My current updated protocol for managing Long Covid, MCAS, POTS, MECFS, Fibromyalgia.

Atorvastatin 20mg
CoQ10 100mg
Taurine (powder form 4.5 scoop)
Berberine (500mg)
Probiotics - lactobacillus plantarum
Glycine (5,000-10,000mg)
Lysine (500 mg)
Collagen Peptides
Resveratrol (1200mg a day)
High dose liposomal Vitamin C (1000mg)
Vitamin B1, B2, Liquid B12, K2,
B3 (has an antiviral effect)
High dose vitamin D3 (5,000-10,000ui)
Omega-3
NAC (500mg x 2)
D-Alpha Lipoic Acid w biotin
Copper, Zinc, Selenium
Astaxanthin
Ashwagandha
Reishi, Lions Mane Mushrooms

Mast cell stabilizers:
Quercetin (1000mg)
Spirulina
Stinging Nettle Root (500mg)
Olive Leaf Extract
Sweet fennel
Milk Thistle
Turmeric
Antihistamines: loratadine 10mg x1 (am), famotidine 20mg x1, Certirizine 10mg as needed

Activated charcoal (as needed to bind mycotoxins & heavy metals)

Propranolol (for POTS)
Gabapentin 300mg
21mg nicotine patches worn continuously

Sleep stack:
Magnesium Bisglycinate
Melatonin 30mg (I take higher dose for neural inflammation)
Hydroxyzine 25mg

I also do a low histamine diet, no soy, no gluten, low carb, high protein, I eat clean, no processed food. I think diet is extremely important to control MCAS.
I try and go to sleep and wake up at the same time every day.

I don’t take all of these every day, I alternate some of them in and out but this is my general stack. I put this protocol together piece by piece after researching the immune system, traumatic brain injuries and researching my symptoms, trialing everything myself over the last 3 years and have managed to go from severe and bedbound to recovered and planning my wedding.

2022 vs 2024

Recovery from long COVID.

It is possible. I did it on my own without help from doctors and I didn’t pay for any junk programs and I didn’t do GET.


The things that helped the most: total rest, clean eating, treating MCAS, taurine, metformin, nicotine patches, atorvastatin. The thing that flipped the switch to 100% was 8 weeks of maraviroc. I feel like my MECFS is in remission. I literally felt the switch flip. Currently symptom free, even my POTS is not symptomatic. Resting HR has gone from 90s to 60s. No more arrhythmia or sinus tach.

Oh fun I have been diagnosed with long covid, MECFS, fibro and MDD over the years lol. I believe the core of my health issues began with years of toxic black mold exposure from years of living in my parents’ moldy damp basement as a teen. I believe mold dysregulated my immune system, caused my leukemia and MECFS and left me vulnerable to developing LC from my first infection, led me to develop fibro. I also believe mold is behind all my mental health issues as a teen. Now living in a mold free home and getting my MCAS under control I have no daily anxiety, no chronic insomnia or and no MDD episodes. My sister and mom have no health issues and they lived upstairs. I’m extremely sickly and I lived downstairs in mold basement. My dad has severe lung issues and he spends time in the mold basement too. They are mad I am mad and coming to terms with being bitter about my health issues now that I know it’s because of the black mold. I told them for years the black mold in my room from the leaking bathroom pipes was bad for my health and they didn’t think it was a big deal until I got cancer. I believe mold wreaks havoc on mitochondria. When I was in the hospital with leukemia they tore up my bedroom and there was black mold all under the floors, in my closet, the walls. I lived downstairs from when I was 11-24 until I got sick, moved upstairs during chemo treatments. I was living at home while I went to university. Unfortunately when I moved out I moved into an apartment with toxic black mold that I lived in for 6 years and my health issues got worse. Had to have my gallbladder removed. Had undiagnosed MCAS, hEDS & MECFS. Wasn’t until I moved into this house with no mold that I got better. Until I got covid and long covid and then relapsed. I’m just now getting into remission again after almost 3 years of LC. Mold is a killer for mitochondria.

I love how the general public is just carrying on brunching ignoring the mycoplasma pneumonia epidemic despite it being an AIDS defining illness. Keep catching covid 3 times a year. It’s going well. Remember in 2022 after the great unmasking when the minimizers said if covid was destroying the immune system everyone would have pneumonia and opportunistic infections in a few years? Dooming generations of children to die an AIDS death. Ignorance is bliss. 🗣️ whn.global/public-service…

Lots of questions about mast cell symptoms. These are the most common. I had every single one of these in 2022. Long covid is a mast cell disease at the core imo. Mast cells are the first line of defense of the immune system. I have lots of threads about MCAS pinned in my highlights tab in my profile.

I feel like people underestimate how much MCAS has an impact on MECFS. I think MCAS has an impact on everything to do with the immune system and especially with the bodies overall pathogen load and chronic illness in general. I think the key to solving chronic illness lies in solving MCAS. Everything I do at the core focuses on controlling mast cell activation which is what flipped the switch for me.

