocardial biopsies of five patients who experienced various post-COVID-19 cardiovascular outcomes." such as myocarditis (inflammation of the heart muscle)
May 10 • 4 tweets • 1 min read
I appreciate WHO raising awareness about Long Covid. I, however, considered, and still consider, a great mistake to have declared the end of Covid "as a global emergency" two years ago. This contributed to minimize the ongoing risks of SARS-CoV-2 infection, including death and LC We must also interrogate ourselves as to whether LC is (only) 6% of people who get Covid (as per WHO quote). I think further reflection is needed here, especially when taking into consideration sub-clinical pathology and those who are never diagnosed with LC.
May 7 • 8 tweets • 2 min read
New PET imaging data reveal the long-term impact of COVID on heart and lungs, showing changes to these organs which are not detectable by standard medical assessments. 

#LongCovid

healthimaging.com/topics/medical… "We [study's authors] believe long COVID results in an inflammatory response that may predispose patients to premature coronary artery disease, pulmonary hypertension, and valvular damage such as stenosis or regurgitation."
May 5 • 4 tweets • 1 min read
NVC test shows significant microvascular damage in #LongCovid patients vs matched healthy controls. Dilated capillaries, microhaemorrhages, abnormal shapes and reduced capillary density are still detectable in LC 12 months after acute SARS-CoV-2 infection
rmdopen.bmj.com/content/11/2/e… Background to the study "SARS-CoV-2 induces endothelial and capillary damage, that is detectable by nailfold videocapillaroscopy (NVC)."
May 1 • 4 tweets • 1 min read
New study links a range of proteins identified in the blood of Covid survivors with cell death and lung damage in #LongCovid patients affected by severe respiratory symptoms (pre-vaccine cohort)
news.ki.se/long-covid-bio… "The proteins were mainly found in patients with LC and severe respiratory problems. This is a biomarker pattern [known] to be linked to inflammatory signal pathways involved in cell death and lung damage..also..observed in other patient groups with severe pulmonary disorders”
Apr 11 • 5 tweets • 1 min read
When you talk about Long Covid, please always be crystal clear that there is a wide range of tests and biomarkers which show, beyond any doubt, multi-system pathology, sometimes captured down to the cellular level. Long Covid isn't just a bunch of symptoms Presenting Long Covid as a "mystery" illness, a disorder with "no tests", some fatigue, or a "syndrome" characterized by "brain fog" and "sleep problems" helped no one. For sure, symptoms such as fatigue are common in Long Covid (I have it myself).
Apr 3 • 5 tweets • 1 min read
The science is actually crystal clear. The Covid conscious are right. SARS-CoV-2 is airborne and high quality masks/respirators protect from infection. Excess mortality data also suggest this SARS virus has killed ~30 million people. An estimated 400 millions have/had Long Covid We must interrogate ourselves about how many millions could have been spared from death and disability if safety protocols, such as masking, top-notch surveillance, and "clean air", had been implemented. Children are among those killed or disabled by SARS-CoV-2 infection
Mar 14 • 41 tweets • 9 min read
This is #LongCOVIDAwarenessWeek. People living with Long Covid and allies across the world are coming together to raise awareness about Long Covid. Advocacy efforts will culminate on 15 March, the Awareness Day. Here some advocacy initiatives I spotted online 🔥 🇪🇸 Bilbao @covideuskal

Mar 13 • 5 tweets • 2 min read
In a sample of SARS-CoV-2-infected children with MISC, TGFβ overproduction is shown to trigger impaired T cell cytotoxicity (facet of immune dysfunction). This led to reactivation of Epstein Barr virus (EBV) and subsequent hyperinflammation

#LongCovid

nature.com/articles/s4158… "The immune molecule TGFβ has been found to weaken immune defences against latent viruses". In MISC, the multi-system inflammatory syndrome seen in children post SARS-CoV-2 infection, TGFβ could trigger EBV reactivation and contribute to hyperinflammation

nature.com/articles/d4158…
Feb 20 • 5 tweets • 1 min read
People still don't understand, or pretend to not understand, what Long Covid means, and how Covid works as a disease entity. Re-writing and erasing history is dangerous, as it facilitates patient neglect and mass infection policies: why to stop SARS-CoV-2 if the sequelae are just some "brain fog" and "fatigue". Why to treat patients with urgency, if they're just somewhat "tired" and "foggy"?
Feb 20 • 8 tweets • 2 min read
Long Covid never meant to be just some "fatigue". Honestly. It's obvious. It's called Long Covid. Not "Long Fatigue". It's in the name. Is Covid just fatigue? No. The multi-system nature of Covid and LC is in the testimonials of first wavers who risked to die, it's in the science Is fatigue a common symptom of acute and Long Covid? Yes. Did I myself have/had fatigue in acute and Long Covid? Yes. Is fatigue the only symptom of Long Covid and what the disease entity should be reduced to? No. Is scientifically proven Covid and LC affects all body? Yes
Feb 18 • 13 tweets • 4 min read
"The situation continues to be complex"

Pope Francis has been confirmed to have bilateral pneumonia, following lab tests, physical examination, and scan. He suffers from a condition triggered by multiple pathogens, building upon bronchiectasis and asthmatic bronchitis / Bronchiectasis, which the Pope would have in addition to pneumonia and asthmatic bronchitis, is a disease where there is permanent enlargement of parts of the lung airways. Triggers include infectious diseases, immune system disorders and genetic factors

en.m.wikipedia.org/wiki/Bronchiec…
Feb 17 • 8 tweets • 3 min read
"He has an infection from multiple pathogens. The clinical picture is complex. The therapy has been charged. His stay in hospital will not be short."

Pope Francis remains hospitalized in Rome with a respiratory tract infection

[Corriere] / The Pope's situation appears more complex than initially thought and more complex than a "bronchitis". He is reported to have been an infusion of antibiotics and cortisone for around 10 days in his residency but his ongoing health troubles led to hospitalization Image
Image
Feb 14 • 8 tweets • 3 min read
"But beyond the loss, Rune’s body language and performance raised eyebrows."

Tennis star Holger Rune, 21, has suffered an unexpected early loss in Buenos Aires. He has now confirmed lingering illness from the flu, which affected him badly in Rotterdam, and a possible injury According to some press, Rune "appeared disinterested, rushed points, shanked multiple shots into the stands, and recklessly approached the net. It left many wondering if he was injured or simply out of sorts."

motorcyclesports.net/holger-rune-cr…
Feb 13 • 43 tweets • 13 min read
Covid and Long Covid are scientifically linked to symptoms like chest pain, which might indicate life-threatening pathology. I will now share a thread of young/youngish people who suffered such affects, including elite athletes. Some have died, including because of misdiagnosis US college student Bethany A. died from pulmonary embolism in her dorm at 20. She was reportedly dismissed by providers, despite having her oxygen saturation dropping to concerning levels

Feb 13 • 33 tweets • 9 min read
SARS-CoV-2 infection is scientifically proven to cause sequelae affecting basically all organs/body systems. Cardiovascular disease is a major sequel of Covid, even in young people. Chest pain can be symptom of life-threatening pathology. Please reflect before speaking of anxiety Bibliography

.nih.gov/news-events/ne…