@audisdead Yep EDS/POTS/MCAS experienced physical therapists are vital for folks with any of these conditions — my spinal damage via EDS and untreated MCAS had my POTS and vagus nerve so reactive in 2019 that increasing any PT work led to syncope, vomiting, seizures, not digesting anything @audisdead Over 90% of EDS folks develop some kind of cervical spinal issue which compounds vagus nerve issues (worse for us than normal connective tissue folks)

PT and other pain care is often required by insurance before neurosurgery is approved — folks have to fail/get kicked out of PT

#MECFS and #LongCovid microclot treatment developments, a thread I’ll keep updating:

A month ago I started my first med of TT (triple anticoagulant therapy); it’s been 2 weeks since I’ve been on all 3 meds

Already I’m noticed significant improvements in decades-long issues 1/? 1) I can feel my feet ache and change temperature again — enough oxygen is reaching my feet that my Raynaud’s and peripheral oxygen flow via #POTS is improving

I have had issues with this for 2 decades with severe issues for 1 decade; nothing else got me here 2/

Klaralyte Salt Capsules vs Salt Stick Vitassium for #POTS

Klaralyte is $27 for 300 with 250 mg Sodium and 50 mg Potassium per

Vitassium is $24 for $100 ($18 with the club discount) with 215 mg Sodium, 63 mg Potassium, 22 mg Calcium, 11 mg Magnesium, 100 IU Vit D3 per 🧵 Vitassium has other capsule products too for #POTS

You can get 100 capsules of just 500 mg Sodium and 100 mg Potassium per

Or the Plus Caffeine, with 190 mg Sodium, 53 mg Potassium, 14 mg Calcium, 7 mg Magnesium, 100 IU Vit D3 and 30 mgs Caffeine

Or chewable tablet products

Disabled people: it’s legal to forcibly sterilize us, deny us organ donation, deny us or force contraception, take our kids away just because we’re disabled, deny us life insurance, harm or kill us via no masks in healthcare

Doctors: stop calling it eugenics, we’ll block you Doctors: stop calling eugenics a crime against humanity, it’s not on that level

Disabled people: it *is* a crime against humanity, international criminal courts and human rights laws passed after the Holocaust did eugenics said so, sterilization was invented by eugenicists