Reading that case about the JAK1 inhibitor curing that girls 18 years long MECFS and that’s what it felt like to me, like a switch was flipped when I stopped getting PEM. I said this when I first started taurine. I felt it. I felt the switch flip and it felt like everything started working right again. I don’t know how else to explain it other than it felt like a switch flipping. I even tweeted about it

https://x.com/erincandy/status/1759626279223951486?s=46&t=67VdfUG2WKw_-l_qm47YLg

I hope people realize we are about to have an H5N1 pandemic. The sequence in BC they dumped the data late last night and it shows it’s picked up the necessary mutation needed to be an efficient human host. It’s highly pathogenic, it’s deadly, and it’s now got what it needs to spread among humans. It’s got the same mutation as 1918 Spanish influenza. Brace yourselves. You can pretend all you want like Covid but the 58% mortality rate won’t care.

Glycine. Amino acid. Neurotransmitter. Inhibitory effects in the brain can alleviate depression, boost concentration, help with brain fog. We make glycine naturally in the spine but if you are deficient in glycine it can lead to hypothyroidism, obesity and diabetes. I think I was deficient in it because I was a vegetarian for 8 years and I don’t eat red meat. I only eat chicken now. I take magnesium glycinate at night to sleep, I take glycine during the day for the brain boost.
It also has anti-inflammatory effect.

“Glycine appears to exert several protective effects, including antiinflammatory, immunomodulatory and direct cytoprotective actions. Glycine acts on inflammatory cells such as macrophages to suppress activation of transcription factors and the formation of free radicals and inflammatory cytokines.” L-Glycine: a novel antiinflammatory, immunomodulatory, and cytoprotective agent

.pubmed.ncbi.nlm.nih.gov/12589194/#:~:t…

Stinging nettle one of my favourite mast cell stabilizing supplements. My MCAS goes haywire without it and I can eat way more foods when I take it. Stinging nettle reduces mast cell degranulation, and stops the release of pro-inflammatory cytokines by inhibiting tryptase. It’s a natural antihistamine. I think it also helps my joint pain. It also has antifungal properties, antiviral properties and may help with hair loss. Funny enough when I ran out, my hair started falling out again. Back on it and my hair is growing like crazy. This is an interesting article on it

sciencedirect.com/topics/pharmac…

Ummm I have BOTH of the top long covid genetic markers posted in that study on 23&me. HLA-DRB1 and rs9273363. And my long covid has been severe and debilitating right from my first infection, while my acute covid has been asymptomatic or mild. 🤯


This is the full study

medrxiv.org/content/10.110…

Long Covid update

So happy I’m not having anymore brain fog. Between berberine-metformin-taurine-nicotine-maraviroc my neurological symptoms have all resolved

Atorvastatin has really helped my vascular issues. My skin is all a normal colour, not having blood pooling, no weird tingling or numbness.

I’ve got my POTS and MCAS under control.

My autoimmune diseases are under control

My ANS is functioning properly and I’m not having any dysautonomia symptoms

Haven’t had a PEM crash since May

I’m able to go in the sun again without anaphylaxis.

I’m still on a pretty limited low histamine diet. I cannot deviate from my diet to keep my MCAS controlled. Keeping MCAS controlled keeps everything else under control.

Mostly I’ve just got some fatigue from the maraviroc and I’m dealing with pain management from fibromyalgia but even that has gone from a 10/10 pain to 3.

I’m now just dealing with trying to get my CD8 T cells which are hyperactivated back to normal w the maraviroc, get rid of the viral persistence in my monocytes so disease process doesn’t restart, get rid of the rest of the inflammation which is almost gone.

This is definitely the most recovered I’ve felt. I have to say the nicotine patches are keeping my fibro pain under control. I don’t use anything for pain besides the nicotine patches and weed. I am allergic to all opiates. I use Tylenol sometimes. Can’t take NSAIDS. But for the most part I’m using 14mg or 21mg nicotine patches daily. I also think nicotine is an effective mast cell stabilizer and I also think it’s helped my POTS, my HRV has stabilized on nicotine.

People with hEDS and MCAS should be careful with nattokinase. Especially if you have a soy allergy. Natto is made from fermented soybeans. Lumbrokinase is a better option if you have a soy allergy or severe MCAS. Serrapeptase is another soy free option.

