Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news consults. @the_dailydis. #CripTheVote
Dec 1 • 29 tweets • 17 min read
As a filicide survivor put in Palliative after doctors said I was dying (I was, family didn’t pay for treatments or safe food, I only survived because I got benefits and left), with the rise in cases like mine —
The UK Terminally Ill Adults bill (and MAiD) are bad, listen 🧵
People who never lost jobs, homes, mobility due to disability (and never been in Palliative or Hospice) talking over those of us who *know* good versus bad laws for disabled people (and how the rise in passive and coercive eugenics Long Covid times feeds these laws): take note
“We will survive him” 30,000 disabled and chronically ill people died annually after SSA cuts from 2017-2020 — do you want voters to survive if you’re not even wearing a mask to keep you and others from facing this situation? #CripTheVote
2008-2019, about 10,000 disabled people died annually waiting for determination
It takes more than a few years to fix big cuts to staff, funding, office closures #CripTheVote npr.org/2024/06/08/g-s…
Feb 25 • 6 tweets • 1 min read
@audisdead Yep EDS/POTS/MCAS experienced physical therapists are vital for folks with any of these conditions — my spinal damage via EDS and untreated MCAS had my POTS and vagus nerve so reactive in 2019 that increasing any PT work led to syncope, vomiting, seizures, not digesting anything
@audisdead Over 90% of EDS folks develop some kind of cervical spinal issue which compounds vagus nerve issues (worse for us than normal connective tissue folks)
PT and other pain care is often required by insurance before neurosurgery is approved — folks have to fail/get kicked out of PT
Jul 13, 2023 • 33 tweets • 6 min read
#MECFS and #LongCovid microclot treatment developments, a thread I’ll keep updating:
A month ago I started my first med of TT (triple anticoagulant therapy); it’s been 2 weeks since I’ve been on all 3 meds
Already I’m noticed significant improvements in decades-long issues 1/?
1) I can feel my feet ache and change temperature again — enough oxygen is reaching my feet that my Raynaud’s and peripheral oxygen flow via #POTS is improving
I have had issues with this for 2 decades with severe issues for 1 decade; nothing else got me here 2/
May 17, 2023 • 22 tweets • 6 min read
Klaralyte Salt Capsules vs Salt Stick Vitassium for #POTS
Klaralyte is $27 for 300 with 250 mg Sodium and 50 mg Potassium per
Vitassium is $24 for $100 ($18 with the club discount) with 215 mg Sodium, 63 mg Potassium, 22 mg Calcium, 11 mg Magnesium, 100 IU Vit D3 per 🧵
Vitassium has other capsule products too for #POTS
You can get 100 capsules of just 500 mg Sodium and 100 mg Potassium per
Or the Plus Caffeine, with 190 mg Sodium, 53 mg Potassium, 14 mg Calcium, 7 mg Magnesium, 100 IU Vit D3 and 30 mgs Caffeine
Or chewable tablet products
May 3, 2023 • 8 tweets • 3 min read
Disabled people: it’s legal to forcibly sterilize us, deny us organ donation, deny us or force contraception, take our kids away just because we’re disabled, deny us life insurance, harm or kill us via no masks in healthcare
Doctors: stop calling it eugenics, we’ll block you
Doctors: stop calling eugenics a crime against humanity, it’s not on that level
Disabled people: it *is* a crime against humanity, international criminal courts and human rights laws passed after the Holocaust did eugenics said so, sterilization was invented by eugenicists