Taurine helps rebuild your shortened telomeres by preserving telomerase enzyme btw. It’s helping reverse the epigenetic damage covid did to me. Metformin also helps with epigenetic damage. Resveratrol, Vitamin c, polyphenols, help with telomere shortening. Anything that reduces oxidative stress helps telomeres. Shortened telomeres means your DNA is damaged. Shortened telomeres means you’re aging faster at a cellular level and you will get cancer, age fast and die early. COVID is causing epigenetic aging and telomere shortening. Important to reduce the number of infections you get by wearing a respirator. I had a bunch of grey hairs all of a sudden when my long covid was bad and since I started self experimenting with senolytics like taurine, metformin, berberine, I have fewer grey hairs and my LC has improved. Immune-senescence plays a major role in LC. That’s why everyone who is repeatedly catching covid is aging faster. Evidence for Biological Age Acceleration and Telomere Shortening in COVID-19 Survivors

ncbi.nlm.nih.gov/pmc/articles/P…

I’m a big fan of Milk Thistle as a mast cell stabilizer. Milk Thistle contains Silibinin.

“Silibinin reduces the production and mRNA expression of pro-inflammatory cytokines such as TNF-α, IL-6, and IL-8, suggesting that silibinin could be used for the treatment of mast cell-derived allergic inflammatory diseases.” ncbi.nlm.nih.gov/pmc/articles/P…

I’m noticing women are getting long covid more often but men seem to be suffering strokes post covid more often. Just from observing people I know, reality tv, anecdotally. My fiancé works in neurology and it’s just constant strokes and brain tumours now. So scary. This is the new normal everyone wanted so bad. Constant illness and disability. A healthy society is a thing of the past. I hope you are all happy with your decision to let a BSL-3 pathogen rip. Condemning everyone to an early grave with lots of suffering along the way.

Seeing way too many people posting about bleeding from the eyes on Reddit for H5N1 to not be spreading H2H. I don’t think it’s going to be as fatal though in mammals as it is in avian species. I’m seeing the same pattern and signs as I did in November 2019 that led me to believe there was going to be a pandemic. I told all my friends to start masking in December 2019.

It’s hard for me to share these photos but I want people to see what this virus can do. These photos are from 2022.

I have been bald since May 2022 when my hair started to fall out after my first Covid infection which was ASYMPTOMATIC. I was diagnosed with alopecia areata, which is an autoimmune response. I lost my hair, brows and lashes. I also had vascular lesions everywhere. I also developed solar urticaria, meaning I’m allergic to UVA/UVB. Indoor lights burned my skin. The sun gave me anaphylaxis. I have not been able to be in direct sunlight in over 2 years. My eyes swelled shut for several weeks.


I can go outside in the shade now at least if the UV is low enough. My hair is starting to grow back for the first time normally. My eyelashes and eyebrows fully grew back. These are all wigs

About to have a video conference with specialists about my lymphocyte panel results. Okay so they confirmed I have long covid viral persistence in my monocytes. Dr. Patterson prescribed HIV antivirals and a statin. The statin can get the spike protein out of the body via apoptosis. I am going to be doing 6 months of Maraviroc and Atorvastatin. Confirms I have vascular inflammation and damaged endothelial cells. He said the spike can persist forever if you don’t clear it. He also said it was not LIVE viral replication. It’s the viral fragments left behind after an infection that cause a cytokine storm.

Sounds mild, right?

My current updated protocol for managing long covid, ME/CFS, MCAS, POTS, Fibromyalgia.

Taurine (powder form 1.5g scoop x2)
Berberine (500mg x2)
Probiotics - lactobacillus plantarum
Arginine (protein powder form 5g scoop)
Glycine (5,000-10,000mg)
Lysine
Collagen Peptides
Magnesium Bisglycinate
Resveratrol (1200mg a day)
High dose vitamin c (1000mg)
Vitamin B2, Liquid B12, K2, B3
High dose vitamin D3 (5,000-10,000ui)
Omega-3
NAC (500mg x 2)
D-Alpha Lipoic Acid w biotin

Mast cell stabilizers:
Pycnogenol (French maritime tree bark) (250 mg)
Quercetin (1000mg)
Spirulina
Stinging Nettle
Olive Leaf Extract
Sweet fennel, milk thistle
Turmeric
Antihistamines: loratadine 10mg x2 (am), famotidine 20mg x2 , hydroxyzine 25mg (pm)
Activated charcoal (as needed to bind mycotoxins & heavy metals)

Propranolol (for POTS)

Gabapentin (200mg x2 for SFN)
Cooper, Zinc, Selenium
Melatonin
21mg nicotine patches worn continuously

I use betadine nasal sprays, CPC mouthwash.

I also do a low histamine diet, no soy, no gluten, low carb, high protein. This protocol I put together helped me go from severe to mild and gave me quality of life back.

https://x.com/erincandy/status/1801245274787946624?s=46&t=67VdfUG2WKw_-l_qm47YLg

I feel so motivated today I’ve already read 14 medical journals. I’m now convinced nicotine helps LC not only because of the theory that it might dislodge viral fragments from acetylcholine receptors, I think it’s also a mast cell stabilizer that can cross the BBB. Everything always comes back to mast cell activation. That is the key to solving LC and ME/CFS